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Facing Cancer Recurrence, PTSD & Acknowledging Mental Health
It's extremely difficult to face the fact of recurring cancers. After treatments we try and get away from it all and live our life. Then along comes another CT scan or PET scan and POW, you have to face another cancer. My reaction was developing PTSD.
You can read what I wrote in my blog: https://my20yearscancer.com/blog/
How do we cope? How do we react? What do we do?
How have you all reacted to another cancer? Or the possibility of another one? Has your "already compromised" mental health been able to deal with it? How? Or not?
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@bjh369- I hear you. Your hair will grow back. When I had chemo -cisplatin and navelbine- my fatigues was incredible too. Hang in there! I'm here for your support!
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1 ReactionReally I haven't been sick. I got through surgery real well and got through radiation and 1st round of temozolomide real well. Just had been very tiered during all that otherwise doing really well. Not much hair left. Next will be double round of chemo for 5days then three weeks off. I hate to have to continue to take that nasty medicine:(
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1 ReactionHi @susu2, great feedback. There are 2 helpful ways to see who is replying to whom:
1) When members @mention the person or persons they are replying to.
2) Click reply directly below the message/person you are replying to and their message appears as a header to your reply. In the image below, you can see that merpeb was replying to bjh369. Click +show and you can see bjh's post.
Here is a more detailed description of how to reply effectively and find replies you're looking for https://connect.mayoclinic.org/discussion/new-customize-the-order-you-view-posts-see-new-posts-first/
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2 Reactions@susu2 I passed this on to the powers that be.
Could I suggest an alternative way to post replies? I am not online constantly all day and so when I look for replies to something I have posted it is confusing to see a reply to someone else’s post when it does not say to whom you are replying. Could that be added to the heading? I am interested in a lot of what is discussed but I don’t read every post that comes into my mailbox and therefore having to go back to what post is being answered IS TIME CONSUMING. I am trying to make my time more useful. Thanks!
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2 Reactions@bjh369 I am very sorry, you've had a rough time. How are you feeling? Is this a recurrence?
Surgery 9-27-2018 then diagnosis 10-8-2018 then 11-1-2018 radiation and first round of temozolomide which is chemo for brain cancer. I am to have a MRI with contrast January 17th, 2019 to see if any new tumors are setting up house in my brain. If MRI looks good l will go on double temozolomide for 5 days with three weeks off. Then end of February I will try the new Optune device to try to get a couple more years. So we shall see.
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1 Reactionhttps://www.mayoclinic.org/diseases-conditions/glioblastoma/cdc-20350148- @bjh369- I imagine that you've seen this? What kind of treatments are you having? How long have you had it?
I have Glioblastoma grade 4. It is a terminal diagnosis however with treatments they are going to try to get me at least a couple of years but we shall see.
@susu2- I am so so sorry that your ovarian cancer has metastasized. Nine months is a long time to be on chemo. Is 2.5 years enough time to recuperate before more chemo is given? I know that when I had chemo it about killed me after 4 months. The type of lung cancer that I have is like having a chronic cancer. It's very frustrating to feel weak and not be able to do what you want. Have you tried PT or exercises sitting down to try and get your blood moving a bit? Here are a few that I found that you might like to try. https://12stepssite.wordpress.com/
Let me know how you do with them.
When do you start your new chemo?
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