Esophageal cancer treatment: Anyone have good experiences to share?

Posted by earnest @earnest, May 28, 2024

Hello troops. Does anyone have any good news about their treatments? All I've been reading are horror stories. Not very encouraging at all. I'm on my second week of radiation and chemo, and the first chemo didn't go well. Not meaning to add to the horror stories, but it made my stomach ache really bad. They stopped and gave me steroids, I think. Now I'm hearing these stories about leaking chemo causing pain, makes me apprehensive. So if anyone has had a GOOD experience, PLEASE share it!

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@lsheehy333

I had 56 radiations (28 proton and 28 photon) and 8 Chemos (4 FOLFOX and 4 Carbo-taxol) and have done fine. I was a little tired. I did get fluids a few times. That helped a lot. All in all, it was not bad at all.

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Thank you SaffronCat. That helps. Thanks for chiming in. Keep on encouraging.😄👍

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@earnest

Thanks Don. I'll write a more detailed post tomorrow in response. It's late. Gotta get to bed. Have treatment early morning.

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Good morning Don. Picking up where I left off yesterday. So I've been having kind of a rough time so to speak, and I look for encouragement from support groups like this one. Up until your post I've been seeing nothing but negative reviews. And trust me, I've had enough negative in my travel through this cancer. The first thing was when I had this feed tube inserted into my colon. I'd heard about people regaining consciousness during surgery, but it didn't cross my mind until my actual surgery. And I do not mean later. I had a rude and EXTREMELY PAINFUL awakening. It seemed to me that I became conscious while still on the operating table, and the only way I can explain it is that I felt like a 2,000 pound great white shark had just grabbed hold to my side trying to eat me. My eyes never opened, I just remember seeing black, but I know that I was coming up off of that table and two people pushed me back down. I then lost consciousness again and layer woke up in the recovery , still suffering , but not as traumatic as before. I heard the nose say twice to give me some fentanyl. Just so you know, I'm a jokester. So when I heard the nurse say fentanyl, I asked her, " Isn't that the stuff that's killing people on the streets?" She laughed and assured me that it was perfectly safe in a controlled environment such as the hospital. It did help. Just for laughs, when they wheeled me to my room, I told them I can walk to my bed from the hallway, which they brought me up in a bed. So I only had on the one gown covering my front, and you know butt out. My room was on the right, and I turned to the left and just cracked up laughing. There were two or three young Amish girls visiting someone in that room. So I laughed and told the orderly that I'm about to " Moon the Mennonites." 🤣🤣🤣 anyway, fast forward to my first chemo. About 15 minutes into it, I started having a bad reaction. My stomach started hurting badly, so they stopped, gave me something, I think Benadryl, and made it better. We were able to continue without further incident. I'll stop her because this is getting long. Let's keep the conversation going though. Be blessed.

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I had 56 radiations (28 proton and 28 photon) and 8 Chemos (4 FOLFOX and 4 Carbo-taxol) and have done fine. I was a little tired. I did get fluids a few times. That helped a lot. All in all, it was not bad at all.

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Thanks Don. I'll write a more detailed post tomorrow in response. It's late. Gotta get to bed. Have treatment early morning.

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@luiscoelho

Breezed through mine, constipation at first, but it too subsided. I’d highly recommend the hydration treatment the day after chemo and drink plenty of fluids, it really dehydrates you.

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Earnest
I had 28 chemo and radiation treamtents for EC and it worked. My tumor is now gone. I did have some side affects including caughing and being tired all the time. Scans are clear now. I'd be happy to answer questions.

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Breezed through mine, constipation at first, but it too subsided. I’d highly recommend the hydration treatment the day after chemo and drink plenty of fluids, it really dehydrates you.

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