Early symptoms prostate issues

Posted by front @front, Aug 20 9:27pm

I feel like an intruder here. I don't have cancer....
...but I could use some advice please.... prostate. ...I have had frequency and urgency for many years but they are increasing notably... the urologist appears casual about it... annual visits...... . Every time I get up from my desk a pit stop is part of the routine.
I see online info showing those two symptoms as a frequent preamble. I am also a caretaker for my wife which complicates the outlook. Thank you ...

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

If you have an urgency problem There are a couple of pills that really make a difference I use myrbetriq but gemtesa works just as well.

I used to wake up at night, two or three times and Feel like I had to pee, but I knew I didn’t. Still got up I did it, but the urgency was just hard to resist. After being on myrbetriq I no longer have to get up at night at all. It relieves the urgency completely. It may take a couple of weeks to become effective. Taking 25 mg twice a day works the best for me, I tried it once a day and that was not enough.

Talk to your doctor about this and request A prescription from him.

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welcome, intruder front.
It is easy to get tested for urinary tract infections. Your primary care doctor could give you an order to use a lab. If you haven't been tested, well, it is a common cause of frequency and urgency. It is best not to ignore the possibility because it can lead to kidney infection, if left untreated.
Some medications can cause urgency and frequency as can caffeine and alcohol beverages. There can be cause in second growth of the prostate which can result in benign prostatic hyperplasia.
Jeff has the best advice.

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As with any other disease, illness, or injury, the first thing you should do when experiencing any symptoms is to get a diagnosis.

The most common cause of the symptoms you’re mentioning is BPH. The older you are, the more likely you’ll have that diagnosis. (In the U.S., BPH affects about 50% of men at age 60y, 70% in their 60s to 70s, 80% to 90% by age 80y, and up to 90% or more by age 90y.)

Not knowing how old you are….., but if you’ve been keeping up with you’re health checkups, you’ve been getting annual PSA tests since you were 45y-50y and have some idea if that’s of any concern (or a “frequent preamble”).

Those symptoms aren’t usually a “frequent preamble” to prostate cancer unless one has not been keeping up with their health, and had allowed prostate cancer to go to a more advanced stage.

Being the caretaker for your wife might not complicate the outlook. (It wouldn't have for me, having caught my prostate cancer relatively early.)

Get a diagnosis. Then come back with the results for more info.

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front,
I could not get your I.D. to come up on MCC (Mayo Community Connect) so I could tag you with a direct response.

Do not even think about being an intruder. Almost all of us on MCC started with issues and no idea if had prostate cancer (P.C.). So you are at home and welcomed.

@gently and @brianjarvis have given you excellent experience with their P.C. and things they considered or learned about testing because of symptoms. You did not list your age but as we age it is common for more prostate issues to arise as I found out myself in my 60s.

Your symptoms could be so many different things. Before you consider taking supplements of medications really need to talk to your doctors about the causes and tests you could have to get a good diagnosis.

Here is my journey with this. I was not having symptoms but my PSA test kept rising indicating per my primary care doctor (PC), something was wrong inside prostate even though my PSA was within normal standards.

He referred me to urologist. Urologist did complete exam not just a digital rectal exam, and found nothing. So he ordered a MRI with contrast. That test showed suspicious areas. I asked what chance of being cancer and was told 70%. I held out hope I was in the 30% but he then ordered a fusion/biopsy that confirmed prostate cancer with a Gleason score of 3+4=7. With that and several test like PSMA, Bone scan, Decipher the diagnosis was low risk prostate cancer and caught early. So my treatment plan was radiation no hormone treatments.

Now 3 years later my PSA is undetectable.

So stay positive but your symptoms' are saying something wrong but no one other than your doctors through their test can give you a diagnosis and hopefully just a treatable BPH, a urinary tract infection, etc. So talk to your doctors about what others had done when they had symptoms.

Good luck!

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I would get this checked by a urologist who cares about it. In 2008 and 2009 I had problems with frequent urination, and then with nighttime incontinence. BPH was the diagnosis. I had a TURP to resolve that, and it worked for the presenting problems. But a key byproduct of the TURP was that in the examination of the prostate debris, a small amount of malignant cancer was found. It was no big deal; my urologist advised active surveillance. Ten years later, my PSA shot up, and I began treatment for PCa. Bottom line, TURP provided the early warning. Whether you wind up needing that or not, get the urination problem checked out. Good luck, here's hoping it's something simple.

