Experiences with Nevro HFX Adaptive AI neurostimulator implant?
Hello,
I have had diagnosed small fiber neuropathy since 2008. I also have issues with herniated discs (getting better…mostly) in my spine.
I’m in the process of getting approval for the neurostimulator implant. It has been recommended to me by two different pain management physicians both of whom I respect.
Has anyone had success with this for treatment of SFN specifically?
Has anyone had things go wrong and how so?
This is a huge consideration for me so I appreciate any experience and advice.
Interested in more discussions like this? Go to the Neuropathy Support Group.
As far as I know, I don't have SFN, but I do have an experience with spinal cord stimulators. I had the Medtronics SCS trial and implant back in 2018. This was a result of lower back and buttocks pain from a ski fall. The device, along with pain meds, helped reduce my pain from about a seven down to about a two. It lasted for about two and a half years and then just stopped working. The thought was that some of the electrodes on the paddle lead burned out. I had everything removed a year and a half ago. A new stimulator trial was attempted but there was too much scar tissue to get the trial lead in place.
As you research, you'll find plenty of pros and cons. I have seen a number of positive reviews and quite a few negative reviews. Be advised...having a great trial is no guarantee that the permanent implant will give relief. I wish you well/
Thank you for sharing your experience. I am very wary of getting this done because I have seen a lot of negative comments about them. It’s hard to know if it’s only the people with negative experiences are the ones to comment rather than those for whom it was worked well so I appreciate you sharing the good and bad.
I had my Nevro HFX iQ spinal cord stimulator implanted December 31 st 2025. I'm doing very well. No problems whatsoever. I have an iPhone so I can do my daily assessments through their app which the support downloaded into my phone during recovery.
I charge my plant twice a week. Takes between 15 and 30 minutes. My follow up care is awesome as well as knowing I have 24/7 phone support with a trained tech.
I will admit that the surgery for me was painful for the first month post op. But I have no regrets. Get yourself an eggcrate foam back cushion they use them as cushioning for wheelchair patients. I just bought a black pillow case for it and pinned the excess closed. Grabbers to pick up things either on your person (pants) or other items. NO bending for 8 weeks post op. You want your leads to have time to set in and not move while you are healing.
Best wishes and don't be afraid to ask the support team and doctor's staff questions.
Thank you for your help! It’s definitely good to hear a success story.
If I can ask, did you have yours done to help with neuropathy in your feet/hands or for help with back pain? I actually have both so I’m just wondering which types of pain it is most helpful for.
Back pain started my journey. After a full spinal x-ray, my primary care NP ordered an MRI. The MRI confirmed Degerative disc disease, spondylosis and other issues, but the major area was the lumbar stenosis, L1 through 5 and S1.
Muscle weakness and numbness with paresthesia (burning, pins and needle pain front of thigh) and a leg skin biopsy confirmed small fiber neuropathy caused by severe lumbar stenosis. But you know, at 70 I'm doing okay. I listen to my body and rest in my recliner when I've done too much. I love my memory foam adjustable bed too!
My husband switched out his Medtronic stimulator for the Nervo and is doing great with it. It has given him his life back. The Medtronic was awful and didn’t work properly. Perhaps because the remote they had given him was over 5 yrs old!
Could have been the issue, the tech support should have assessed that and offered you to buy a replacement. Or at least loan you one to see if that was the issue.
Nevro has recently merged with a larger company and are doing awesome work with implant technology for all neurological issues. Best wishes and actively participate with them regarding your program changes as your pain does.
I received the Nevro implant over a year ago for lower back pain and neuropathy. No relief,, but I know people that have had good results.
I got mine about 3 weeks ago. I have no pain and feel so much better ….. but I have been itching since . I received prednisone the step down 5 4 3 and so on. I’m running low on the meds and it like I have not took no meds. If I could get this itching under control I would be a very happy person. Does anyone. Else have this issue ? ! I’m going crazy. No sleep and constantly itching !!!
Do you think it’s the prednisone dose pack that’s making you itchy?
It sounds like something you should talk to your doctor about