What can I expect at an Evaluation Appointment at Mayo Clinic

Posted by hannie @hannie, Mar 7, 2021

I have a rare autoimmune syndrome, and I’m scheduled for an evaluation on a Wednesday morning.
The neurologist I’m scheduled with asked me to come, but that’s all information I can get.
After a couple calls, all anyone can tell me is they don’t know what will happen after my evaluation, and I could be at the clinic anywhere from 1 appointment to 7 days.

Is this vagueness typical? Do the doctors truly not make any plans for patients until they see us?

We’re hanging pretty much everything on this place because no one can figure me out.

Is this trust well-placed?

Interested in more discussions like this? Go to the Visiting Mayo Clinic Support Group.

I have decided to make a trip to Mayo in Jacksonville for consult with doctor there concerning my Adenocarcinoma of uterine. Anyone who has been treated there, please give me any feedback on your experience including treatments ,any recomendations please. Thank you for your time.. God's Blessings 💛

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Hi @rose53 I added your post to a conversation about first experiences with Mayo and thought you'd like to connect with some who have been like @nancy82415.
What kind of recommendations are you looking for, hotels, doctors? Do you have an appointment already?

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@amandaa

Hi @rose53 I added your post to a conversation about first experiences with Mayo and thought you'd like to connect with some who have been like @nancy82415.
What kind of recommendations are you looking for, hotels, doctors? Do you have an appointment already?

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Got hotels but doctors?

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@rose53

Got hotels but doctors?

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Rose, I think that @miriam57 may have some experience to share with you. She was treated for endometrial cancer at Mayo Clinic in Jacksonville, Florida.

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Hi, I've been given an appt for the Mayo Clinic Neurology in Feb 2022 for adverse reaction to the Covid vaccine. I have had ever test possible from the 2 hospitals near me and the neurology clinic at home. Mayo Jacksonville is 5 hours away, so we have to leave my daughter and pets with someone for care. I don't know if I need to find hotel rooms or what. I agree with other comments that the letter and phone call you receive is very vague. I understand that they can't schedule anything until they see you. Now I will worry about all the logistics until then. Any input from someone who has been to Mayo Jacksonville and knows the area. Thanks

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@bsrice

Hi, I've been given an appt for the Mayo Clinic Neurology in Feb 2022 for adverse reaction to the Covid vaccine. I have had ever test possible from the 2 hospitals near me and the neurology clinic at home. Mayo Jacksonville is 5 hours away, so we have to leave my daughter and pets with someone for care. I don't know if I need to find hotel rooms or what. I agree with other comments that the letter and phone call you receive is very vague. I understand that they can't schedule anything until they see you. Now I will worry about all the logistics until then. Any input from someone who has been to Mayo Jacksonville and knows the area. Thanks

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Hi bsrice, allow me to call in members who have been to Mayo Clinic in Jacksonville like @miriam57 @ees1 @caryns @dazlin @fourof5zs @ess77 and @amandaburnett

I also suggest that you call the Florida appointments coordinator and ask for more details. While things may change during the evaluation period, it would be good to know what you can expect. They should be able to give you more details about your stay.

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@bsrice

Hi, I've been given an appt for the Mayo Clinic Neurology in Feb 2022 for adverse reaction to the Covid vaccine. I have had ever test possible from the 2 hospitals near me and the neurology clinic at home. Mayo Jacksonville is 5 hours away, so we have to leave my daughter and pets with someone for care. I don't know if I need to find hotel rooms or what. I agree with other comments that the letter and phone call you receive is very vague. I understand that they can't schedule anything until they see you. Now I will worry about all the logistics until then. Any input from someone who has been to Mayo Jacksonville and knows the area. Thanks

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Hi, I travel up there. You will need to book a hotel. They have one right in the same complex as the hospital buildings. And have several real close.
Wait to see what time your appointment will be and if they will schedule any other tests while you are there.
Once in the Mayo complex. It is very easy to find the building you will go to. The signage and buildings are all well marked.

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@miriam57

Hi, I travel up there. You will need to book a hotel. They have one right in the same complex as the hospital buildings. And have several real close.
Wait to see what time your appointment will be and if they will schedule any other tests while you are there.
Once in the Mayo complex. It is very easy to find the building you will go to. The signage and buildings are all well marked.

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@miriam57, thank you very much for the information.

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@bsrice

Hi, I've been given an appt for the Mayo Clinic Neurology in Feb 2022 for adverse reaction to the Covid vaccine. I have had ever test possible from the 2 hospitals near me and the neurology clinic at home. Mayo Jacksonville is 5 hours away, so we have to leave my daughter and pets with someone for care. I don't know if I need to find hotel rooms or what. I agree with other comments that the letter and phone call you receive is very vague. I understand that they can't schedule anything until they see you. Now I will worry about all the logistics until then. Any input from someone who has been to Mayo Jacksonville and knows the area. Thanks

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@bsrice
I am sorry to be late in answering. I have not had appointments in the neurology department … only gastroenterology and surgical. When talking with the schedulers we always ask if they might could give us an idea of how many days we need to be at the Mayo. They can give a little bit of an idea of how long to plan for.

My husband is retired US Army. We stay a bit away from the Mayo at Mayport Naval Station. About a 20 minute drive most of the time, but high traffic times and construction we allow longer. We have stayed in the Navy Lodge, and each of their two campgrounds. One of the campgrounds has 3 cottages. The campgrounds, but not cottages allow pets. This last time we took Ziggy (my mama's 11 year old mini-poodle we inherited last year). My appointments were all in one day … about 3 hours in the morning and the same in the afternoon. Ziggy did fine and it was his first rv/campground trip. We like going to Mayport Naval Station because we can watch the ships come and go … it is at the junction of the Atlantic and the St John's River. .. and we also like watching people fish from the jetty,

We are also about a 5 hour drive to Jacksonville. We usually go down the day before my appointments. That way we are rested for seeing doctors or NPs, and having test the next day. We usually take a day after appointments for rest too.

I encourage you to download the campus map from the Mayo Jacksonville page. I think the pages give you ideas of where you might want to stay and eat.

ZeeGee

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@bsrice

Hi, I've been given an appt for the Mayo Clinic Neurology in Feb 2022 for adverse reaction to the Covid vaccine. I have had ever test possible from the 2 hospitals near me and the neurology clinic at home. Mayo Jacksonville is 5 hours away, so we have to leave my daughter and pets with someone for care. I don't know if I need to find hotel rooms or what. I agree with other comments that the letter and phone call you receive is very vague. I understand that they can't schedule anything until they see you. Now I will worry about all the logistics until then. Any input from someone who has been to Mayo Jacksonville and knows the area. Thanks

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Hi @bsrice

I have been to both Rochester and Jacksonville Mayo, in fact I am scheduled back at Jacksonville in Jan. Each time I went I knew my schedule ahead of time and appt timeline. Mayo is really good at scheduling everything close together if they know you are traveling in. I agree to reach out to the scheduling dept or neurology office- they should be able to give you a good idea of how long they expect you there. I have had nothing but great experiences each time I have traveled in. I actually moved to Jacksonville recently so I don’t have to travel into there anymore, but there are several hotels around and some may even give a mayo patient discount if you ask. Best of luck!
Jeane

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