Elevated parathyroid hormone (PTH): How is it treated?

I also went to the norman clinic..............my parathyroid was hidden "behind" the thyroid and a standard scan would not have picked it up............Norman does a radioactive tracer.....check out the video on their web site.............and yes they did test them all. Norman will check your insurance...........I do have a supplement.
In average hospitals there is always the "management" which watches the financial bottom line and they just don't like to do fancy (expensive tests) so they just watch and wait. This is called "capitation" and yes despite all the cute little angels, hopitals are still a money making facility. Beckers is a good web site if you are interested in hospitals................

Yes. Mine has been going up for six months and even with the prescription vit d it is now 431. I do back to doc next week and she says she has another plan. I had the nuclear scan last year very expensive and showed nothing Now I read on here they often don’t show everything. My ckd is the same

Yes, you are right, @debs4246. The problematic parathyroid glands often do not show up on the nuclear scan. Many on Connect have reported that. Having an ultrasound of the neck done on routine basis (mine are done every six months) tends to be a less expensive way to monitor the parathyroid. Even then, it is sometimes just a guess.

How are you feeling? Any other symptoms such as osteoporosis, kidney stones, etc.?

Osteoporosis. Ckd3b but no stones. Graves’ disease Chf cardiomyopathy anemia low blood pressure miagraines pacemaker defibrillator. I’m sure I’m forgetting things just too overwhelming
Thanks

@debs4246 welcome to Mayo Clinic Connect. You have a lot of physical things to deal with. No wonder you are overwhelmed. Your mention of Graves’ Disease got my attention in your post from the elevated parathyroid hormone (PTH) discussion. I have a history of Graves’ Disease. I also have Osteoporosis, CKD, Anemia and a history of Migraines. We have some things in common. I know that my PTH is monitored by 2 of my medical providers. I don’t know much about parathyroid glands (and ailments or treatments) except that it is located in close proximity to the thyroid (hence the name). It sounds like Teresa Volunteer Mentor @hopeful33250 has responded to your concerns about parathyroid. She is helpful and fantastic. I can tell you that there is a treatment for Graves’ Disease. I believe it is a medication called Methimazole. It is used to treat hyperthyroidism. Do you have providers taking care of your many ailments? Perhaps you can ask about this medication? Will you post again to let us know how you are coming along?

I’m tired and I can’t think about me right now. My son is in the hospital and more of doc talking in circles. I do hope you and everyone are doing well and getting answers. Im just sick and tired of being sick and tired. My kidney doc has upped the capitol im not spelling that right vit D now to 1.00 a day Thank you for caring

So sorry to hear that your son is in the hospital, @debs4246! I hope that all goes well for him (and you)! Keep in touch and let me know how we can encourage and support both you and your son.

My daughter had Graves’ disease. She was given a radioactive pill to eradicate her thyroid. She has been taking Synthroid since then.
I have had a parathyroid gland removed due to an adenoma. It was a very easy surgery (for me) with no pain. I spent one night in the hospital to make sure my parathyroid levels came down. I’ve had a kidney transplant since then and at times my parathyroid levels are a little high. It’s possible that I may have another adenoma, but for now since my calcium levels are ok, they are just watching it.

Five weeks ago, I had what I consider to be unsuccessful parathyroid surgery. Since 11/22, when my PTH was first tested, it was consistently at the high-normal range or slightly above normal. For many years my calcium has also been at the high normal range. (I've had osteoporosis for years.) A nuclear CT scan didn't show any problem parathyroid glands but my surgeon thought my blood work indicated there was a possible adenoma. However, during surgery the two glands on the right appeared normal and he couldn't find the two glands on the left. I had a lot of scar tissue from a partial thyroidectomy over 30 years ago that needed to be cleaned up so my surgery took 4 hours vs the expected 1 hour. I had several nodules on what thyroid I still had, so the surgeon removed the rest of my thyroid. Mixed in with that and the scar tissue was one of the normal parathyroid glands I had on my right side. The day after surgery, my PTH had dropped to the middle of the normal range but, two weeks later, had crept up a little but was still within normal range. Next week, at 6 weeks post surgery, I will have my PTH rechecked again and have a feeling it will have continued to elevate. My thyroid supplement was increased since I now have no thyroid at all. All of this has been extremely worrisome and frustrating as I feel I am no better off after surgery, and have lost the remaining thyroid I had.

Sorry to hear you had a bad surgeon. These glands are hard to find by an inexperienced
surgeon. I'd head to the Norman Parathyroid hospital in Tampa to let the Experts correct the failed surgery. Good info here http://www.parathyroid.com
Check them out on youtube also.