Evenity worked for me: Why I chose medication for osteoporosis
I just completed a year of Evenity and had my f/u Dexa. My first Dexa was in 2015 when I was in my 50s. My OB/GYN suggested it as I had broken a bone in my 40s. That Dexa showed osteopenia in my lumbar spine with a score of -2.4. At that point, I was adamant that I would not take any medication. I increased my calcium and kept up my running and weightlifting. I also decided that since I wasn’t going to take any meds, I wouldn’t bother with f/u Dexas. I started seeing a new NP who convinced me that I should see what my scores were in 2023. I was shocked to see that my lumbar spine was now-3.4. That was a real wake up call! Severe osteoporosis.
So I was still set on not taking medication, especially after reading a lot of the discussions on this site. I spent most of 2023 running more, lifting heavier, yoga, Algae Cal and Strontium (yes I know Strontium shows false strengthening). I hiked in NC that summer with a heavy backpack. But in the meantime, I read all of the books recommended, researched the medications, and made an apt with the osteoporosis center at our large teaching hospital. My plan was to see if I could improve my results naturally. I would pay for another Dexa out of pocket to see if anything changed.
In Oct I went to see the provider that runs a large osteoporosis clinic. I told her my plan. She was very honest with me. She said I would be wasting my time and money. She felt that my osteoporosis was genetic. I was already doing everything I could including bio identical hormones and my score was worse. She said to stop the Strontium which I did. She said that osteoporosis was a chronic condition. You can improve it with medication but once you stop, you will begin losing bone again and go back down. I would have to be on something for the rest of my life. I elected to start with Evenity. My labs were good and remained good. I had no side effects from the medication. I chose Evenity due to my Medicare coverage. I have Medicare A/B, plus a D plan and a gap plan. Tymlos and Forteo had large monthly deductibles. Evenity was covered at 100% because I went to an infusion center and it was covered under Part B and my gap plan. Also Evenity targets the lumbar spine and that was my biggest problem. Even though I had a lot of hesitation, I decided to trust my provider who follows a large patient population of osteoporosis. I was concerned about side effects but I pulled up the actual clinical trials and read them. The # of severe side effects were actually very low and were almost equal in the placebo and medication group. My provider confirmed that and said that my chances of a severe side effect would be very low but my risk of a fx was very high and that would change my life. She said that the serious side effects were not showing up in the general population of people taking the medication.
My latest Dexa showed improvement in my lumbar spine to -1.8 (from -3.4). I will switch to Prolia next month. I would encourage anyone hesitant to start medication to read as much as you can and discuss with your provider. I also chatted with the infusion center nurses and other patients that I met at the center about Evenity and Prolia to see what their experiences were. Everyone said the same thing, that most patients do very well. Occasionally, someone needs to change their medication but that was rare. Also, I’m pretty healthy. There are some patients with multiple comorbidities and they might have more issues.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Will do.
I'm in the same progression as you are. Do you know what will do after the last.....will it be a bone builder again? I am set for an appointment with another endocrinologist at Duke that my neighbor told me about. I am hoping he can give me guidance about next steps. I am hoping that the bhrt that I started 4 months ago will positively effect my bones.
How did you know to move onto the next med? Your doctor?
My doctor recommended Prolia when I finish Evenity. I think it will depend on my Dexa scores which I have the end of February.
Very similar to me. Weight lifting since my teenage years trying to curtail osteoporosis since it runs in my family. It did not protect me, nor did it protect my very active sister. So.etimes you just need pharmaceuticals. I am glad they are there for us.
My plan is what I stated in my comment after 2nd injection of Prolia I will have reclast and I don’t know after that point . I am also on BHRT by using the pellets. I have been on this for 9 mos so far. My endocrinologist is not on board but that was my choice.
From what I have gathered from this site, taking Reclast before Forteo or Tymlos can reduce results of the bone builder? All I can tell you is that Forteo saved my life with little side effects. With the progression of spinal fractures while I was hospitalized from the first set of fractures, led me to fill out forms for MAID (medical assistance in dying). By 3 months of Forteo, the fractures stopped and the pain began to subside. I wish there was more information on using Forteo again, but I am willing to do it another 6 months and then decide about Evenity. I don't particularly like the follow up options for Evenity but need to read more about that. I had used Evista for 5 years following 24 months of the Forteo with very little decline.
I don't like the follow up drug option ... Prolia...that I was given either. I would like to have a more creative approach and that is why I am seeking a second opinion. We'll see.
@monkhhi -- I see your doc, who seems very well informed, is recommending Prolia now, after Evenity course. I understand that one has to be on Prolia for life because of rebound if you stop taking it. So your doc is not recommending a bisphosphonates? Is that because she/he realizes you will have to be on meds for life because of the genetic component to your disease?? Thanks for any info you can share. I'm sort of in the same boat.
After my Evenity course I am on Prolia for 2 injections to increase my bone density further and then will go onto reclast so no Prolia is not for life.