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failed treatments

Posted by cheekyinpa @cheekyinpa, 3 days ago

My son has been told he's not a candidate for stem cell or BMT
He has CML/ALL and has failed oral chemo meds, they work awhile then he goes into blast phase, we have been in the hospital a few times since January 2024
Anyone else had this happen and what have you done?

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Mentor
Lori, Volunteer Mentor | @loribmt | 3 days ago

Hi @cheekyinpa. I’m sorry to read that your son isn’t responding well to his current oral treatments for CML/ALL. Has your son’s doctors discussed alternative treatment plans beyond oral chemo such as conventional chemo or the possibility of Clinical Trials?

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cheekyinpa | @cheekyinpa | 3 days ago
In reply to @loribmt "Hi @cheekyinpa. I’m sorry to read that your son isn’t responding well to his current oral..." + (show)
Profile picture for Lori, Volunteer Mentor @loribmt

Hi @cheekyinpa. I’m sorry to read that your son isn’t responding well to his current oral treatments for CML/ALL. Has your son’s doctors discussed alternative treatment plans beyond oral chemo such as conventional chemo or the possibility of Clinical Trials?

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We are supposed to start immunotherapy infusion today.
At first they mentioned the possibility of a BMT or SCT then said they didn't think he could handle the chemotherapy, also Car-t has been mentioned
We have not sought out second opinions as of yet, not even sure where to start, currently we are hospitalized at Topper Cancer Institute in Allentown PA

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