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peggyella
@peggyella

Posts: 30
Joined: Dec 31, 2018

EXCESSIVE SALIVA for 2 yrs ~Not from GERD~ From gastroparesis? Help!

Posted by @peggyella, 3 days ago

I’ve had severe GERD for 30 years and been on just about every kind of acid reduction medication. One of the side effects of long-term use is osteoporosis which I developed over 10 years ago. I’ve broken several bones since then. It all started with a chronic cough when I was in my early 30s, and after being treated with antibiotics many times with no success, I was sent to an ENT specialist who diagnosed me with GERD. I thought that was ridiculous but when I started on medication, the cough went away. Unfortunately, the break-through periods of burning acid has caused many other stomach condition.

Two years ago I started coughing again but this time I could not lie down at all and had to sleep sitting up for 10 months while they tested me trying to figure out what it was and what to do. Eventually, in January 2018, I had a fundoplication (1/3 of my stomach was wrapped around my esophagus). It did stop the cough but not another primary symptom that I still have after two years:

HAS ANYONE HEARD OF SOMEONE HAVING EXCESSIVE SALIVA IN THEIR MOUTH CONSTSNTLY? AS THE DAY GOES ON AND IT WORSENS, I FEEL LIKE I’M DROWNING! I take 20 mg. omeperazole twice daily with no relief.

My gastroenterologist decided it was not the result of reflux but probably gastroparesis which I’ve also had for many years. He said the only solution was a PACEMAKER implanted in my stomach to make me digest food. I have put that off for almost a year because it seems radical, and from my research it is not always effective and varies from person to person.

I was also seen by an ENT again who thought it might be from my salivary glands secreating too much saliva. He did a scope on me and they appear normal. He said they do not go inside them unless they suspect cancer. So I went on a medication to reduce the amount of saliva one secretes. It did not help so they increased the dose and that did not help either.

I am back at square one AFTER TWO YEARS AND AM GETTING DESPERATE! I don’t want to go to the wrong specialist. Have any of you ever experienced this or heard of it? And does anyone have any ideas what this could be from?

REPLY

There are lots of things that can cause excessive salvation. I had a problem with it and other symptoms that added up to a diagnosis of Parkinson's. I also have excessive saliva when my nutcracker esophagus flares up and food won't go through my esophagus to my stomach. Food and liquids back up and I sometimes drool. NE is when your esophagus has the correct motions to move food down but the pressure is too high. Esophageal spasm is when the movement is uncoordinated but the pressure is very high.

In any case I would also talk to your general md. GI's think about digestive stuff. Go's look at the whole picture.

Just my opinion

Liked by peggyella

@konniehoover

There are lots of things that can cause excessive salvation. I had a problem with it and other symptoms that added up to a diagnosis of Parkinson's. I also have excessive saliva when my nutcracker esophagus flares up and food won't go through my esophagus to my stomach. Food and liquids back up and I sometimes drool. NE is when your esophagus has the correct motions to move food down but the pressure is too high. Esophageal spasm is when the movement is uncoordinated but the pressure is very high.

In any case I would also talk to your general md. GI's think about digestive stuff. Go's look at the whole picture.

Just my opinion

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Thank you so much. I will ask my doctor about these possibilities. I don’t know what to do, so any information I can get is helpful. Peg

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