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Experiences with Nevro HFX Adaptive AI neurostimulator implant?
Hello,
I have had diagnosed small fiber neuropathy since 2008. I also have issues with herniated discs (getting better…mostly) in my spine.
I’m in the process of getting approval for the neurostimulator implant. It has been recommended to me by two different pain management physicians both of whom I respect.
Has anyone had success with this for treatment of SFN specifically?
Has anyone had things go wrong and how so?
This is a huge consideration for me so I appreciate any experience and advice.
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As far as I know, I don't have SFN, but I do have an experience with spinal cord stimulators. I had the Medtronics SCS trial and implant back in 2018. This was a result of lower back and buttocks pain from a ski fall. The device, along with pain meds, helped reduce my pain from about a seven down to about a two. It lasted for about two and a half years and then just stopped working. The thought was that some of the electrodes on the paddle lead burned out. I had everything removed a year and a half ago. A new stimulator trial was attempted but there was too much scar tissue to get the trial lead in place.
As you research, you'll find plenty of pros and cons. I have seen a number of positive reviews and quite a few negative reviews. Be advised...having a great trial is no guarantee that the permanent implant will give relief. I wish you well/
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1 ReactionThank you for sharing your experience. I am very wary of getting this done because I have seen a lot of negative comments about them. It’s hard to know if it’s only the people with negative experiences are the ones to comment rather than those for whom it was worked well so I appreciate you sharing the good and bad.
I had my Nevro HFX iQ spinal cord stimulator implanted December 31 st 2025. I'm doing very well. No problems whatsoever. I have an iPhone so I can do my daily assessments through their app which the support downloaded into my phone during recovery.
I charge my plant twice a week. Takes between 15 and 30 minutes. My follow up care is awesome as well as knowing I have 24/7 phone support with a trained tech.
I will admit that the surgery for me was painful for the first month post op. But I have no regrets. Get yourself an eggcrate foam back cushion they use them as cushioning for wheelchair patients. I just bought a black pillow case for it and pinned the excess closed. Grabbers to pick up things either on your person (pants) or other items. NO bending for 8 weeks post op. You want your leads to have time to set in and not move while you are healing.
Best wishes and don't be afraid to ask the support team and doctor's staff questions.
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1 ReactionThank you for your help! It’s definitely good to hear a success story.
If I can ask, did you have yours done to help with neuropathy in your feet/hands or for help with back pain? I actually have both so I’m just wondering which types of pain it is most helpful for.
Back pain started my journey. After a full spinal x-ray, my primary care NP ordered an MRI. The MRI confirmed Degerative disc disease, spondylosis and other issues, but the major area was the lumbar stenosis, L1 through 5 and S1.
Muscle weakness and numbness with paresthesia (burning, pins and needle pain front of thigh) and a leg skin biopsy confirmed small fiber neuropathy caused by severe lumbar stenosis. But you know, at 70 I'm doing okay. I listen to my body and rest in my recliner when I've done too much. I love my memory foam adjustable bed too!