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Evenity after Forteo or Tymlos?
I would love to hear from anyone who followed Forteo or Tymlos with Evenity. My endocrinologist does not seem to know about this possibility, or perhaps he is bound by studied protocols. I would like to share any studies with him, as well as personal experiences on this forum. He is a great doc so not really questioning him, but he also listens to me and what I want.
I am finishing 18 months of Tymlos (partial dose) with gains so good they are hard to believe- almost 20% for spine and almost 9% for hip. Doc wants to do a "test dose" of Reclast at 1 mg (usual dose is 5 mg). That lasts 3 months and after one month I am to tell him what dose I want next, depending on how I tolerate the 1 mg: I can have 3mg, 4 mg, whatever I want to request. I will be monitored over the next years and able to take a break if things look good.
The thing is, my hip is still at -2.9 and my spine at -2.5 so I wonder if a year of Evenity would get me to osteopenia. To be honest, I am pretty happy with my results ( previous scores were -3.7 at spine and -3.3 at hip, with several spinal fractures). Maybe Reclast will be good enough.
Let me know if you are doing Evenity after an anabolic, via PM or on this thread. Thank you!
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I think docs could prescribe Evenity anywhere. There may be a ‘movement’ in your area, lead by prominent physicians, to not prescribe it.
@susanfalcon52 you may be misunderstanding. Of course my docs prescribe Evenity. They are not, however, following Tymlos with Evenity, due to "lack of data." For that reason- lack of data- according to my docs, noone should be prescribing Evenity after Tymlos (or Forteo).
Windyshores,
I understood what you meant. I did not make it clear in my post.
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1 ReactionRegarding following Tymlos with Evenity, there may not be enough research to make doctors comfortable with that, but I think there is very little research altogether on these drugs.
I have taken Forteo, Tymlos, and now Evenity. I consider every one of them to be radical. Evenity only not that long ago had a black box warning. If someone had told me that I would be flinging myself out into this brave new world of medicine , I wouldn’t have believed them. The decision to take all these new age drugs was ten years in the making and involved a team of physicians who I knew and trusted. Their enthusiasm for the drugs is not based on years of study - it’s based on positive results so far.
I have been fortunate to not suffer any side effects. Of course, it’s possible to have side effects that are not obvious.
I read Dr Lana Simpson’s book years ago and consulted with her before I started the Forteo and the Tymlos. She is pretty even handed about the drugs. She’s all about lifestyle efforts to save bones, but has always said that she herself is open to taking the new drugs.
So, it seems that most of us do enter into this drug treatment regime after a lot of research and consultation.
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1 ReactionLani Simpson is on Tymlos.
@susanfalcon52 There is plenty of data for all of these drugs, though of course Evenity is newer in actual practice.
The lack of data concerns the sequencing. There is no data as yet for Evenity after Tymlos.
Anecdotally, Evenity does add bone density after Tymlos but studies apparently need to catch up.
I am puzzled as to why so many docs are prescribing this sequence without data. None of the docs around here will prescribe it.
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1 ReactionI just finished two years on Tymlos with gains. Spine in osteopenia as one hip but not the other. My doctor does not like Fosomax or Prolia and he recommended Evenity. He said let's try to build as much bone as possible.
I am in a similar situation & need to transition off Tymlos in January. I am glad to hear your doctor recommend it. Where are you located? I would love to find a doctor with this perspective.
I am in Puerto Rico. Even though the doctor recommended this, I am not sure if I will do it immediately. I am going to continue strength training.
Here is 2024 research about Evenity after a PTH
https://pubmed.ncbi.nlm.nih.gov/39605880/
Moreover, evenity gains will be blunted by antirepsortives used prior - just as in the PTH drugs. Sequence matters. So aim for best possible result depending on your circumastances. After tymlos, I had to be on Actonel for 6 weeks before transitioning to Evenity. No choice. So I am prayeing the my Evenity will not be too much effected by that. Good health to you.
TYMLOS question -
I just finished a year on Tymlos . I am 65 years old.
My doctor ( a bone “ expert”
Had me do a dexa scan which she said showed no gains ! I don’t have my copy of the report yet.
I thought Tymlos always works ?
Granted it’s only been a year . 🫤. She wants me to do another year in Tymlos .
Ugh . Is this unusual not to see results at the 12 month mark? I’ve been pretty diligent doing the injections . I had to skip 2 weeks ( one last September and one in May ) but other than that I’ve been good doing injections most every night.