New to exocrine pancreatic insufficiency (EPI): What helps?
I was dignosed with e p i. Exocrine pancreatic insuffency in 2015 after having a severe reaction to premarin estergen cream then 2 weeks later i had an even more sever reaction to an infusion of reclast it is a biphosphonates l am severly allergic to phosphates, dr did not check for that. i had diarrhea lost 20 lbs destroyed 90 % of my pancreas dr gave me creon 3600 2 with each meal low fat diet that is all the information i got from him did research on web for diet and supplments .need a dr in austin tx that knows more about e p i would apprecate any info on this thank you jewill
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Correction - I DID NOT take the Ensure and Creon together tho it may read like that. The lengths of time of weight loss and taking the additives is also estimated.
Sorry for any confusion.
I was diagnosed with EPI in November 2023. I take ZENPEP because Medicare won’t cover anything else. Over the past month, things are getting worse again and I spend most of my time in bed with an upset stomach. I generally eat one meal a day because it’s about all I can tolerate. I am on Rebylsus to control my diabetes as well as my weight. I have lost more than 70 lbs in the past year because of EPI. My doctor did a colonoscopy to rule out Crohns or any other gastrointestinal diseases (my sister has had Crohns for more than 50 years, so we needed to make sure that was not the problem). Anyway, my doctor is not helpful at all. I have seen him on telemed twice, and then again for the colonoscopy. He hasn’t given me much feedback and doesn’t return phone calls in a timely manner. I am in Farmington Hills, Mi. Does anyone know of a good responsive doctor in this area? Your help would be well appreciated