1. < Osteoporosis & Bone Health

Evenity Side Effects

Posted by cincy @cincy, Dec 27, 2023

Has anyone had severe back pain and burning sensation on Evenity after just starting ?And how long does it last or is it a sign to try another medication?It starts about 7 days after the injection and pain is severe you can’t do a thing.Thanks.

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sedrake51 | @sedrake51 | 12 hours ago
In reply to @patwerthman "Oh my. So what will you do? All of these bad experiences are scaring me" + (show)
@patwerthman

Oh my. So what will you do? All of these bad experiences are scaring me

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No more drugs. Long distance walking, tolerable weight bearing exercises and nutrition through food focusing on protein, calcium, etc. and supplements when appropriate. My overall health is wonderful except for my poor bones. My body does not respond well to anything foreign being introduced. We are all unique and must make decisions which might differ from others.

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mollylyn | @mollylyn | 12 hours ago
In reply to @sedrake51 "I have chosen not to take any Rx medications. I have already survived multiple fractures due..." + (show)
@sedrake51

I have chosen not to take any Rx medications. I have already survived multiple fractures due to trauma. Incredibly painful rehabbing those fractures; however, I prefer to live out my twilight years without hurting my total body with these drugs. No one really knows the ramifications of taking most of these drugs long term. If my body has such negative responses, it is telling me “no”. I am sticking with my supplements and exercise. Most of these drugs treat the spine vs. the hip where I could use the most improvement. My spine is osteopenia and my hip is osteoporosis. Hope that you find the best solution for your body. We are all so unique. 😊

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I am sorry to hear of your pain. Agree, nobody knows the true long term effects of these drugs. I told my doctor my body is telling me something with these side effects, she said all drugs have side effects and we can argue forever over it. I have taken calcium, D3, K2 for decades as well as exercise and still have severe osteoporosis. Mine is more in my femur and lumbar areas; all osteoporosis. Every one of these osteo meds have side effects, some are really bad: jaw decay, stroke, heart attack, dizziness, bone/jt/muscle pain, and can fracture once off of them. These meds are lifelong, once you start one, have to be on it or another forever. I don't know if that is good for me either. I wish you well too.

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1 reply
sedrake51 | @sedrake51 | 11 hours ago
In reply to @mollylyn "I am sorry to hear of your pain. Agree, nobody knows the true long term effects..." + (show)
@mollylyn

I am sorry to hear of your pain. Agree, nobody knows the true long term effects of these drugs. I told my doctor my body is telling me something with these side effects, she said all drugs have side effects and we can argue forever over it. I have taken calcium, D3, K2 for decades as well as exercise and still have severe osteoporosis. Mine is more in my femur and lumbar areas; all osteoporosis. Every one of these osteo meds have side effects, some are really bad: jaw decay, stroke, heart attack, dizziness, bone/jt/muscle pain, and can fracture once off of them. These meds are lifelong, once you start one, have to be on it or another forever. I don't know if that is good for me either. I wish you well too.

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Thanks for your comments. I appreciate them as I continue to learn more about this condition. It’s been quite a journey so far. I know that you will make the best decision for yourself. Best wishes for your improved bone health!

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dmshope | @dmshope | 3 hours ago
In reply to @mollylyn "I had my first set in April and not sure if I'm going to continue. Having..." + (show)
@mollylyn

I had my first set in April and not sure if I'm going to continue. Having headaches, more pain in joints , back , legs, dizziness,, not feeling well at all. Dr said she'll try Reclast but that's just as bad and an infusion. Have you tried something else? These meds are bad.

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Dear Group. I had to be on meds due to severity of my bone degenration. I have never taken drugs but in this case it was necesaary and a God send.. I was on tymlos with various serious side effects to manage but I did learn to manage them. I was actonel short term and that had serious side effect but it did what it needed to do, so I am thankful. I am now on Evenity taking shots in the abdomin. Minor injection site issues and minor muscle/joint pain 7 days after dose. and I pray that Evenity helps to heal my feet bones. We are all different. One med is easy for one person/ hard for another. Please do not say these meds are bad.. Rather - they may not have worked for you for various reasons. or you may not have support to learn to manage the side effects. Many doc so not have the education to help up with side effects and that needs to be improved We need support in this forum to help each other. I send positive energy for your healing journey

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2 replies
gravity3 | @gravity3 | 2 hours ago
In reply to @dmshope "Dear Group. I had to be on meds due to severity of my bone degenration. I..." + (show)
@dmshope

Dear Group. I had to be on meds due to severity of my bone degenration. I have never taken drugs but in this case it was necesaary and a God send.. I was on tymlos with various serious side effects to manage but I did learn to manage them. I was actonel short term and that had serious side effect but it did what it needed to do, so I am thankful. I am now on Evenity taking shots in the abdomin. Minor injection site issues and minor muscle/joint pain 7 days after dose. and I pray that Evenity helps to heal my feet bones. We are all different. One med is easy for one person/ hard for another. Please do not say these meds are bad.. Rather - they may not have worked for you for various reasons. or you may not have support to learn to manage the side effects. Many doc so not have the education to help up with side effects and that needs to be improved We need support in this forum to help each other. I send positive energy for your healing journey

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Very well put! Good luck with your feet!

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mollylyn | @mollylyn | 1 hour ago
In reply to @dmshope "Dear Group. I had to be on meds due to severity of my bone degenration. I..." + (show)
@dmshope

Dear Group. I had to be on meds due to severity of my bone degenration. I have never taken drugs but in this case it was necesaary and a God send.. I was on tymlos with various serious side effects to manage but I did learn to manage them. I was actonel short term and that had serious side effect but it did what it needed to do, so I am thankful. I am now on Evenity taking shots in the abdomin. Minor injection site issues and minor muscle/joint pain 7 days after dose. and I pray that Evenity helps to heal my feet bones. We are all different. One med is easy for one person/ hard for another. Please do not say these meds are bad.. Rather - they may not have worked for you for various reasons. or you may not have support to learn to manage the side effects. Many doc so not have the education to help up with side effects and that needs to be improved We need support in this forum to help each other. I send positive energy for your healing journey

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Thank you for your reply. I am trying to stay positive, but I don't have support, not even with my doctor. I am going to try the second set of Eventity and fingers crossed this is better over time. But I understand that once on a osteo med, have to be on it forever. I fear the jaw decay, that is something that is quite devastating and dental procedures are something 60 plus will need as we age. You mentioned you were on Actonel short term, but had side effects. May I ask what side effects? Thank you and best to you as well.

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