Fatigue from Walking

Posted by davidpn @davidpn, Jul 16, 2023

Recently diagnosed with diabetic poly nuerapathy. When I walk for more than 10 minutes (1/4 of a mile) my feet get heavy and tired and need to take a break. My neurologist felt it wasn’t due to neuropathy which really confused me because in my mind it would make sense. She stated her PN patients don’t complain about fatigue (?).

At her suggestion I was tested for heart, lung, thyroid and anemia as possible causes. All were fine. Had a sleep study done, got a new mask and machine but haven’t yet tested it out enough. My fatigue during the day I believe is caused by sleep apnea. But isn’t the fatigue related to walking different? Anyone get tired from walking and was it diagnosed to be neuropathy related? Thanks.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Ray, thanks for your input. Glad that chair was there!

David

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@stallen

Fatigue is a very common complaint from people with neuropathy. There are different types of neuropathy…sensory types or motor types …or both.
Muscle fatigue from neuropathy is extremely common…the muscles in your feet may be tiring from the walking. Continuing to walk and exercise is important with neuropathy. My neuropathy is quite variable…feet or ankles may feel fatigued a day or two then go away…and something else bothers. Do your own research online…there’s a ton of info. If your neurologist hasn’t seen the relationship between neuropathy and fatigue, I would question his/her qualifications.
One point to consider is newly diagnosed people often are experiencing high levels of an anxiety…which is an immense energy drainer..,you may be experiencing this as well.

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Definitely worthwhile input especially the role of anxiety.

Thanks.

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@stallen

Fatigue is a very common complaint from people with neuropathy. There are different types of neuropathy…sensory types or motor types …or both.
Muscle fatigue from neuropathy is extremely common…the muscles in your feet may be tiring from the walking. Continuing to walk and exercise is important with neuropathy. My neuropathy is quite variable…feet or ankles may feel fatigued a day or two then go away…and something else bothers. Do your own research online…there’s a ton of info. If your neurologist hasn’t seen the relationship between neuropathy and fatigue, I would question his/her qualifications.
One point to consider is newly diagnosed people often are experiencing high levels of an anxiety…which is an immense energy drainer..,you may be experiencing this as well.

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@stallen -- Well put! I have both sensory and motor and I get exhausted walking and keeping my balance, yet I manage to do it even with needed rests here and there. I'm a little surprised that your fatigue feeling is intermittent, comes and goes while mine is constant. PN sure impacts us all in different ways. Oddly enough, I get the feeling at times that mine will sort of level off for a while, many months and then one day, it gets worse and holds at that new level for 6 - 9 months, never better, always a step in the wrong direction. Been doing this since 2015.

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@dbeshears1

Hi David. This PN is surely different for all of us at different times in our journeys. For me, my legs get easily fatigued from waking. The muscles around my knees don’t communicate with my nerves or something, so my stride is different. My knees go up and down a little when I walk, but I can’t step up on a curb or climb steps at all without using rails or a walker etc. So the activity of walking fatigues my muscles easily and quickly. That said, it means I need to sit down, not go to bed! It does not make me fatigued as in sleepy. That’s my experience with my PN only, others could easily be different.

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Debbie, this describes me to a "T". I couldn't agree more ~ glad you commented!
~ Barb

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@ray666

Hi, David (@davidpn)

Having only been diagnosed in August 2022, so coming close to but not yet a full year, with idiopathic peripheral neuropathy, I regard my diagnosis as still a diagnosis-in-progress. My chief symptom is a wobbly walk. Luckily, I've no pain. But when I walk, especially for the shortest of distances and on a hard surface, like pavement, my legs can feel leaden. (What others have described, I say "Ditto!") But because my wobbliness preceded my diagnosis by several years, and I'd long ago cut back on my outdoor walking practically to never, today, I'm wondering if my weary legs are caused by my PN or by long-term lack of use, possibly, too, a touch of both. I'd like to believe that my every little Ouch! and Whoops! is not the result of my relatively new PN but rather a variety of pre-PN ouches and whoopsies. I'd an example of this dichotomy only last night, or more precisely, shortly after midnight this morning. After waiting since midafternoon to meet a friend's 6 pm flight at Denver airport, we learned that our friend's flight would be delayed to 9 pm, then to 10:30 pm, then to 12:20 am. We were dog-tired when we retrieved our friend from the airport (15 miles each way). As we were carrying our friend's luggage into the house, I lost my balance and went down rear-end first, luckily into the welcoming arms of a comfy chair. My partner and I discussed, last night and again this morning, whether my backward flop resulted from my PN or just plain ol' dog-tiredness. My partner assumed it was my PN. I maintained––and still do––that it was plain ol' dog-tiredness, the same ol' dog-tiredness I might have suffered at 50, 60, or 70. That's how I am about my leg weariness while walking. Is it my PN? Or is it a couple of years of leg neglect? Or a little of both? Exasperating business, this PN! LOL

Ray (@ray666)

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Ray, to me this is heart-wrenchingly part of the nature of coping with PN. Just as @stallen said, the anxiety involved is exhausting. One of the most difficult things (for me) is to decide whether I can commit to something, having had enough experience with PN through the years that I know I can't always be reliable to fulfill a commitment made ahead of time. The one scenario I can count on is, if I overdo, then the next day is one where all I can do is try to recover! Stay safe, friend.

