Fatigue management.

I am a 75 year old male diagnosed with Non-Hodgkins Lymphoma (specifically IgG-secreting Lymphoplasmacytic Lymphoma) and was on of a schduled 6 ycles of Bendamustine & Rituximab chemotherapy. Cycle 6 did not occur due too my 'hematologist/oncologist' team cancelling it as chemotherapy was deemed ineffective on me. My paraprotein level had not shown any, or much, improvement as it had stagnated and plateaued at a level considerably below anticipated. November 2023, I was placed on Zanubrutinib (Brukinsa) which I am still taking. Initially Zanubrutinib stopped the progression of my paraprotein level; however, that same level never regressed either. I was considered stable during this time. Unfortunately, after 2 years, it appears Zanubrutinib has stopped working on me as recent trends appear to indicate.

I had extreme fatigue and little, or no, internal energy while I was being treated with chemotherapy. The fatigue and energy seemed to ameliorate noticeably at the start of Zanubrutinib; however, the extreme fatigue and the lack of internal energy has returned now.

I have found it helpful when I am able to become somewhat more active (which is not easy with the fatigue). Dealing as best as possible with the extreme fatigue and lack of internal energy I have found is a never-ending battle.

@qsjack Walking and rebounding (mini-trampoline) have worked wonders to reduce my fatigue.

I met with a medical counselor before chemo, who advised me that movement, even though it might seem counterintuitive, was a great way to combat fatigue.

I already owned a rebounder and continued bouncing during and after treatment. I had a walking routine in place before my diagnosis. The hardest part was making myself walk when the couch was so cozy.😆 However, once I got out the door, I had to make myself go back home.🤭

I find it best to find something that has a low barrier to participation. I'm sending you good energy.🤗
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Here's some info about rebounding if you've never heard of it. Please don't hesitate to contact me if you have any questions about rebounding.

YouTube Videos about Rebounding
Cancer Rehab PT - Title: Rebounder Exercises for Lymphedema and Lymphatic Drainage - For Beginners

try getting treated with targeted therapy, not chemo. With the advent of targeted therapies tailored for various stages in CLL , chemo has been phased out.

Exercise helps, even going for a short walk. Balance and light resistance training is good. Mostly one has to pace themselves, take naps, consider meditation, get enough sleep, and control stress as much as you can. Any escapes are good, TV, hobbies, talking with friends.