Endometrial Biopsy: I’m terrified, what can I expect?

Posted by suesam @suesam, Dec 21, 2024

Hi there, I have no bleeding but my endometrial thickness is a 6 and I have an endometrial biopsy scheduled in 30 days and I'm terrified. I made the mistake of reading all the horror stories on the internet. My doctor said it is painful and is preparing me by asking me to take VagiFem 10 for the next month and also to take advil before arriving. I've had pap smears all my life and they never hurt but my last one did. But I think that's because the doctor ( mine retired ) used a large instrument which hurt but then switched to a smaller one which was fine. It's a different doctor who will do the biopsy. I've had 2 transvaginal ultrasounds which didn't hurt and one hysterscopy which didn't hurt at all. But I'm terrified of the biopsy. My ultrasound showed a thickness of 6, nothing else, and my CT scan showed nothing. I wish my doctor hadn't told me it would hurt - when I said my last pap smear hurt, he said this would hurt more. He wasn't trying to be mean, just preparing me. I'm hoping I can do it. Any thoughts? And thanks for listening.

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Profile picture for carol1024 @carol1024

It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if in advanced stages. It is in lymph nodes in pelvic area. I'm having a pet scan March 12th. I'm getting port Wednesday the 5th. I'll have 3-5 hour treatments of chemo when emergency authorization comes through. Hoping for chemo the same week I get port but may be following Monday. If, after the first 3 treatments there's no shrinkage of lymph nodes, so they can see where surgery needed, then I will transfer my care to a local female oncologist and give her a try. I have nothing to lose because they won't do surgery if chemo isn't successful. Needless to say, I am terrified.

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Hey Carol - I can understand that you are terrified. That is a lot to happen and a lot of waiting involved. I'm so sorry that you're dealing with all of this. I wish you all the best tomorrow with the 'port'. Sending all sorts of good wishes to you. Sure wish you didn't have to go through this.

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Profile picture for carol1024 @carol1024

It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if in advanced stages. It is in lymph nodes in pelvic area. I'm having a pet scan March 12th. I'm getting port Wednesday the 5th. I'll have 3-5 hour treatments of chemo when emergency authorization comes through. Hoping for chemo the same week I get port but may be following Monday. If, after the first 3 treatments there's no shrinkage of lymph nodes, so they can see where surgery needed, then I will transfer my care to a local female oncologist and give her a try. I have nothing to lose because they won't do surgery if chemo isn't successful. Needless to say, I am terrified.

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my uterus lining is 37 mm i have a pre op appt with my dr this week. my left side of my abdomen hurts sometimes, a new development. i am 76 yrs old and have severe hip arthritis.

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@carol1024 I offer my apology if you've already explained your gynecological diagnosis somewhere else on Connect and I missed it. I'd like to offer my support and help to answer any questions you might have. I am not a medical professional however I am cancer survivor of endometroid adenocarcinoma, FIGO 1, Stage 1a, with a recurrence two years later.

May I ask your diagnosis after you got back your biopsy results? You wrote cervical and uterine cancer. Were both the certical and uterine cancers adenocarcinoma? There are different kinds of cancer and if you read or have a copy of your pathology report you will be able to find that information.

American Cancer Society: Types of cervical cancer:

-- https://www.cancer.org/cancer/types/cervical-cancer/about/what-is-cervical-cancer.html

American Cancer Society: Endometrial cancer:

-- https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

When are you scheduled to start chemotherapy? How are you feeling today?

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It is carcinosarcoma a very aggressive and rare endometrial cancer. My survival rate is 0-10% if in advanced stages. It is in lymph nodes in pelvic area. I'm having a pet scan March 12th. I'm getting port Wednesday the 5th. I'll have 3-5 hour treatments of chemo when emergency authorization comes through. Hoping for chemo the same week I get port but may be following Monday. If, after the first 3 treatments there's no shrinkage of lymph nodes, so they can see where surgery needed, then I will transfer my care to a local female oncologist and give her a try. I have nothing to lose because they won't do surgery if chemo isn't successful. Needless to say, I am terrified.

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Profile picture for carol1024 @carol1024

I haven't even gotten the port for the chemo. I go wednesday for that. I've been battling this since December so nothing is going fast enough for me.

