"Electric Shock" type pain in my scalp!

Posted by Deby @deby, Aug 17, 2011

It feels like someone is touching my scalp with an electric wire or prod. Like a “zap” and then it takes a few seconds to get over it. It happens 2 or more times per MINUTE! It lastes for a couple of days usually and when it goes away it takes a few more days for my scalp not to be sore. I don’t know how many times a year it occurs but when it does, like today, it drives me crazy. I walk around making weird faces and people stare at me. They think I have a headache or migrain but I don’t, the pain is only on my scalp not IN my head. Sometimes the shocks occur over and over for a minute, then go back to 2 or more times per minute. It’s the weirdest thing and I can’t wait for it to be over. I never know when it’s going to occur or what brings it on. Anyone ever heard of something like this?

@artscaping

@lioness Tinnitus is my new issue. Mine sounds like 100 crickets and is on the right side. It prevents sleep and is creepy. It started out as intermittent and now is constant. What do you do to cope with this neurological problem?

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Are you talking about Minears Disease. I was driving and my husband was passenger. Suddenly everything was spinning . We were at stop sign thank God. In the early stages I spent time in bed. I have not had attack on at least 10 yrs

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@artscaping

@lioness Tinnitus is my new issue. Mine sounds like 100 crickets and is on the right side. It prevents sleep and is creepy. It started out as intermittent and now is constant. What do you do to cope with this neurological problem?

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@oregongirl no just the tinnutis in ears rings all the time I never had Minears disease but since Im older now when I bend over I get spinning I think with Minears you vomit I don't.

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thank you Jesus, I have found someone that has the same thing! The only difference is mine is specifically around the scalp on the front of my forehead down to my temples around my hairline. I have ask my neurologist about this twice and they have not a clue what it is. It's extremely painful, what have your doctors told you?

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Mine is an explosion that wakes me up. Google that. I asked my dr and he looked at me like I was crazy. It finally stopped. It scared me.

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@marilyntrevino

thank you Jesus, I have found someone that has the same thing! The only difference is mine is specifically around the scalp on the front of my forehead down to my temples around my hairline. I have ask my neurologist about this twice and they have not a clue what it is. It's extremely painful, what have your doctors told you?

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@marilyntrevino are you sure this isnt Shingles? What has your Dr said? For everyone out there if you,ve had the herpes simplex from chickenpox or cold sores get a shingle shot if your Dr recommends .

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@marilyntrevino

thank you Jesus, I have found someone that has the same thing! The only difference is mine is specifically around the scalp on the front of my forehead down to my temples around my hairline. I have ask my neurologist about this twice and they have not a clue what it is. It's extremely painful, what have your doctors told you?

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Hi, Marilyn. I have the same electric shock. Mine usually goes from the back of my head down to my toes, or either foot. It has knocked me down a half dozen times, and hit me probably 30 times total. I am pretty certain mine is from Amyloidosis fibrils invading the nerves, specifically the Vagus nerve, and some others on occasion. I also suspect this is the cause of Amyloidosis Cardiac Sudden Death, when the fibrils push the wires apart, and the control nerves cannot deliver the signal for the heart to beat. The shock could be when wires get crossed under the myelin sheath, or get crossed in the brain under the impact of CAA (Cerebral Amyloid Angiopathy). It usually hits when my eyes are seeing flashing lights when there are none there, and the pain in my left chest is bad. I suggest you ask your doc to order a Bindings Site sFLC (Serum FreeLiteChain) assay as a starter, to see if you have excess mis-folded protein particles, kappa or lambda) in you blood serum. The reference range for Kappa runs up to 1.65 mg/deciliter. Mine runs around 2.75-3.00, or up to 30.00 mg/SERUM liter. If so, get thee to Mayo or BU or MD Anderson or another top Amyloidosis clinic. Forgot to say that Metropolol Tartrate seems to help.

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@marilyntrevino

thank you Jesus, I have found someone that has the same thing! The only difference is mine is specifically around the scalp on the front of my forehead down to my temples around my hairline. I have ask my neurologist about this twice and they have not a clue what it is. It's extremely painful, what have your doctors told you?

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I had this in my arms for about 2years, electric shock feeling now I have constant nerve pain in my arms hands n fingers. If I use my arms ect… the pain just gets more intense. I'm very limited in how much I use my arms ect… everyday.

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Hello.
I have similar symptoms of occipital neuralgia. For long periods of sitting, the pain in the neck and tingling scalp pain. If it does not lie, this tingling becomes an electric shock. Unfortunately, I have visited many doctors who can't understand my diagnosis. At the same time, I can't work for more than a year. For this reason, I have decided to act on my own responsibility. That's why I want to ask for these Occipital Nerve Block injections. I want to ask what are the possible side effects?

