Eosinophilic bronchiectasis?
Hi all. I think in searching thru the threads there are folks here with eosinophilic bronchiectasis (BE). Any experience or good sources of info welcome! I don't know if I have this but after 3 labs over 4,months showing high eosinophils (700, 700 & most recently, 900 in early June) (over 300 is considered high) I started nosing around. My docs (NYU Bronchiectasis & Mac program) had thought allergies cuz I showed up with irritated eyes and I have new-onset wheezing + decreased PFT... But then I tested positive for one cold virus one month and a different one the next month ... so they attribute the high eosinophils to the viruses. I have never had asthma. When I started looking for info I discovered this eosinophilic bronchiectasis thing but not much info so here are my questions:
--If you have eosinophilic BE, how was it figured out? What I've seen says high blood levels of eosinophils are a marker for eosinophilic BE but apparently there can be eosinophilic anything, for ex eosinophilic gi disorders, eosinophilic kidney disorders, etc. so how do they correlate high blood levels of eos with where the inflammation is? Especially as many of us have other conditions?
--Does eosinophilic BE manifest differently from more typical (neutrophilic) BE? I've read that it can be more severe (my BE, even with MAC, is not severe). But is that the only difference?
--Any advice on what to ask the docs? My next appointment is end of this month. I will probably call the office in the next couple days and at minimum request follow-up labs to check if the level is still high. But I also want them to look deeper & I want to understand better myself what may be happening.
Many thanks all!
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