1. < Osteoporosis & Bone Health

Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

windyshores | @windyshores | May 14, 2023
In reply to @normahorn "People keep talking about "locking in gains". How does Reclast do that? Does that mean coating..." + (show)
@normahorn

People keep talking about "locking in gains". How does Reclast do that? Does that mean coating the bones so they do not lose ground?

Jump to this post

@normahorn I have seen it described that way- "coating the bones." Recently I read that Reclast does a better job of that then orals. Reclast affects bone turnover, as you probably know, meaning it suppresses the osteoclasts that cause resorption. I am not sure how that "coats the bones"! Thanks for asking- a question for our docs!

REPLY
njhornung | @normahorn | May 14, 2023

When Evenity was first proposed for me, I was asking numerous medical professionals for their opinion. One pharmacist commented that the older osteoporosis drugs coated bones leaving the interior still brittle. She may have been completely mistaken but I can not shake that thought.

REPLY
1 reply
summerof42 | @summerof42 | May 14, 2023
In reply to @artscaping "Good afternoon @elisabethv, welcome to Connect. We are a group of patients and caregivers who share..." + (show)
@artscaping

Good afternoon @elisabethv, welcome to Connect. We are a group of patients and caregivers who share their experiences and provide members with links to current information about health issues. I think Elizabeth from Long Island, that you are one of our first members on Evenity as it is a new treatment for osteoporosis.

May I ask you to tell us how and why you chose Evenity. It is a new product and the first one with the ability to help produce new bone and then maintain it.

How often do you have an injection? Were you using another kind of bone builder before Evenity? Would it be possible for you to share your DEXA scan results? Did that information help you determine that it was time to pay attention to your bone health? How long will you be receiving injections?

There are some reported side effects that may interfere with the cardiovascular system? Is that why you spoke with your cardiologist? What did he/she say about your choice of Evenity?

I am excited to know more about you. You are so much younger than I am at 79. I think I got a late start.

May you be safe and protected from inner and outer harm.
Chris

Jump to this post

Hello Chris,

Can you please let me know how I can go about messaging you directly on this support group? I tried clicking on your name with no luck in finding a route to send you a message. Thank you in advance for your help

REPLY
gurine | @gurine | May 15, 2023

I will start Evinity in a couple weeks. My doctor said after 1 year of Evinity, I will need 1 Reclast shot to keep the gains I make.

REPLY
1 reply
windyshores | @windyshores | May 15, 2023
In reply to @normahorn "When Evenity was first proposed for me, I was asking numerous medical professionals for their opinion...." + (show)
@normahorn

When Evenity was first proposed for me, I was asking numerous medical professionals for their opinion. One pharmacist commented that the older osteoporosis drugs coated bones leaving the interior still brittle. She may have been completely mistaken but I can not shake that thought.

Jump to this post

@normahorn your pharmacist was referring to bisphosphonates and Prolia, not Forteo or Tymlos, just to clarify!

REPLY
njhornung | @normahorn | May 15, 2023

I really knew that But bisphosphates come after Evenity. Not interested in taking something that only puts a surface coating on bones.

REPLY
ritanada | @ritanada | May 16, 2023
In reply to @gurine "I will start Evinity in a couple weeks. My doctor said after 1 year of Evinity,..." + (show)
@gurine

I will start Evinity in a couple weeks. My doctor said after 1 year of Evinity, I will need 1 Reclast shot to keep the gains I make.

Jump to this post

After one year one IV injection
Can you explain more
And then?

REPLY
1 reply
susanfalcon52 | @susanfalcon52 | May 16, 2023

I start Evenity on May 23. Feeling optimistic.

REPLY
gurine | @gurine | May 16, 2023
In reply to @ritanada "After one year one IV injection Can you explain more And then?" + (show)
@ritanada

After one year one IV injection
Can you explain more
And then?

Jump to this post

I don't know any more. The dr. simply said 1 full year of Evinity and then (I assume a bit of space between) and then 1 dose of Reclast, just one, to keep Evinity gains in place.

REPLY
1 reply
njhornung | @normahorn | May 16, 2023
In reply to @gurine "I don't know any more. The dr. simply said 1 full year of Evinity and then..." + (show)
@gurine

I don't know any more. The dr. simply said 1 full year of Evinity and then (I assume a bit of space between) and then 1 dose of Reclast, just one, to keep Evinity gains in place.

Jump to this post

I was told possibly 3 years of Reclast followed by a 2 year holiday.

REPLY
View MoreView Less
Please sign in or register to post a reply.