1. < Osteoporosis & Bone Health

Evenity Side Effects

Posted by cincy @cincy, Dec 27, 2023

Has anyone had severe back pain and burning sensation on Evenity after just starting ?And how long does it last or is it a sign to try another medication?It starts about 7 days after the injection and pain is severe you can’t do a thing.Thanks.

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susanfalcon52 | @susanfalcon52 | Jan 18 6:26am
In reply to @rjkesal123 "Hi I am starting my first Evenity injection at the end of January and am terrified..." + (show)
@rjkesal123

Hi I am starting my first Evenity injection at the end of January and am terrified of the side effects. Has anyone had a positive experience with Evenity? Is there anything you have taken before the injection that may help. My doctor will give me a xanax to help with the anxiety before. Thank you!

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I’ve had 8 doses of Evenity with no side effects to speak of. The first month, I did feel very tired the day after.
Then, no side effects.
I have already started to look beyond Evenity to my next drug - Reclast.
Take the Xanax - I did the first time and it helped.
I have a DEXA in May. If the Evenity has improved my scores, I will consider this to be a great success.

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swgarrard | @swgarrard | Jan 18 7:14am
In reply to @rjkesal123 "Hi I am starting my first Evenity injection at the end of January and am terrified..." + (show)
@rjkesal123

Hi I am starting my first Evenity injection at the end of January and am terrified of the side effects. Has anyone had a positive experience with Evenity? Is there anything you have taken before the injection that may help. My doctor will give me a xanax to help with the anxiety before. Thank you!

Jump to this post

I completed 12 shots of evenity in December. I had excellent results, especially in my spine where my bone density increased by 15%. I always drink a lot of water before I got the shot and I kept a bottle of water in my car for the drive home. I usually got a slight headache afterwards, which was alleviated with a couple of Tylenol. I might have had the side effect of making my arthritic hands a bit more painful but I am not certain I can attribute that to the evenity

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1 reply
Merry, Alumni Mentor | @merpreb | Jan 18 7:44am
In reply to @bebea5 "Hello After reviewing the various comments with this group rereading the Evenity drug "insert" and meeting..." + (show)
@bebea5

Hello
After reviewing the various comments with this group rereading the Evenity drug "insert" and meeting with my endocrinologist, I decided to continue with this medication. Yesterday was my 8th injection.
Realized from my 4th to 7th injections achiness and fatigue was the worst. Particularly right hip and knees. I also sometimes have right side sciatic pain and osteoarthritis. I have mimial achiness today after my7th injection. Dr. Says it may continue this way until the 12 month mark. Data shows this is one of the best drugs to build bone at femoral hip. I scored -3.9 left hip.
Determined to completed the course. In April, another scan ( not DEXA) will determine the next medication. Bone building vs body sealing/ preservation drug.
Best wishes to everyone here. I learned a great deal fromthis group. I'm truly grateful for your honesty.

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@bebea5- Thank you so much for your detailed response. What do you mean by body sealing/preservation drug?

It takes a lot of perseverance to stay with a drug that has unpleasant side effects. Good for you!

Merry

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1 reply
Merry, Alumni Mentor | @merpreb | Jan 18 7:47am
In reply to @naturegirl5 "@merpreb Merry, I have received injections in the back of my arms (1 injection in each..." + (show)
@naturegirl5

@merpreb Merry, I have received injections in the back of my arms (1 injection in each arm) and in the abdomen. The nurse allows the medication to “warm” a little before injection. The needle is very thin and tiny and reminds me of the allergy shots I received subcutaneously many years ago. For me, there was no pain, not even a burning sensation, in my arms or abdomen. I switched to the abdomen more out of curiosity. I did not experience any injection pain afterwards. But that’s me.

I unknowingly fractured my sacrum last year. In retrospect I realize that the pain I experienced in one leg and then the other for over a month was related to that sacral fracture. I’ll take the joint pain I’m experiencing over another fracture. I already have joint pain from osteoarthritis and so as long as I can keep doing the things I do and like to do, I’ll stretch, do yoga, and go to the gym.

What other medications are being considered?

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So far, my understanding about this drug, aside from its side effects, is a certain course of shots for this drug. Then another to replace it?

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1 reply
Mentor
Helen, Volunteer Mentor | @naturegirl5 | Jan 18 8:08am
In reply to @merpreb "So far, my understanding about this drug, aside from its side effects, is a certain course..." + (show)
@merpreb

So far, my understanding about this drug, aside from its side effects, is a certain course of shots for this drug. Then another to replace it?

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@merpreb Yes, that's my endocrinologist told me. I'll get 12 months of injections of Evenity to "build" bone density and then a bone density scan to examine what we hope are gains in bone density. At that point my doctor will order another medication such as Reclast to "lock in" the gains. I get Evenity injections at an infusion center that is 2 hour drive from where I live. So, once a month we make a day of it and stop for a late lunch on the way back home.

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bebea5 | @bebea5 | Jan 18 8:27am
In reply to @merpreb "@bebea5- Thank you so much for your detailed response. What do you mean by body sealing/preservation..." + (show)
@merpreb

@bebea5- Thank you so much for your detailed response. What do you mean by body sealing/preservation drug?

It takes a lot of perseverance to stay with a drug that has unpleasant side effects. Good for you!

Merry

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Fosamax or related medications

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bebea5 | @bebea5 | Jan 18 8:29am
In reply to @swgarrard "I completed 12 shots of evenity in December. I had excellent results, especially in my spine..." + (show)
@swgarrard

I completed 12 shots of evenity in December. I had excellent results, especially in my spine where my bone density increased by 15%. I always drink a lot of water before I got the shot and I kept a bottle of water in my car for the drive home. I usually got a slight headache afterwards, which was alleviated with a couple of Tylenol. I might have had the side effect of making my arthritic hands a bit more painful but I am not certain I can attribute that to the evenity

Jump to this post

Yes,exactly, my right hip is arthritic and have right sciatica may be a more painful, not sure if attributed to Evenity??

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windyshores | @windyshores | Jan 18 9:04am

I had abdominal tightness, pretty intense, immediately after the injections which lasted at that level of intensity for 4 days and continues now at three weeks. Shots were in abdomen. This band of tightness is higher up but I wish I knew if this might not occur if shots were in my thighs.

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nwyatt | @nwyatt | Jan 18 4:54pm
In reply to @bebea5 "I had 7 of 12 Evenity injections. Noticed increase back pain at injection# 4, Lasted for..." + (show)
@bebea5

I had 7 of 12 Evenity injections. Noticed increase back pain at injection# 4, Lasted for up to 5 days with 7 of 10 pain scale after day 5 4 of 10 pain scale. But daily Stiffness / achy back, knees , especially hips. Right side Osteo arthritis and sciatica! Very tender to sleep upon all Not before Evenity . But maybe due to Osteo arthritis. It's never one issue.
At injection #6 called the Endocrinologist said if I'm really uncomfortable consider stopping medication. I was more aware at injection # 7 last month, joint pain, hips and spine discomfort. I'm a very active 66 year old, exercise at the gym, hike and hopefully cross country ski this winter, .. But feel so stiff!!! Just wrote the doctor today. I think it's time to stop taking Evenity. What will my new normal be??

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I also have back pain, mostly on my left side between the shoulder blades. Burning, aching, stiff. What do you do to help with the pain? I walk everyday and stretch and use resistance bands every other day. Helps temporarily. I hate to rely on Tylenol and/or Advil but some days it’s the only way to get through the day. Have you found success with anything?

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bebea5 | @bebea5 | Jan 18 5:26pm

Pretty much the same things you're doing. Tylenol, heating pad at night, exercise

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