1. < Prostate Cancer

Does the Mayo clinic strictly follow the FDA guidelines for Pluvicto?

Posted by rockey99 @rockey99, Jan 30 4:53pm

FDA guidelines for Pluvicto say the patient must first undergo chemotherapy but I have read comments from patients saying that they got access to Pluvicto without any chemotherapy.
Are all prostate cancer patients required by the Mayo Clinic to undergo chemotherapy or is it up to the doctor to decide whether to prescribe it? Does the Mayo clinic prevent its doctors from prescribing Pluvicto before chemotherapy?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

redroadtraveler | @redroadtraveler | Feb 14 6:15am

I've not looked at the cpm scale. I use the primary reading shown, which is what they use to "discharge" you after a treatment. They wait until it hovers around 3 at three feet and then tell you that you are good to go.

I just had my second treatment a week ago. My current reading at three feet is around .2 to .3. Obviously the closer you get to the body the higher the reading and the further away you get the lower the reading. Currently, at one week from treatment I am .2 to .3 at the three foot range with no reading at all once you get out to about six feet away.

Your lead apron is a great idea!

Let's keep in touch.

I will do my two week readings in a week and let you know for comparison if you will send me your email.

REPLY
1 reply
kjbushur | @kjbushur | Feb 14 8:40am
In reply to @lovemydadchu "Had a question for you. My first post. My dad had his first pluvicto over two..." + (show)
@lovemydadchu

Had a question for you. My first post. My dad had his first pluvicto over two weeks ago on jan 29 (day 0). We also bought a nice geiger counter on amazon from someones rec in this group. I also bought a lead apron as I transport my dad in a wheelchair to treatments and am closer than 3 feet from him. Just measured him today (day 15), and still getting readings when i place the geiger counter on his body around 2200 CPM. Some areas on his body are less. Did your levels ever come down after a week to the safe zone? Ours said around less than 50 is normal. If we sit 3 feet away, we are at a normal range.

Jump to this post

Reading about this treatment and talking with thr Dr's I was told to drink lots of liquids and urinate as much as possible, more than usual to evacuate the product.
So, is he urinating mire then usual

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 14 8:47am
In reply to @redroadtraveler "I've not looked at the cpm scale. I use the primary reading shown, which is what..." + (show)
@redroadtraveler

I've not looked at the cpm scale. I use the primary reading shown, which is what they use to "discharge" you after a treatment. They wait until it hovers around 3 at three feet and then tell you that you are good to go.

I just had my second treatment a week ago. My current reading at three feet is around .2 to .3. Obviously the closer you get to the body the higher the reading and the further away you get the lower the reading. Currently, at one week from treatment I am .2 to .3 at the three foot range with no reading at all once you get out to about six feet away.

Your lead apron is a great idea!

Let's keep in touch.

I will do my two week readings in a week and let you know for comparison if you will send me your email.

Jump to this post

@redroadtraveler, if you wish to exchange personal contact information, please use the private message function. It's more secure that posting emails or phone numbers on the public forum. Click a member's username to send a private message.

Naturally, I feel obliged to point out that by sharing on the forum, your messages benefit many and we can all learn from each other. 🙂

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lovemydadchu | @lovemydadchu | Feb 14 7:43pm
In reply to @kjbushur "Reading about this treatment and talking with thr Dr's I was told to drink lots of..." + (show)
@kjbushur

Reading about this treatment and talking with thr Dr's I was told to drink lots of liquids and urinate as much as possible, more than usual to evacuate the product.
So, is he urinating mire then usual

Jump to this post

Esp the first few days, I encouraged my Dad to drink more fluids. He has extensive cancer in his left pelvis, and thus has difficulty walking, needing a cane. Don't know for sure how much he drank, and how much more he is urinating, but I did encourage him to have more than usual.

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1 reply
kjbushur | @kjbushur | Feb 15 12:23pm
In reply to @lovemydadchu "Esp the first few days, I encouraged my Dad to drink more fluids. He has extensive..." + (show)
@lovemydadchu

Esp the first few days, I encouraged my Dad to drink more fluids. He has extensive cancer in his left pelvis, and thus has difficulty walking, needing a cane. Don't know for sure how much he drank, and how much more he is urinating, but I did encourage him to have more than usual.

Jump to this post

My cancer for the mist part is in my spine and left hip and leg. The pain in my hip at times is unbearable
Best wishes to us all

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