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Everything quit working

Posted by oldfords @oldfords, Mar 15 10:17am

I have been taking nebequa, lupron and chemo for two years and all has quit working and PSA is back to 6.08 Now I guess I will start Xtandi, Orgovyx, and Plavicto. Has anyone else taken this combination? MyPet Scan showed tumers are growing, But I have no pain. I also had two deep bone biopsy, but my bones are too hard to get enough sample to run many of the tests they wanted. What a mess, I guess I will just keep going and see what happens

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jeff Marchi | @jeffmarc | Mar 20 10:46am
In reply to @beaquilter "@surftohealth88 Hopefully I replied correctly. Yes my husband was prescribed the lowest dosage of gabapentin for..." + (show)
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@surftohealth88
Hopefully I replied correctly.
Yes my husband was prescribed the lowest dosage of gabapentin for sleeping, one pill at night didn't work, the next month they said to take two pills, it still didn't work for sleep but it changed his mood for the better and hot flashes disappeared!
After a month on it now PSA didn't go down it technically went up from the previous month (from 0.19 to 0.2)
He immediately thought it was gabapentin and has stopped it. We'll see in two weeks if PSA is just steady or what and then he might go back on it.
Still need something to sleep!

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@beaquilter
I’ve been taking gabapentin for many years. My PSA has stayed undetectable for 28 months.

A rise from .19 to .2 could just be a minor issue. If you were to consider doubling, rate, it would take a 18 months to double. Your doctor definitely wouldn’t care about it, being such a small rise. What is more important is the next number.

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jeff Marchi | @jeffmarc | Mar 20 11:21am
In reply to @lag "@jeffmarc After my husband had surgery at Mayo Rochester for oropharynx cancer, his Mayo surgery team..." + (show)
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@jeffmarc After my husband had surgery at Mayo Rochester for oropharynx cancer, his Mayo surgery team prescribed gabapentin for nerve pain, caused by them moving nerves around in his neck during the surgery on his tonsil and lymph nodes.

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@lag
Did it work? Was other medication also needed for the pain.

Good to hear doctors think it will Work.

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lag | @lag | Mar 20 11:55am
In reply to @jeffmarc "@lag Did it work? Was other medication also needed for the pain. Good to hear doctors..." + (show)
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@lag
Did it work? Was other medication also needed for the pain.

Good to hear doctors think it will Work.

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@jeffmarc While he was in the hospital right after surgery, he had a narcotic pain reliever. After he was discharged and we went from the hotel to home, they prescribed large and alternating doses of Tylenol and Advil and also the gabapentin. The nerve pain did diminish over time but it is hard to tease out how much of the relief was from the gabapentin.

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beaquilter | @beaquilter | Mar 20 12:24pm
In reply to @jeffmarc "@beaquilter I’ve been taking gabapentin for many years. My PSA has stayed undetectable for 28 months...." + (show)
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@beaquilter
I’ve been taking gabapentin for many years. My PSA has stayed undetectable for 28 months.

A rise from .19 to .2 could just be a minor issue. If you were to consider doubling, rate, it would take a 18 months to double. Your doctor definitely wouldn’t care about it, being such a small rise. What is more important is the next number.

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@jeffmarc yeah we're nervous about the next reading if PSA is steady or will start rising

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