EPI - Need Advice
I have had colitis, Ulcerative Colitis and Diverticulitis for years. I am also very prone to C Diff infections. A year ago in December, I became extremely ill and after several months was finally dx'd with EPI and Severe Pancreatitis. Eighty to ninety percent of my pancreas has died. I have lost over 100 pounds. I am malnourished. I am very embarrassed to admit that I must wear diapers in case of breakthrough accidents. I was given Creon and told to take 2 with a meal and 1 with a snack. When I asked my Dr. how big a snack is, she didn't know. She finally said anything bigger than a slice of bread needs 2 capsules. I eat low fat, but she told me that my system is so fragile, that I should avoid fruits and vegetables unless they are over cooked and the fibers are broken down in them. She also told me Ensure has too much fat, so I can't have that. I asked to see a nutritionist and was told there are none here. I was very over weight because of meds, so I'm not underweight, but I'm almost there. I weigh 234 pounds and am almost 6 feet tall. I don't know what to eat or drink, except for water. My Dr. agreed that the only thing keeping me alive was my sugar intake. There are no research hospitals nearby that I can go to for help. Can you please help me? I would be ever so grateful and will try to help the community as I can. I honestly feel if I don't get some help that I am going to die and I am a fighter. I want to live life to the fullest.