Dr said Good news Bad news

To answer a few questions:
During this several year journey genetic etc. testing not done. Will ask the Dr about it.
Was given a three month shot of Lupron before 33 radiation treatments. Hot flashes and tired but the major thing was the mental fog. Wife was ready to move out and I was having trouble remembering where I was at while driving, could not think straight. Told the Dr no on the second shot.
Since no cancer showed on the scan the Dr suggested six weeks of ORGOVYX to see how I am dealing with the side effects. Will add an second ADT if I can handle the side effects. He also mentioned waiting until the PSA was considerably higher so the cancer might be detected with the scan. I didn't want to wait until the PSA reached the 5 to 10 range. We were hoping the scan would show a tumor that could be radiated, clear scan was unexpected.

Still not clear on what treatment is best. Dr Kwon said don't treat if you do not know where the cancer is. I have watched several of his you tube videos but have not seen him discuss treatments if PSA is rising with clear scan.
I made that mistake with prostate bed radiation. Now if cancer does show up there Dr said can not be radiated again.

Thinking about a second option but not sure who to contact. Does anyone have experience with Dr Scholz in LA?

@kujhawk1978
I've said this before on other threads.

My urologist is surprised that I am doing as well as I am. I was diagnosed with a PSA of 54.0 and with local metastasis. He refuses to talk to me about supplements other than Calcium, Vitamins D3 and C. But, he does mention that I should keep on doing whatever I am doing.

So, I talk about Turkey tail and its constituents PSP and PSK freely so that others may consider it.

BTW The Turkey tail I consume is from both foraged mushrooms that I collect and products that I purchase when I run out of what I have gathered from the local woods.

@ededed

I got to this point in the article...

"It is worth noting that the administration of PSPs through oral feeding to transgenic mice that naturally develop prostate tumours resulted in the complete suppression of prostate tumour growth. This finding suggests that PSPs may serve as a potent chemopreventive agent against prostate cancer, potentially by targeting..."

I am here 12 years after my diagnosis because I applied the science in making my treatment decisions.

Never has my medical team, a very trained, educated and existences group brought up anything other than science backed treatment.

That's not to say they were against supplements, just not advocating for them as having a role in managing one's PCa.

Sure, exercise plays a role in our health. So does diet, managing stress...
I see no scientific evidence as I suggested be the basis for making decision...

@wwsmith

I've posted about that, others mention it. Guidelines such as NCCN and AUA are he science, because of their rigor It is that rigor which may in some, not all cases, "outdated," lagging behind data emerging from clinical trials.

Then there's statistics, they are historical and population based, egro, may not be applicable because of their historical nature given the pace of advances brought about through medical research finding its way into mainstream clinical practice.

I do think they are a starting point for discussions with one's medical team.

My last two decisions, triplet therapy starting in Jan 17 and doublet therapy in 2023 have been "hybrid decisions." part NCCN and AUA guidelines and part treatments entering mainstream clinical practice from medical research.

My oncologist, a good one, active listener, shared decision making, advocates the next time for 24 months ADT+ARI which is in the guidelines. I counter with well, let's see when the time comes what the clinical data says and then decide, we could do MDT only, MDT +ADT, do the PATCH Trial, ARI mono therapy, heck, bring forward Lutetium 177 and combine it with ADT.

So many choices, good for a heterogenous disease and a heterogenous patient population!

@kujhawk1978 Kevin, Most of the articles advocating for Turkey Tail mushrooms is for supplementary use ONLY. This is NOT a stand alone treatment and as of right now, I have not seen any studies where it is being used in humans as a sole treatment. They do use it in Japan for breast cancer and women take up to 9 grams/day along with chemotherapy.
As I pointed out on another thread, please do the math on what an equivalent human dose would be as compared to mice in the case of PCa: something like 25 grams/day.
You’d need almost an entire bottle (60 500mg capsules) PER DAY at like anywhere from $25-$45 depending…and needless to say, totally out of pocket. Is this realistic for most men??
Phil

@heavyphil

Phil

Thanx.

I understand supplements though generally, not sure of the value, but, that's me. When I started ADT the first time, my urologist perfunctorily said to take Vitamin D...I said, well are we going to get a baseline bone density scan and labs to determine where I am and when do we assess whether or not the ADT has changed that baseline where I need supplemental Vitamin D3.

I said given my exercise regimen, do I need to take a Vitamin D3 supplement?

He did the bone density scan and labs, repeated at six, 12 and months, no issues.

My concern was with the statement "Turkey tail mushrooms have been shown to suppress or kill prostate cancer stem cells....). I simply asked for the links to the research backing that statement up,

Kevin

@heavyphil

Phil

Thanx.

I understand supplements though generally, not sure of the value, but, that's me. When I started ADT the first time, my urologist perfunctorily said to take Vitamin D...I said, well are we going to get a baseline bone density scan and labs to determine where I am and when do we assess whether or not the ADT has changed that baseline where I need supplemental Vitamin D3.

I said given my exercise regimen, do I need to take a Vitamin D3 supplement?

He did the bone density scan and labs, repeated at six, 12 and months, no issues.

My concern was with the statement "Turkey tail mushrooms have been shown to suppress or kill prostate cancer stem cells....). I simply asked for the links to the research backing that statement up,

Kevin

To answer a few questions:
During this several year journey genetic etc. testing not done. Will ask the Dr about it.
Was given a three month shot of Lupron before 33 radiation treatments. Hot flashes and tired but the major thing was the mental fog. Wife was ready to move out and I was having trouble remembering where I was at while driving, could not think straight. Told the Dr no on the second shot.
Since no cancer showed on the scan the Dr suggested six weeks of ORGOVYX to see how I am dealing with the side effects. Will add an second ADT if I can handle the side effects. He also mentioned waiting until the PSA was considerably higher so the cancer might be detected with the scan. I didn't want to wait until the PSA reached the 5 to 10 range. We were hoping the scan would show a tumor that could be radiated, clear scan was unexpected.

Still not clear on what treatment is best. Dr Kwon said don't treat if you do not know where the cancer is. I have watched several of his you tube videos but have not seen him discuss treatments if PSA is rising with clear scan.
I made that mistake with prostate bed radiation. Now if cancer does show up there Dr said can not be radiated again.

Thinking about a second option but not sure who to contact. Does anyone have experience with Dr Scholz in LA?