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Oh, I'm sorry Carol. I got the days all wrong. Wishing you all the best for Wed. You're right - that's a long, long time to wait. So sorry to hear this.

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Profile picture for carol1024 @carol1024

I haven't even gotten the port for the chemo. I go wednesday for that. I've been battling this since December so nothing is going fast enough for me.

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@carol1024 I offer my apology if you've already explained your gynecological diagnosis somewhere else on Connect and I missed it. I'd like to offer my support and help to answer any questions you might have. I am not a medical professional however I am cancer survivor of endometroid adenocarcinoma, FIGO 1, Stage 1a, with a recurrence two years later.

May I ask your diagnosis after you got back your biopsy results? You wrote cervical and uterine cancer. Were both the certical and uterine cancers adenocarcinoma? There are different kinds of cancer and if you read or have a copy of your pathology report you will be able to find that information.

American Cancer Society: Types of cervical cancer:

-- https://www.cancer.org/cancer/types/cervical-cancer/about/what-is-cervical-cancer.html

American Cancer Society: Endometrial cancer:

-- https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

When are you scheduled to start chemotherapy? How are you feeling today?

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Profile picture for suesam @suesam

Hi Carol - how did the surgery and chemo go? I hope you're feeling okay. It must be so overwhelming - to get your diagnosis and first treatment so fast. How are you doing?

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I haven't even gotten the port for the chemo. I go wednesday for that. I've been battling this since December so nothing is going fast enough for me.

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Profile picture for carol1024 @carol1024

I wish men wouldn't comment on things they know absolutely nothing about. I had a biopsy
end of February and diagnosed with cervical and uterine cancer. I'm going for surgery for port to get chemo on Wednesday. The biopsy, while unpleasant, was done by a female gynecological surgeon. This male doctor sounds like he's going in there as if fixing a piece of machinery. I'd love for you to get a female to do it. I've actually had 2. The first one I had was done by my gynecologist, a male, and he didn't get enough tissue. I then saw the female because CT scan showed suspected mass. She would tell me before she did each thing. I playfully told my family it felt like she was after my tonsils. I even yelled out the word........fff***cccckkkkk....then said sorry about that. It was over in a very short time. If you've had children then that hurt worse than the biopsy. Routine paps should not hurt if they are done right. She had to go way up in my cervix to get tissue and even farther for uterine tissue and that's why it hurt but it hurt for less than 5 seconds. I believe the scraping to get cells hurt worse than the swabbing did but like I said, it only hurt for less that 5 seconds. Good luck and remember to just breathe.....it will be ok.

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Hi Carol - how did the surgery and chemo go? I hope you're feeling okay. It must be so overwhelming - to get your diagnosis and first treatment so fast. How are you doing?

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I wish men wouldn't comment on things they know absolutely nothing about. I had a biopsy
end of February and diagnosed with cervical and uterine cancer. I'm going for surgery for port to get chemo on Wednesday. The biopsy, while unpleasant, was done by a female gynecological surgeon. This male doctor sounds like he's going in there as if fixing a piece of machinery. I'd love for you to get a female to do it. I've actually had 2. The first one I had was done by my gynecologist, a male, and he didn't get enough tissue. I then saw the female because CT scan showed suspected mass. She would tell me before she did each thing. I playfully told my family it felt like she was after my tonsils. I even yelled out the word........fff***cccckkkkk....then said sorry about that. It was over in a very short time. If you've had children then that hurt worse than the biopsy. Routine paps should not hurt if they are done right. She had to go way up in my cervix to get tissue and even farther for uterine tissue and that's why it hurt but it hurt for less than 5 seconds. I believe the scraping to get cells hurt worse than the swabbing did but like I said, it only hurt for less that 5 seconds. Good luck and remember to just breathe.....it will be ok.

REPLY
Profile picture for lucky0115 @lucky0115

They said usually within a couple of weeks. Hopefully they come sooner 🙂

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@lucky0115 Yes, I'm hoping too that your results will arrive sooner.

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Profile picture for suesam @suesam

Thanks, Lucky. I'm so glad yours went well and was over fast. Did they say how long the results would take? I'm keeping my fingers crossed that all is well. Wishing you all the best.

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They said usually within a couple of weeks. Hopefully they come sooner 🙂

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