Early dementia or just part of aging?

Posted by cosynook @cosynook, Mar 3 8:43am

Hi! I’m 76 and have worried for years about getting dementia because many of the women in my mother’s family suffered from this. Since childhood I’ve always had what I describe as “ADD concerns” but never had a formal diagnosis. As an adult I considered this but never moved on it because as my husband always said “ Why? You multitask, never miss appointments or get confused driving etc.” But internally I knew I faked a lot. Now I can’t fake things. Now it’s noticeable as I have obvious difficulty remembering /retelling programs/ movies I watched the night before, spelling when I’ve always was a good speller and especially word recall…..I know what I want to use but just can’t recall it . How do I know what’s just an “ aging “ thing or signs of dementia? Does anyone have input or can direct me what to read about this. Thank you all!

Interested in more discussions like this? Go to the Living with Cognitive Impairment Support Group.

Profile picture for rvgranny - Susan @rvgranny

Thanks for posting, as it made me confront uncomfortable moments in experiencing.

At 77, I’m mirroring your concerns. I don’t get lost when driving , but I frequently have to remind myself what errands I’m on when I go to town.

Pretty sure I would have been deemed ADHD if a diagnosis were available in my childhood. I make lists, and then lists of which lists to prioritise. Then I take pictures of my lists, because I will forget to take them (dang, the AI word prompts are so accurate: scary).

Not getting things done is my most destructive and frustrating trait. Not new, but worsening each year. Like reading posts now, when I should be doing bookwork.

Really no one I can discuss my concerns with (no close friends or family), and I am reluctant to seek professional help. Pretty sure I worry about things that would not trouble a younger person.

Should really be a branch of geriatrics dedicated to coping with this time of everyone’s’ life. I would definitely be interested in attending classes or groups to learn how to cope better. Anonymity of the crowd… “asking for a friend.”

On the upside, I enjoy yard work, keep abreast of the news via apps like NYT and local news, listen to a wide variety of audiobooks, attend church, and belong to two service clubs.

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@rvgranny Nice hearing from you. The older we get, the invisible we seem to become. We've moved quite a bit and made/lost many friends along the way. That's how the world is these days. I just got results from my PET Scan and am moving forward with the Leqembi infusions as soon as my doctor sets it up. I too still do everything--drive, cook, play mj, dominoes, go out to dinner and music events, but I'm not kidding myself. All the tests point to clouds in my future and I intend to proactively ward them away for as long as I can. I always keep a list of what I'm going out to get. I always leave my keys in one specific place now and I get comfort knowing where they are at any given time. I leave a small light on in my kitchen if I have something on the back burner just in case...ain't life grand?

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Profile picture for rvgranny - Susan @rvgranny

@gloaming even as a teenager I could not hold a phone number in my dyslexic brain long enough to write it down or dial. Unless it had a pattern or prompted a tune.

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@rvgranny

Me too. Not then and not now.

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Profile picture for midnightwalker @midnightwalker

@rvgranny Nice hearing from you. The older we get, the invisible we seem to become. We've moved quite a bit and made/lost many friends along the way. That's how the world is these days. I just got results from my PET Scan and am moving forward with the Leqembi infusions as soon as my doctor sets it up. I too still do everything--drive, cook, play mj, dominoes, go out to dinner and music events, but I'm not kidding myself. All the tests point to clouds in my future and I intend to proactively ward them away for as long as I can. I always keep a list of what I'm going out to get. I always leave my keys in one specific place now and I get comfort knowing where they are at any given time. I leave a small light on in my kitchen if I have something on the back burner just in case...ain't life grand?

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@midnightwalker the little light on is a good idea. I almost boiled all the water off the hardboiled eggs today, when I got sidetracked by a phone call and then went out on the patio to read emails. Best wishes on your journey

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Profile picture for rvgranny - Susan @rvgranny

@midnightwalker the little light on is a good idea. I almost boiled all the water off the hardboiled eggs today, when I got sidetracked by a phone call and then went out on the patio to read emails. Best wishes on your journey

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@rvgranny Nice hearing from you. I am now scheduled to begin Leqembi next week so will start this new part of the journey. Slightly apprehensive but looking forward to doing "something" at least. I have a relative going through some tough times and found myself worrying and texting another relative most of yesterday...At dinner (still daylight so no light on above the stove) I left a warm burner on for about an hour after we finished dinner, forgot I had a load of wet clothes to dry until I was heading to bed and upon checking to make sure the garage door was down, found it up!!! So although I only have a 50 watt bulb light left on in my brain, I realize that I need to STOP worrying about things I have no control over. So, no more trying to figure out other people's issues ad nauseam... It's a hard pill to swallow because I think I can solve everyone's problems and now I see it only clouds what I need to keep track of. Enjoy this beautiful day and nice talking with you.

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Profile picture for midnightwalker @midnightwalker

@rvgranny Nice hearing from you. I am now scheduled to begin Leqembi next week so will start this new part of the journey. Slightly apprehensive but looking forward to doing "something" at least. I have a relative going through some tough times and found myself worrying and texting another relative most of yesterday...At dinner (still daylight so no light on above the stove) I left a warm burner on for about an hour after we finished dinner, forgot I had a load of wet clothes to dry until I was heading to bed and upon checking to make sure the garage door was down, found it up!!! So although I only have a 50 watt bulb light left on in my brain, I realize that I need to STOP worrying about things I have no control over. So, no more trying to figure out other people's issues ad nauseam... It's a hard pill to swallow because I think I can solve everyone's problems and now I see it only clouds what I need to keep track of. Enjoy this beautiful day and nice talking with you.

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@midnightwalker Well, had my first Leqembi and getting my second one tomorrow. Big headache, chills, etc on the first one, but now I'll take /Tylenol and Benadryl first thing in the morning before I go in. Otherwise no big deal so far. Even drove home with husband watching me...One more time with him, then I'll go solo as it's only about 7 miles. Feeling good. No complaints about the infusion itself either.

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Profile picture for midnightwalker @midnightwalker

@midnightwalker Well, had my first Leqembi and getting my second one tomorrow. Big headache, chills, etc on the first one, but now I'll take /Tylenol and Benadryl first thing in the morning before I go in. Otherwise no big deal so far. Even drove home with husband watching me...One more time with him, then I'll go solo as it's only about 7 miles. Feeling good. No complaints about the infusion itself either.

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midnightwalker I had my 2nd Leqembi and took a Tylenol before I went it. I did not take a Claritin but now I've learned. When I got home, I had no headache although it did appear later in the day and I took another Tylenol. I will take a Claritin from now on because the chills came back and I just went to bed. The second day, I was tired but just took it easy...Now I get the MRI which is a week before the 3rd infusion. Will keep in touch as this progresses. I hope to hear from others on Leqembi to hear how they are doing.

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