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EM platelet study shows delta dense granule deficiency

Posted by bhoudeshell @bhoudeshell, Aug 8 10:59pm

Hi everyone, I am currently being seen by two hematologists to figure out why I have been bruising and bleeding. blood work has came back mostly normal. My blood was sent to University of Toledo and it said I have a delta dense granule deficiency. They want to redo the test and send it to Mayo Clinic. Does anyone have this and explain what it means?

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katgob | @katgob | Aug 8 11:51pm

I seldom google but the delta dense granules are part of our platelets. Getting another test is good. Find out why this may be happening. Do you have another condition being treated?

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1 reply
bhoudeshell | @bhoudeshell | Aug 9 11:01am
In reply to @katgob "I seldom google but the delta dense granules are part of our platelets. Getting another test..." + (show)
@katgob

I seldom google but the delta dense granules are part of our platelets. Getting another test is good. Find out why this may be happening. Do you have another condition being treated?

Jump to this post

I also have a low C1Q and my doctors are thinking it could be an autoimmune disease but not sure. I have a history of complicated hydronephrosis, POTS, and endometriosis. I looked up stuff about the platelets and it said it could be linked to other conditions.

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katgob | @katgob | Aug 9 7:52pm

It i good to check with the doctors! Possibly treatable.

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vtd11 | @vtd11 | Aug 10 12:46pm

I have the opposite problem of too many 'sticky' platelets causing numerous blood clots. I was referred to Mayo Clinic in Fl but they tell me their thrombose clinic is closed. I hope you find answers at the Mayo Clinic, which ever one you can go to.

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1 reply
bhoudeshell | @bhoudeshell | Aug 10 7:49pm
In reply to @vtd11 "I have the opposite problem of too many 'sticky' platelets causing numerous blood clots. I was..." + (show)
@vtd11

I have the opposite problem of too many 'sticky' platelets causing numerous blood clots. I was referred to Mayo Clinic in Fl but they tell me their thrombose clinic is closed. I hope you find answers at the Mayo Clinic, which ever one you can go to.

Jump to this post

Thank you. Currently dealing with Hershey Med and Children’s hospital of Philly.

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luanne22 | @luanne22 | Aug 11 10:04am

Are you fair-skinned and light haired?? If so look into HPS. Many many variants known, including very mild forms. HPS = Hermansky Pudlak Sundromr.

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1 reply
bhoudeshell | @bhoudeshell | Aug 11 7:42pm
In reply to @luanne22 "Are you fair-skinned and light haired?? If so look into HPS. Many many variants known, including..." + (show)
@luanne22

Are you fair-skinned and light haired?? If so look into HPS. Many many variants known, including very mild forms. HPS = Hermansky Pudlak Sundromr.

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Fair skinned, yes. I have dirty blonde hair. I tried to look a little into it and it said something about silver hair

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