Essential Thrombocythemia (ET) and viruses

I have had ET for four years and doing well, at this time. Before covid I had pneumonia every year, in December. Since I started wearing a face mask I have not had it. I believe, in my case, that a mask has protected me, not only from covid but all the other germs in the air that we deal with. I take 500mg per day, also 81mg of aspirin. I have experienced urinary track infections but not often but constantly battling fatigue and itchiness. Good luck with your treatment

Hello there, I was diagnosed with ET in the summer of 2022. My platelet count was over 700 at that time. My hematologist/oncologist put me on 500 HU and a baby aspirin per day. This brought my platelets down to 500. My oncologist then put me on 1000 MG’s of HU and one baby aspirin per day and this brought it down to 420. My husband and I caught Covid. After five days my husband tested negative and did not feel that bad. It took me two weeks to test negative with Covid, and I felt much worse than he did. I am very tired each day and have some dizziness. I did take the Covid vaccine and booster prior to developing ET. I am now reading and looking at some studies on the Covid vaccine. These studies are showing that the vaccine will cause platelets to change. There are many articles about Covid vaccine and platelets if you Google it. Can anyone relate to this Connection between Covid vaccine and change in your platelets. This is so very upsetting.

I am also curious to what foods you eat & don’t eat. This is my second request.

I was diagnosed with Essential Thrombocythemia Hemorrhage in 01/2009 during my yearly physical. My doctor prescribed me 500mg of Hydroxy a day and referred to a oncologist. I was examined intensely for about three months. I was 55 then. The oncologist talked to me about my life over many years and took blood panels twice a week. He brought me to tears. This disease would make me ill for short periods and then disappear. I had issues since a teanager, particularly acid indigestion, unexplainable psychological incidents and other odd things periodically. Not often, and I didn't know how to explain it to anyone. The Doctor asked, before telling me the issue ," You thought you were losing your mind ". I said yea, kind of. He said you were not, it was this disease, i cried,. "Everything you spoke about and more it causes". He said some doctors claim they can treat it but can't. It can cause so many different issues they will diagnose them as something else going on when it's not and cause a disastrous situation. . He increased my dosage from I pill a day to alternate with 2 every other day. The pills made me terribly ill and the worse pain in my life. I was having acid attacks. It took time and lots of suffering before it stopped. Now 14 years later I take two a day. My platelet count stay around 300. I have no issues at all. I don't believe the pills do the trick alone. I taught myself to eat a anti inflammatory diet and other foods that work with my condition. I fast two weeks, every four months.( My choice was the Master Cleanse). I am 70 years old , I look as young as 40 , not a day over 50. I got covid at least twice and never had any symptom. My hematologist see me twice a week for immunotherapy support by infusion. I credit the most, WHAT I EAT AND REFUSE TO EAT. I DON'T CHEAT. IT'S NOT OVER NIGHT, IT'S A PROCESS. THERE'S SO MUCH GOOD STUFF THAT'S AS GOOD AS MEDICINE. IT'S NOT A OVERNIGHT THING. TAKE YOUR TIME AND HAVE FUN. IF YOU DO IT RIGHT , YOUR AGEING WILL SLOW DOWN AND YOU'LL STAMINA WILL INCREASE. ONE MORE THING, IF YOU INVEST IN A GOOD ELLIPTICAL. START OUT DOING ONE MINUTE TWICE A DAY, NOT A SECOND MORE. INCREASE IT BY ONE MINUTE ONCE A MONTH, NOT A SECOND MORE, STAY CONSISTENT, WHEN YOU GET TO TEN MINUTES, STAY THERE. YOUR MIND BODY AND SOUL WILL BE FULLY REJUVENATED. YOU WILL ALWAYS BE THE CENTER OF THE CONVERSATION, FRIENDS AND FAMILY WILL NOTICE BEFORE YOU. YOU WILL BE ADDICTED TO THE REGIMENT AND FEELING SO GOOD, HELL YEA. IT'S EASY.

My MPV was high so I had very large platelets. I started to take black seed oil and my numbers actually decreased.

I am curious as to what foods you eat and what foods you refuse to eat? I am struggling with sweets. Other than that I remain on a very healthy diet.

I was diagnosed with Essential Thrombocythemia Hemorrhage in 01/2009 during my yearly physical. My doctor prescribed me 500mg of Hydroxy a day and referred to a oncologist. I was examined intensely for about three months. I was 55 then. The oncologist talked to me about my life over many years and took blood panels twice a week. He brought me to tears. This disease would make me ill for short periods and then disappear. I had issues since a teanager, particularly acid indigestion, unexplainable psychological incidents and other odd things periodically. Not often, and I didn't know how to explain it to anyone. The Doctor asked, before telling me the issue ," You thought you were losing your mind ". I said yea, kind of. He said you were not, it was this disease, i cried,. "Everything you spoke about and more it causes". He said some doctors claim they can treat it but can't. It can cause so many different issues they will diagnose them as something else going on when it's not and cause a disastrous situation. . He increased my dosage from I pill a day to alternate with 2 every other day. The pills made me terribly ill and the worse pain in my life. I was having acid attacks. It took time and lots of suffering before it stopped. Now 14 years later I take two a day. My platelet count stay around 300. I have no issues at all. I don't believe the pills do the trick alone. I taught myself to eat a anti inflammatory diet and other foods that work with my condition. I fast two weeks, every four months.( My choice was the Master Cleanse). I am 70 years old , I look as young as 40 , not a day over 50. I got covid at least twice and never had any symptom. My hematologist see me twice a week for immunotherapy support by infusion. I credit the most, WHAT I EAT AND REFUSE TO EAT. I DON'T CHEAT. IT'S NOT OVER NIGHT, IT'S A PROCESS. THERE'S SO MUCH GOOD STUFF THAT'S AS GOOD AS MEDICINE. IT'S NOT A OVERNIGHT THING. TAKE YOUR TIME AND HAVE FUN. IF YOU DO IT RIGHT , YOUR AGEING WILL SLOW DOWN AND YOU'LL STAMINA WILL INCREASE. ONE MORE THING, IF YOU INVEST IN A GOOD ELLIPTICAL. START OUT DOING ONE MINUTE TWICE A DAY, NOT A SECOND MORE. INCREASE IT BY ONE MINUTE ONCE A MONTH, NOT A SECOND MORE, STAY CONSISTENT, WHEN YOU GET TO TEN MINUTES, STAY THERE. YOUR MIND BODY AND SOUL WILL BE FULLY REJUVENATED. YOU WILL ALWAYS BE THE CENTER OF THE CONVERSATION, FRIENDS AND FAMILY WILL NOTICE BEFORE YOU. YOU WILL BE ADDICTED TO THE REGIMENT AND FEELING SO GOOD, HELL YEA. IT'S EASY.