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Dealing with memory issues after ECT, and apraxia of speech (PPAOS)
Feeling focus and memory problems post-ECT treatment, over 3 weeks since the last of 13 treatments in 1 month. Diagnosed with ppaos in January.
-Mayo diagnosed me in January with "primary progressive apraxia of speech"
-Mayo recommended I do ECT to mitigate my severe "treatment-resistant" depression.
-I didn't have significant memory & focus problems before ECT only post-ECT
-I am experiencing memory & focus loss (long term & short term), continuing beyond what is the normal length post-ECT.
-The psychiatrist here in Madison Wi recommends a maintenance treatment schedule beginning March 19. I don't want to do it for fear of losing more memory and focus.
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I had a lot of ect. It has caused a lot of short term memory loss too. If you feel that it's not helping, don't do anymore. It's your brain.
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3 Reactions@dossman72
Thank you 🙏🏽
Do you have long term memory loss as well?
I had 22 ect treatment total. It took awhile to get my memory back. Long term memory loss sporadic not memories but names of objects. I still go blank sometimes when I am talking and trying to think of the name of the printer or fork.. my last ect was in 2017. Ect saved my life. Life was exhausting depression suicidal thoughts non stop. Auditory hallucinations. Voices telling me to kill myself.. everyday was a battle.
The depression is still around I take medication. It hasn't been a ongoing battle. I can function. I was desperate . Talk to your Dr about your concerns.. it is your decision. I hope this helps.
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1 Reaction@pfloyd I am battling with finding my words when I am talking as well. I used to have quite a vocabulary but since I have had so many treatments of ECT, approximately 30+ over a few years, I have lost that. Like you I cannot find simple words anymore or I need assistance from friends to find what I am trying to say. I am always embarrassed that I can’t form sentences anymore, this has caused me great hardship, I am not able to work because of this and other things like depression and severe anxiety as a result I don’t want to live like this anymore. I want to give up and throw in the towel because it is not getting any better. My last ECT treatment was approximately 15 years ago and I will never do it again. It did help me with my depression but I don’t believe the trade off was not worth it. I am at the point where I am not sure what to do and have given serious thought to MAID. My doctors say it’s the depression but I know it’s something more am at my whits end. What can I do??
MAID, I want that option.
Of course "it's the depression" that's got me longing for rest and relief.
I have compassion for you and myself and fora others 🙏🏽