Recently newly diagnosed..what type of exercise is done for blood clots and anything that should be avoided food or daily tasks?
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Went to hospital cause my legs felt like they weighed 100 lbs. They did catsxan and blood clots in lungs and legs were discovered..going to hematology Dr now..
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Yes could be true but nobody to ask their all deceased
From everything I’m reading from various sources, Factor V Leiden is an inherited condition passed from one parent, and rarely, though possible, from both parents. I couldn’t find anything to indicate this could be an acquired mutation.
So…if that’s the case…somebody has some ‘splainin’ to do. 😉 I’m sure you’re scratching your head now.
A few questions for your hematologist; Can a person have Factor V Leiden with no familial history? Can it be an acquired mutation?
Believe me I have questioned it, sadly both my parents passed and everyone who would know anything are no longer alive. As far as my mom’s genealogy there is no factor V Leiden. Thanks for the input! Appreciated.
Before my mother passed I had her tested she was negative for factor V, my dad was also tested, negative! So they told me, not sure how true drs were but I have it, you have to have one parent with the gene correct?
I had a heart attack at my work office when I was 35, I am now 54 and diagnosed way back then. It was a moderately new thing they told me, was on Plavix forever, not anymore just aspirin. The thing is now I get these blood bruises all over even when I just touch my skin does anyone else get this? Should I be worried?
If you are bruising that easily I would go to the doctor.
That’s a frightening scenario, having blood clots in your legs and lungs! Thank heaven’s you went to the hospital when you did! That could have been catastrophic.
I’m happy to hear you’re seeing a hematologist now. They are doctors who specialize in disorders related to your blood, bone marrow, and lymphatic system. Hopefully now that you’re getting treatments, this won’t happen again!
How often do you have followup appointments?
Every 2 months
Since Factor V Leiden is an inherited trait, it may be that your mom had this genetic mutation and passed it along to you. It can increase the chances of developing blood clots in the legs and lungs. According to an informational article from Mayo Clinic, many people with the condition never develop abnormal clots.
You’ve had a long life without clotting issues even though you have the Factor V Leiden gene. I see in some of your previous posts that you’re now taking Eliquis. Where did you experience your blood clots? Was this a one time event for you?
I was diagnosed when I was 25 I am now 47. I presented my clots at the time I was diagnosed with Lymphoma. I never had a clot before that. I am also taking Xeralto. If you go to Janssen's website you can get your medication paid for. If you have private insurance you will only need to pay $10.
I avoid large amounts of food containing Vit K. it will counteract your Xeralto as well as the grapefruit and cranberry.
I exercise a lot. Keeping my legs strong has kept any blood clots from forming. However I get the little blood spots around my ankles "Petechiae". I bruise very easily so being aware of your surrounds is important.
Went to hospital cause my legs felt like they weighed 100 lbs. They did catsxan and blood clots in lungs and legs were discovered..
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