Regards

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@bigapp7e I have a lot of the electric shock, but mine starts in my head and runs clear to my toes, left or right. Metropolol tartrate has relieved it some,

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@bigapp7e

Hello.
I have similar symptoms of occipital neuralgia. For long periods of sitting, the pain in the neck and tingling scalp pain. If it does not lie, this tingling becomes an electric shock. Unfortunately, I have visited many doctors who can't understand my diagnosis. At the same time, I can't work for more than a year. For this reason, I have decided to act on my own responsibility. That's why I want to ask for these Occipital Nerve Block injections. I want to ask what are the possible side effects?

Regards

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Welcome to Connect, @bigapp7e,

I'm tagging @marinelast @so4tune8 @menville @bonnieh218 @ajgray @maddy32 @sun711 @247headache as they've discussed nerve blocks, and may be able to offer some more information.

We have several members talking about occipital neuralgia in this discussion as well:
– Occipital Neuralgia and Basilar Migraines https://connect.mayoclinic.org/discussion/occipital-neuralgia-and-basilar-migraines/

Could you share a few more details, @bigapp7e? When did your symptoms start? How have you managed your symptoms thus far?

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@bigapp7e

Hello.
I have similar symptoms of occipital neuralgia. For long periods of sitting, the pain in the neck and tingling scalp pain. If it does not lie, this tingling becomes an electric shock. Unfortunately, I have visited many doctors who can't understand my diagnosis. At the same time, I can't work for more than a year. For this reason, I have decided to act on my own responsibility. That's why I want to ask for these Occipital Nerve Block injections. I want to ask what are the possible side effects?

Regards

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@bigapp7e I have two occipital nerve blocks done every three months. As the meds are going into your system it hurts for like a half minute and then that pain is gone. I don’t get instant relief; it takes a good 30 minutes or so for me to feel the occipital pain relief. I have never had any side effects.
I hope it goes as well for you.

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Hello Kanaaz Pereira. Of course I will share details about my health problems.
It all began December 2016. I was at work and I was working in the office (I'm a programmer). I got up to coffee and when I got up I got vertigo. The whole office started spinning around me. This vertigo lasted about 2-3 minutes. I went to the emergency room at the nearby hospital and there told that I had a blood pressure to rest and everything would be fine. Unfortunately things got worse.

Complaints:
1. Head and neck pain. This pain is from morning till evening. During pain I feel neck muscle weakness. Not affected by any pills.(neck pain I mean on top of my neck.).
2. Tingling of the scalp and dizziness. This feeling is almost constant. If the numbness goes on, it makes me feel like a electricshock.
3. Mild pain and tired eyes.

Since then, I have been in over 10 hospitals and I have been given all sorts of diagnoses. I have been assigned a variety of therapies, but unfortunately no success.

I've done all sorts of research. MRI, EEG, Arteriography, ROENTGENOGRAPHY, Electroencephalography EEG, Color coded duplex scanning, Cardiologist exam, Otoneurologist examines, Electromyography EMG, Eye exam, Neurologist exam etc.

I would have botox injections in the head and neck. Without any result.
I would have cortisone injections in the neck disks, this has led to a deterioration of my condition.

From the beginning of my illness until now, I'm trying to figure out what provokes my symptoms. What I have found is that in most cases my symptoms are provoked when I'm sitting (in front of a computer or when driving etc) or if my pillow is higher, in other words, my symptoms are provoked from head to body.

I'm looking for some solution to my health problems.
Please if there is anyone with similar symptoms let’s sharing experience. I will be grateful.

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@bonnieh218

@bigapp7e I have two occipital nerve blocks done every three months. As the meds are going into your system it hurts for like a half minute and then that pain is gone. I don’t get instant relief; it takes a good 30 minutes or so for me to feel the occipital pain relief. I have never had any side effects.
I hope it goes as well for you.

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Thank you very mach bonnieh218.

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@kanaazpereira

Welcome to Connect, @bigapp7e,

I'm tagging @marinelast @so4tune8 @menville @bonnieh218 @ajgray @maddy32 @sun711 @247headache as they've discussed nerve blocks, and may be able to offer some more information.

We have several members talking about occipital neuralgia in this discussion as well:
– Occipital Neuralgia and Basilar Migraines https://connect.mayoclinic.org/discussion/occipital-neuralgia-and-basilar-migraines/

Could you share a few more details, @bigapp7e? When did your symptoms start? How have you managed your symptoms thus far?

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Kaneez Pereira. Hi I have bone on bone in both thumbs does anyone else ?

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@lioness

Kaneez Pereira. Hi I have bone on bone in both thumbs does anyone else ?

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@lioness I have it in my left thumb only, from an old injury. Kept me from playing pro baseball years ago.

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