"Electric Shock" type pain in my scalp!
It feels like someone is touching my scalp with an electric wire or prod. Like a "zap" and then it takes a few seconds to get over it. It happens 2 or more times per MINUTE! It lastes for a couple of days usually and when it goes away it takes a few more days for my scalp not to be sore. I don't know how many times a year it occurs but when it does, like today, it drives me crazy. I walk around making weird faces and people stare at me. They think I have a headache or migrain but I don't, the pain is only on my scalp not IN my head. Sometimes the shocks occur over and over for a minute, then go back to 2 or more times per minute. It's the weirdest thing and I can't wait for it to be over. I never know when it's going to occur or what brings it on. Anyone ever heard of something like this?
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Are you talking about Minears Disease. I was driving and my husband was passenger. Suddenly everything was spinning . We were at stop sign thank God. In the early stages I spent time in bed. I have not had attack on at least 10 yrs
@oregongirl no just the tinnutis in ears rings all the time I never had Minears disease but since Im older now when I bend over I get spinning I think with Minears you vomit I don't.
thank you Jesus, I have found someone that has the same thing! The only difference is mine is specifically around the scalp on the front of my forehead down to my temples around my hairline. I have ask my neurologist about this twice and they have not a clue what it is. It's extremely painful, what have your doctors told you?
Mine is an explosion that wakes me up. Google that. I asked my dr and he looked at me like I was crazy. It finally stopped. It scared me.
@marilyntrevino are you sure this isnt Shingles? What has your Dr said? For everyone out there if you,ve had the herpes simplex from chickenpox or cold sores get a shingle shot if your Dr recommends .
Hi, Marilyn. I have the same electric shock. Mine usually goes from the back of my head down to my toes, or either foot. It has knocked me down a half dozen times, and hit me probably 30 times total. I am pretty certain mine is from Amyloidosis fibrils invading the nerves, specifically the Vagus nerve, and some others on occasion. I also suspect this is the cause of Amyloidosis Cardiac Sudden Death, when the fibrils push the wires apart, and the control nerves cannot deliver the signal for the heart to beat. The shock could be when wires get crossed under the myelin sheath, or get crossed in the brain under the impact of CAA (Cerebral Amyloid Angiopathy). It usually hits when my eyes are seeing flashing lights when there are none there, and the pain in my left chest is bad. I suggest you ask your doc to order a Bindings Site sFLC (Serum FreeLiteChain) assay as a starter, to see if you have excess mis-folded protein particles, kappa or lambda) in you blood serum. The reference range for Kappa runs up to 1.65 mg/deciliter. Mine runs around 2.75-3.00, or up to 30.00 mg/SERUM liter. If so, get thee to Mayo or BU or MD Anderson or another top Amyloidosis clinic. Forgot to say that Metropolol Tartrate seems to help.
I had this in my arms for about 2years, electric shock feeling now I have constant nerve pain in my arms hands n fingers. If I use my arms ect... the pain just gets more intense. I'm very limited in how much I use my arms ect... everyday.
Hello.
I have similar symptoms of occipital neuralgia. For long periods of sitting, the pain in the neck and tingling scalp pain. If it does not lie, this tingling becomes an electric shock. Unfortunately, I have visited many doctors who can't understand my diagnosis. At the same time, I can't work for more than a year. For this reason, I have decided to act on my own responsibility. That's why I want to ask for these Occipital Nerve Block injections. I want to ask what are the possible side effects?
Regards
@bigapp7e I have a lot of the electric shock, but mine starts in my head and runs clear to my toes, left or right. Metropolol tartrate has relieved it some,
Welcome to Connect, @bigapp7e,
I'm tagging @marinelast @so4tune8 @menville @bonnieh218 @ajgray @maddy32 @sun711 @247headache as they've discussed nerve blocks, and may be able to offer some more information.
We have several members talking about occipital neuralgia in this discussion as well:
– Occipital Neuralgia and Basilar Migraines https://connect.mayoclinic.org/discussion/occipital-neuralgia-and-basilar-migraines/
Could you share a few more details, @bigapp7e? When did your symptoms start? How have you managed your symptoms thus far?