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@ray666

Hi, David (@davidpn)

Having only been diagnosed in August 2022, so coming close to but not yet a full year, with idiopathic peripheral neuropathy, I regard my diagnosis as still a diagnosis-in-progress. My chief symptom is a wobbly walk. Luckily, I've no pain. But when I walk, especially for the shortest of distances and on a hard surface, like pavement, my legs can feel leaden. (What others have described, I say "Ditto!") But because my wobbliness preceded my diagnosis by several years, and I'd long ago cut back on my outdoor walking practically to never, today, I'm wondering if my weary legs are caused by my PN or by long-term lack of use, possibly, too, a touch of both. I'd like to believe that my every little Ouch! and Whoops! is not the result of my relatively new PN but rather a variety of pre-PN ouches and whoopsies. I'd an example of this dichotomy only last night, or more precisely, shortly after midnight this morning. After waiting since midafternoon to meet a friend's 6 pm flight at Denver airport, we learned that our friend's flight would be delayed to 9 pm, then to 10:30 pm, then to 12:20 am. We were dog-tired when we retrieved our friend from the airport (15 miles each way). As we were carrying our friend's luggage into the house, I lost my balance and went down rear-end first, luckily into the welcoming arms of a comfy chair. My partner and I discussed, last night and again this morning, whether my backward flop resulted from my PN or just plain ol' dog-tiredness. My partner assumed it was my PN. I maintained––and still do––that it was plain ol' dog-tiredness, the same ol' dog-tiredness I might have suffered at 50, 60, or 70. That's how I am about my leg weariness while walking. Is it my PN? Or is it a couple of years of leg neglect? Or a little of both? Exasperating business, this PN! LOL

Ray (@ray666)

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Ray, you’re playing those mind games again! There are lots and lots of dog-tired people walking around who would never lose their balance and fall backwards! I think if you had stopped walking outside in the preceding years, it’s because that neuropathy (pre-diagnosis) was starting to effect you. Even if you weren’t walking outside as much, you were still using your legs all day - standing and sitting, getting in and out of cars, and … don’t you do theater?
Ask your wise partner! Sounds like she tells the truth.

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@ray666

Hi, David (@davidpn)

Having only been diagnosed in August 2022, so coming close to but not yet a full year, with idiopathic peripheral neuropathy, I regard my diagnosis as still a diagnosis-in-progress. My chief symptom is a wobbly walk. Luckily, I've no pain. But when I walk, especially for the shortest of distances and on a hard surface, like pavement, my legs can feel leaden. (What others have described, I say "Ditto!") But because my wobbliness preceded my diagnosis by several years, and I'd long ago cut back on my outdoor walking practically to never, today, I'm wondering if my weary legs are caused by my PN or by long-term lack of use, possibly, too, a touch of both. I'd like to believe that my every little Ouch! and Whoops! is not the result of my relatively new PN but rather a variety of pre-PN ouches and whoopsies. I'd an example of this dichotomy only last night, or more precisely, shortly after midnight this morning. After waiting since midafternoon to meet a friend's 6 pm flight at Denver airport, we learned that our friend's flight would be delayed to 9 pm, then to 10:30 pm, then to 12:20 am. We were dog-tired when we retrieved our friend from the airport (15 miles each way). As we were carrying our friend's luggage into the house, I lost my balance and went down rear-end first, luckily into the welcoming arms of a comfy chair. My partner and I discussed, last night and again this morning, whether my backward flop resulted from my PN or just plain ol' dog-tiredness. My partner assumed it was my PN. I maintained––and still do––that it was plain ol' dog-tiredness, the same ol' dog-tiredness I might have suffered at 50, 60, or 70. That's how I am about my leg weariness while walking. Is it my PN? Or is it a couple of years of leg neglect? Or a little of both? Exasperating business, this PN! LOL

Ray (@ray666)

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Oops, didn’t mean to fuss at you. I’m fussy this morning. No one here for me to fuss at!

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David, One thing I forgot to add is how much physical therapy has helped my total leg strength. While walking is major to our quality of life and the activity we talk about exercising the most, PT helps us keep our other muscles worked for meeting routine tasks that use different sets, perhaps to squat, reach, bend, push a gas pedal, or even roll over in bed. It’s easy for a simple little muscle pull or tightness from doing something else adds a complication to our walking muscles, contributing to more fatigue or worse ability to walk comfortably. Anyway, I’ve found PT useful for keeping legs best possible for all activities needed, and also keeping my arm strength maintained to help me use rails to get me up curbs and steps.

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@bjk3

Ray, to me this is heart-wrenchingly part of the nature of coping with PN. Just as @stallen said, the anxiety involved is exhausting. One of the most difficult things (for me) is to decide whether I can commit to something, having had enough experience with PN through the years that I know I can't always be reliable to fulfill a commitment made ahead of time. The one scenario I can count on is, if I overdo, then the next day is one where all I can do is try to recover! Stay safe, friend.

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Hello @ bjk3, I couldn't help but notice you're going through a lot of what most people go through who live in chronic pain... the push crash cycle of overdoing and then having a big hit to recover from. Here's a conversation you might be interested in:
Moderation and modification how can it help your chronic pain?
https://connect.mayoclinic.org/discussion/moderation-and-modification-how-can-you-benefit/
Also there is this conversation about S.M.A.R.T goals:

https://connect.mayoclinic.org/discussion/smart-goals-and-chronic-pain-how-smart-are-you/

Just some thoughts to try to help you navigate a little better. I had a very challenging time coming to acceptance of my condition. Through cognitive behavioral therapy I was able to reframe chronic pain and my thoughts about it. How have you been working through the toll chronic pain takes on you not only physically but emotionally and behaviorally?

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@julbpat

Oops, didn’t mean to fuss at you. I’m fussy this morning. No one here for me to fuss at!

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Hi! I am just seeing this. I didn't think you were fussing at me. Besides, if you had been, getting fussed at every now and then is good for a fellow. Builds character! 😀 – Ray (@ray666)

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