I was just diagnosed with fibromyalgia. I'm very miserable with joint pain and kidney/bladder pain. I live in Nashville TN and the heat, humidity and poor Air Quality make me very short of breath when outside. I'm on 300 Neurontin 3 times a day being increased as tolerated to 600 3/day. Side effects are rough. Can't take steroids. About 45-50 pounds underweight. I would love responses
Oh, dear@karen00, I know you must be devastated with this recent bit of news. I recently learned that one of my dear friends and mentor has been battling this condition for about ten years. I was both shocked and surprised. First, because he looked so good. Secondly, he had the condition for years! That gave me hope that there were more treatment options available than I previously had thought. I look forward to learning more about your story, as much as you are comfortable. My husband has Crohns Disease, Diabetes, and Cirrhosis of the Liver. ( Not from alcohol abuse) Having a loved one endure serious, life threatening diseases is an experience that few people understand. It changed my life. I try to remember what is important, and cherish every day. I hope and pray that many blessings will come your way, even in the midst of this struggle. I am here for you. I will check on you from time to time, if that's alright with you? Hugs and love…
Mamacita
@mamacita Nice to hear this as this is the way to go I was talking with a women who has fibro she found Diary products ,nightshade veggies ,sugar fat are her flare ups for fibro I know I can't do tomatoes or peppres which i s ha rd to stay away from One thing I do for pain if you like tea ☕is Arnica tea for pain only place Ive found it is at Rite Aide For nerves (CNS) I take homeopathic nerve tonic its naturel ,I dont mention it to often but I like your comments if I can help I will even though I got scolded .heres to are good health and better days blessings Linda
Liked by Mamacita, Alumna Mentor
@karen00 and @mamacita Just a bit of warning. I have learned the hard way that multiple autoimmune disorders showing up are a difficult sign. Many of them work by starting with just a bit of protein misfolding and cloning themselves a few times, then dying and depositing themselves in some part(s) of the body. Then this repeats and more are made in a few hours. Now, having Crohn's, Diabites, and Non-Alcoholic Cirrhosis seem to be just the start. The deposits pick up speed, more is the impact on the body, and faster the spread. I started with about that, and now I have a whole body of dead protein deposits, and a whole bunch of sick tissues and organs. If you can find some way to slow down these deposits or remove them, that is what you really want to do. This is similar to other diseases, but the process is much the same. You don't need to panic, just always be on the lookout for new signs and symptoms of tissues in trouble. Skin, toenails, tongue, stomach, pancreas, ankles, hair, whatever. And when you see something changing, talk it over with your doctor, and educate yourself with Mayo, Anderson Sloan-K, Cleveland, NIH, whatever. And take on the attitude of excitement for learning about your body. https://bit.Ly/1w7j4j8 "Amyloid and Old Karl"
Liked by Ginger, Volunteer Mentor
Mamacita, thanks for the kind words. It really does help to be able to “talk” to someone who understands. I have to go back in for labs, stress test, and ultrasound. Boy do I dread this!! I’m already tensing up-my blood pressure was pretty high. I have to try and relax! We’ll keep in touch. I really hope you are having a good day!
@karen00
Mamacita – I have enjoyed and learned so much from your postings! I, too, have fibromyalgia and also rheumatoid arthritis. My diagnosis was in 2003 at a back clinic and I was totally surprised. My physician assistant was seeing me for back pain only, but ascertained somehow that I had fibromyalgia. I didn’t believe it for years. If the pain wasn’t enough, yesterday I was diagnosed with heart failure. I’m only 60 so this came as a shock. I’ve always prided myself on my strength, but I don’t feel strong anymore. I’m trying, though, and reading your writings props me up! Thanks!
Liked by Mamacita, Alumna Mentor