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My understanding is every male prostate will enlarge over time. It develops to that urgency to urinate. If you feel your urologist is too casual to your symptoms you always have a choice to see someone else. Hopefully you are keeping up on having an annual PSA completed. Have you ever had an in office prostate exam?

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Profile picture for jc76 @jc76

front,
I could not get your I.D. to come up on MCC (Mayo Community Connect) so I could tag you with a direct response.

Do not even think about being an intruder. Almost all of us on MCC started with issues and no idea if had prostate cancer (P.C.). So you are at home and welcomed.

@gently and @brianjarvis have given you excellent experience with their P.C. and things they considered or learned about testing because of symptoms. You did not list your age but as we age it is common for more prostate issues to arise as I found out myself in my 60s.

Your symptoms could be so many different things. Before you consider taking supplements of medications really need to talk to your doctors about the causes and tests you could have to get a good diagnosis.

Here is my journey with this. I was not having symptoms but my PSA test kept rising indicating per my primary care doctor (PC), something was wrong inside prostate even though my PSA was within normal standards.

He referred me to urologist. Urologist did complete exam not just a digital rectal exam, and found nothing. So he ordered a MRI with contrast. That test showed suspicious areas. I asked what chance of being cancer and was told 70%. I held out hope I was in the 30% but he then ordered a fusion/biopsy that confirmed prostate cancer with a Gleason score of 3+4=7. With that and several test like PSMA, Bone scan, Decipher the diagnosis was low risk prostate cancer and caught early. So my treatment plan was radiation no hormone treatments.

Now 3 years later my PSA is undetectable.

So stay positive but your symptoms' are saying something wrong but no one other than your doctors through their test can give you a diagnosis and hopefully just a treatable BPH, a urinary tract infection, etc. So talk to your doctors about what others had done when they had symptoms.

Good luck!

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@jc76 Sounds like you had a great outcome!!

Curious about your “treatment plan was radiation no hormone treatments. Now 3 years later my PSA is undetectable.”

I’ve never heard of an undetectable PSA after external radiation treatments (without still being on ADT), since the prostate still remains, producing PSA (but at low “new normal” levels. How did “undetectable” happen?

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BPH if it is what you have sneaks up on you over time. I had paid little heed to the symptoms then got fed up with my 5 plus trips the bathroom over night. My sleep was constantly interrupted. I’m now on Flomax which works well if you can get past the side effects. It has improved my situation tremendously. It means also a change in fluid intake, none after 6 pm especially coffee or any caffeinated products. As I said I’m no doctor , but it sure sounds like BPH. Get a consult with an urologist asap.

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Profile picture for brianjarvis @brianjarvis

@jc76 Sounds like you had a great outcome!!

Curious about your “treatment plan was radiation no hormone treatments. Now 3 years later my PSA is undetectable.”

I’ve never heard of an undetectable PSA after external radiation treatments (without still being on ADT), since the prostate still remains, producing PSA (but at low “new normal” levels. How did “undetectable” happen?

Jump to this post

@brianjarvis
Per my Mayo R/O and UHFPTI R/O quite common for those with radiation only to have a non detectable standard PSA test.

What I have seen on MCC (Mayo Community Connect) and from the feedback of my doctors is those who get a low risk Decipher (like me) are routinely given treatment plans that do not have hormones. But this is up to the Urologist and R/Os. I got the same treatment plan by doing a second opinion from another major medical institution and two separate R/Os.

On a standard PSA test, “undetectable” means anything below 0.1 ng/mL. This comes from PCP, Urologist, and my R/Os. The differences in types of PSA test information is available from medical web sites and major medical institutions like Mayo, Cleveland Clinic, John Hopkins.

When I brough this up with my PCP, urologist, R/O they said they decide which PSA test is appropriate for each patient. Per my PCP a patient who had proctectomy, or medium or high risk Decipher along with other parameters medical professionals to use decide treatment plans would get the sensitive test or ultra sensitive test (Mayo's lab can do both).

The sensitive and ultra sensitive PSA test are much more in depth and "sensitive." But I have the ongoing "standard test" with anything below 0.1 ng/mL is considered undetectable. Could I have some PSA show up on a sensitive and ultra sensitive most likely as you said the prostate keeps making PSA when it has not been removed.

I started with a 3.75 PSA. After radiation treatments it slowly went down until if reach undetectable on the standard PSA test.

I hope this answered your question.

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I had your symptoms exactly and took care of my wife. I had such urgency that I started carrying a bottle in my vehicle. I was 68. As others have mentioned, I finally decided to get a diagnosis. Early detection is key. This is not the group I preferred to join, but.....

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