"Electric Shock" type pain in my scalp!
It feels like someone is touching my scalp with an electric wire or prod. Like a “zap” and then it takes a few seconds to get over it. It happens 2 or more times per MINUTE! It lastes for a couple of days usually and when it goes away it takes a few more days for my scalp not to be sore. I don’t know how many times a year it occurs but when it does, like today, it drives me crazy. I walk around making weird faces and people stare at me. They think I have a headache or migrain but I don’t, the pain is only on my scalp not IN my head. Sometimes the shocks occur over and over for a minute, then go back to 2 or more times per minute. It’s the weirdest thing and I can’t wait for it to be over. I never know when it’s going to occur or what brings it on. Anyone ever heard of something like this?
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I have had PMR have shock like jabs that are very painful and cause me I scream instantly. Areas affected vary throughout all body areas; PMR prednisone dosage varies frequently; initially 10 mg. ; tapered to 5; 8 mg. Due to flare ups.
Hey John,
Thank you for the welcome, and the reference to the ON discussion group.
I went from 10 mg / day for about a decade, and when I started feeling better from the surgery I tapered to 5 mf/day on my own with no trouble. Rather than free lance my taper, I started seeing a new rheumatologist (my past one retired), and she has me on 4 mg/day in the morning for one month, then I'll go to three for a month, and so on. She said that I will probably start having trouble when I reach 2 mg/day, and we scheduled an appt for the time frame to check in with her.
4 mg / day is going ok for three weeks now. Have had to bump up to 5 a couple times but the next day right back down to 4. I'm still in the "I can't believe the surgery worked" phase, which is such an incredible feeling. I had just about given up hope for any serious improvement. Life is good again.
best,
Kevin
Have you had shingles? If so, it could be postherpetic neuralgia which I've had on my scalp since my shingles outbreak there healed.
I had this happen in my sleep also, but it sounded like a dog barked right in my ear. I was so disoriented to wake up (not from a dream, but a loud noise). It happened 2 days before I completely and suddenly loss my hearing in one ear. Several weeks later, the noise occurred again, but I haven't had any other notable side effects. I'm checking into candidacy for a cochlear implant for my ear that lost all hearing (sudden hearing loss).
Can it be Meniers disease?
This is a form of neuropathy. After experiencing Guerlain Barre for the second time in 2010, I live with pins and needles and burning sensations on my skin and especially on my scalp. It can even wake me out of deep sleep. I do take (off label) Peroxetine daily which helps tone it down. Sometime I just have to massage it till it stops.