Fibromyalgia and Autism

Hello,

I was diagnosed with Autism and PTSD nearly a year ago by a neuropsychologist. I have had physical Fibro pain-like symptoms since 2018. Started with pins and needles in legs and feet and after a complete hysterectomy in 2021 due to severe endometriosis my pain increased and now I have limited mobility due to constant stiffness and pain in my lower back.

My other symptoms I have developed include but are not limited to:
- Tension headaches, cluster headaches, sinus headaches
- On and off tenderness in my ribcage, hurts to breathe and feels like most of my pain, which is a dull ache.
- Insomnia due to pain laying down. I can no longer lay on my back. My lower back muscles seize up and it is nearly impossible to get up on my own. Very painful too
- Tender spot on the back of my left hand that comes and goes.
- Tender spots on the outside of my thighs; when pressure is applied it feels like glass pressing into me.
- Brain fog, can think straight or organize thoughts, often get stuck on a word when speaking and cannot form the word I am trying to think of.
- Poor balance; very clumsy and when given the "sharp test" with a safety pin by my neuro, I cannot feel the "sharpness."
- Waking up for the day is hard as I feel like I have tight bricks in my lower back muscles and it is very painful to get out of bed.
- Other painful symptoms...

To get to my point as an Autistic person I am greatly sensitive to sensations and to really explain my overwhelming life, my husband and I bought a house in 2023, which we have yet to live in as we found out the entire build had to be gutted due to negligence and bad choices by the previous owners (i.e. splicing in old knob and tube wiring to modern wiring.) Nearly every weekend is spent at the house doing construction for the past 2.5 years.

My husband is very kind and understanding as I have found I am having a hard time sensory-wise and physically. However there are others in my life that don't understand. As an Autistic person I struggle but long to be understood and now with the heavy layer of Fibro now overlapping my life I struggle even more to express what I am going through.

Does anyone have any advice or even script I could use to best communicate what I am experiencing and why I am in such a painful place right now.

Thank.