Esophagectomy surgery: Want to know what to expect

Posted by survivorsuz @survivorsuz, Jun 27, 2019

Has anyone experienced a minimally invasive surgery for esophageal cancer (squamous cell type)? Wanting to know what to expect please.

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Yes my mom with Moishe Lieberman Canada.
He performed it in 2hrs30min

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@rexsan20

he said to recheck on it within a year.

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Remove it

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@survivorsuz

My esophagectomy with gastric pullup was July 2019. The thing I wish I’d done before the surgery is to get an adjustable bed.
Using a foam wedge wasn’t comfortable so my best option was to get 2 separate twin adjustable beds so my control was independent of my husband’s. Two twins side by side =a king size bed so the bedspread still made them look like one bed.
Having my head & shoulders supported is best for me.
The feeding tube was a big pain in my side, literally. My pants rubbed it as I walked and later decided to wrap an elastic bandage over it and that helped.
Do the deep breathing exercises and walk, walk, walk. Movement helps a lot.
Finally, if things don’t seem right, call your doctor sooner than later.
I’m doing great at my 2 year mark and wish you tge best too.

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Hello - what stage were you in ? Did you have a lymph nodes removed ? (And +) ?
Thank you

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Has anyone had an Esophagectomy who had a prior Roux-en-Y Gastric By-Pass?

Lily

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Hi @agould105 and welcome to Mayo Clinic Connect. I am sorry to hear about your husband. You'll see that I moved your post to an ongoing discussion about esophagectomy surgery. I did this so you can connect with other members who have had the surgery and share your husband's experience with them.

Do you crush his pills for him?

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March 8 my husband had his entire esophagus removed, stomach pulled up to meet at throat. He was hospitalized 27 days. While in the hospital he went from clear liquids to semi-solid food and then would completely reject any solid food. We can go back to clear liquids and then full liquids. He had a J tube and they use that for about 10 days. Upon release from the hospital his J tube was intact and he was only on liquids, he was able to tolerate applesauce and pudding textures.
Since he has been home he’s had a lot of post surgical issues. Please feel free to share any experiences!
He’s some real issues with trying to keep any food down. There’s a lot of gurgling and bubbling in his throat. More often than not he is throwing up medications that he must take, he eats them in applesauce. Late in the day after eating dinner he has what’s known as dumping syndrome, massive amounts of diarrhea and cramping.

The J tube slid out three days after he got out of the hospital.

He was hospitalized again last week for two nights and we met his Gastro person in the ER who determined that his throat was closed up so badly a Camera could not be put down it so they carefully used a balloon to stretch the area. Once he could prove that he could keep solid food down they released us only within the next 24 hours he was throwing up again!

That’s just one issue that he’s having. The other one is that he has fluid on his left lung, on the outside. It keeps filling up. Since the surgery March 8 he has had the fluid removed four times, twice as an outpatient.
Any advice? Has anyone else had to go back and have stretching done?

We have follow ups with gastro, pulmonary and cardio ( he was tachy and in Afib for 2 weeks after surgery)

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@mcmuck29

Glad you are doing so well. Can you provide some food suggestions. My husband is out of surgery for two months and had his feeding tube removed about 2 weeks ago. We are continuing to find foods he can eat that agree with him. We keep trying different things and will continue to do so, just always looking for ideas.

He also still coughs up a lot of mucus. We are wondering how long that will last.

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I used smoothies made with an immersion blender to find what I could tolerate with protein and less sugar. Taste can be so strange after radiation but if it is a liquid you can get it down easier just to get nutrition in. I used a lot of ricotta cheese or cottage cheese in them for added protein that I couldnt really taste. Peaches tasted good so that was the main fruit for flavor. Berries were also included. Cream of wheat or my favorite Coco wheats make a good breakfast. Mashed potatoes with added dry milk or protein powder always tasted good and extra protein. I used some baby food also for a while. Bananas and avocado are very easy to swallow. Any fruit can be pureed like applesauce and served with cottage cheese or even cream cheese for protein. I also made turkey with gravy and pureed some meat into the gravy. An immersion blender worked great then, though I have a small Ninja blender now and I love it. Good luck with everything.

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@mcmuck29

Glad you are doing so well. Can you provide some food suggestions. My husband is out of surgery for two months and had his feeding tube removed about 2 weeks ago. We are continuing to find foods he can eat that agree with him. We keep trying different things and will continue to do so, just always looking for ideas.

He also still coughs up a lot of mucus. We are wondering how long that will last.

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Hi @mcmuck29, welcome to the group. Fellow members @maryhelen @sepdvm @patriciagsr @survivorsuz @puprluvr @lori57216 can share their food suggestions as your husband transitions from the feeding tube to finding foods that agree with him.

While we wait for others to weigh in, you may be interested in the tips shared by members in these discussions.
- Esophageal cancer....transitioning to food https://connect.mayoclinic.org/discussion/esophageal-cancer-transitioning-to-food/
- Soft Food Suggestions https://connect.mayoclinic.org/discussion/soft-food-suggestions/
- Have you had the trach removed after esophageal cancer? https://connect.mayoclinic.org/discussion/trach-after-esophageal-cancer/
- Feeding tube removal https://connect.mayoclinic.org/discussion/feeding-tube-removal/

What foods have you discovered that work for your husband so far? Is there something that he particular enjoys?

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@lori57216

Oh wow!!!! You & I were in St. Mary's / Rochester at the same time for the exact same surgery!!!! Dr. Wigle was my surgeon. I had my esophagectomy April 15th and was home on the 29th ( neck drainage tube site got infected after the tube was removed ) so I had to stay another week. Lower intestine feeding tube for 8 - 10 weeks. In the meantime NPO. I'm doing fairly well for the most part except the monthly dilations where the stomach & remaining esophagus connect. Hoping the temporary stent will remedy that. Thank God I'm a retired Certified Dietary Mgr. which turned out to be a Godsend in the dietary / caloric aspect. I lost a significant amount of weight but I was over weight to begin with so..... I'm steadily holding a healthy 140#. I have most recently been suffering from that pesky acid reflux. Why now a year after surgery? That is really my only 2 negatives other than the sometimes extreme pain on the right side where the huge incision is along the entire ribcage. Hope you continue your adventure successfully. Hoping also to receive a response and connect.

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Glad you are doing so well. Can you provide some food suggestions. My husband is out of surgery for two months and had his feeding tube removed about 2 weeks ago. We are continuing to find foods he can eat that agree with him. We keep trying different things and will continue to do so, just always looking for ideas.

He also still coughs up a lot of mucus. We are wondering how long that will last.

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I know it says I have a tumor in my bronchial and it has to be biopsied

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