Dosage Adjustments On Tymlos Pen
I recently started using the Tymlos pen. I am on the beginning of
the second pen. I have been on the full dosage and the
side effects have been horrendous. I am 5 foot, 1 inch and
weigh 110 pounds. I asked my doc and the pharmacist at the
specialty pharmacy about starting at a lower dose. They both said
the pen only administers the full dose.
Now I am reading that people have adjusted the dose on the
Tymlos pen by using clicks. Can someone please explain to me
how to do this. Your help is much appreciated. Thanks.
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My doctor, the company and the pharmacist all told me that it is fine to use it past 30 days if it is refrigerated the whole time.
I have been using Tymlos for almost 3 weeks. I didn't know that I could lower the dose and started with 80 and my heart went wild, pounding and pressure/pain. This forum suggested I go to 40 (4 clicks) and I have been doing that but my heart is still thumping and irratic for about an hour after taking it. I am currently wearing a holter monitor and will see what cardiology has to say today. I would not increase to 6 yet if I were you. Stay on 4 clicks (40 mcg) for several days to see if the effect on your heart lessons. Good luck.
Beanieone,
I don't think the pens last much longer than 30 days. I was on 2 clicks and used the pen for 60 days. When I started the next pen all of my side effects came back, so I figured it was stronger. I always refrigerate. Now I'm on 4 clicks and only let it go afew days or a week past 30 days, and I can't tell any difference with the new pen.
@zygote maybe you could go down to two clicks for a week or two and move up more slowly.
I used pens for 5 weeks. With the approval of doc, and Radius. But only if refrigerated and I kept it cold when I visited kids with cold packs and cooler (wrapped the box in a hand towel).
Hi,
I have really appreciated the info about starting with a lower dose, letting your body adjust. I did my first dose today. I believe I was one click below the full 80mg dose. But I didn’t feel anything. No dizziness, no rapid heartbeat, no headache or nausea. I will try again tomorrow at the same dose.
@fresuab1 if you have no reaction to 70mcg that is great! I had 20% gain in my spine on that dose. You will probably be able to do 80 anyway.
Well, I may not have judged the clicks correctly. I will go more slowly next time. I went all the way to 80 and then to what I thought was one click down from there.
I also requested the extra fine needles based on advice I found here. I hardly felt the injection, which was nice.
I just started Tymlos a week ago and this is the first I've heard of adjusting the dose with "clicks" on the pen. Are there any instructions from Tymlos?
no, @hudsonlady, you have to get the instructions here from @windyshores.
@hudsonlady many people don't need to start at a low dose of Tymlos. It's fine to start with a full dose or half dose and see how you do. Ramping up with dose adjustments may not eliminate side effects either: for me starting low and moving up on dose made it possible/tolerable to do.
This is not a studied protocol and the company, Radius, is not going to recommend it. Many doctors won't either. I think I brought the idea to the forum a few years back but never intended everyone to do it or to suggest that folks should stay at a lower dose to avoid all side effects.
My doctor has patients do this when necessary rather than quitting- which I almost did! He watched me try to get on various meds over 16 years and was happy that anything helped!
As for instructions: it is very individual. I tried a half dose and has trouble. I went down to two clicks and maybe every week or so went up a click. I ended up at 7 clicks most of the time, and 6 if I had something important to do. Oddly I could never tolerate 8 clicks (I did that maybe three times total in two years).
ps We are all increasing Radius' business since some of us would have quit!!!!