What should I know before starting Evenity?
Sept 4th, 2024
EVENITY
Like many of you, I have started from shock, to fearfulness to being
apprehensive what medication to take for severe osteo.
My numbers are L -5.2 hips -3.6 and -4.0
I hoped to be able to improve the numbers with diet and exercise.
Eventually I realized that it might be possible with osteopenia
but probably not with severe osteoporosis. Dr Beck
Onero program is not available in Vancouver, yet.
I am trying to learn hip hinge and squats
eventually I will find a a physical therapist/kinesiologist
with osteoporosis experience.
I do the stairs as often as I can, increasing how many times:
until hopefully add ankle weights.
My threadmill speed is 2.2mph..the goal is to increase every few weeks:
method: increase, count 24 seconds - go back to starting baseline – several times:
the goal is 2.5mph which is maintenance: and the larger goal is 3.1mph
which is osteogenic.
Diet: aside from the calcium and and Vit D: am looking into natural
sources of Vit K (Natto is not something I could consume regularly).
and have 5-6 prunes daily.
So…have finally made the decision to go with Evenity, if approved.
Have not used anything in the past: anabolic or anti resorptive.
Thank you for ladies from Canada for mentioning CTX. It is available
in Vancouver (sorry I didn’t mark down names) P1NP and TBS is not available.
Neither is REMS. I got a CTX – which we pay out of pocket here, so is
Vit D out of pocket unless it’s requested by a specialist. And TBS is
not available either. My CTX was in the 500.
Would be glad to hear comments, or shared stories.
Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Hello :
I went back to read your history:
Fosomax 5 years; then Evenity,
now Alendronate is recommended, but you mention Reclast
Do I understand - you are not happy with your T score?
I don’t know what you started off with.
Was it a good improvement?
here’s some thoughts:
You took Evenity after 5 years of bisphosphonate (Fosomax)
what I’ve read is that
Evenity works best when it is used firstly - before any
bisphosphonate, what they call ‘naïve’
So the results with Evenity might not have been
what you hoped.
Sequencing is newish…trial and error?
What tests are you trying to get so that
you can review them?
Can you not get another Doctor and he in turn
will know how to access your records.
so:
Are you unhappy with your scores and want to
explore another anabolic.
or
Are you wanting to ‘lock in’ your gain with
Reclast and not Alendronate
It can be and is, difficult sometimes to find the right doctor
who will hear you, and also explain reasons for
their suggestions. Remember.. it is your health you’re
advocating for.
sorry above reply to @patwerthman
will send again
I’m confused on this?
@patwerthman
I think you read my original post.
Bev
reply to: @gravity3
I think, an anabolic is treatment
for high risk fracture T score.
Not sure? if anabolic
treatment is recommended for osteopenia -
depending on the numbers:
usually treated with anti resorptives.
It's an interesting process doctor+patient+history.