Crohn’s & PSC: Questions about medication and natural treatments

Posted by sandyjr @sandyjr, Nov 12, 2019

My adult daughter who has Crohn’s and PSC is taking about 10 prescription medicines. The PSC seems to be in its early stages and right now her concerns are about the Crohn’s. She was in remission for about 20 years and then last year she had a very bad flare that resulted in surgery. The surgery helped with the Crohn’s symptoms, but her bloodwork is all over the place with too many levels being either high or low. I want her to seek a second opinion but she is resisting that. Is it normal for a Crohn’s patient to be taking this much medicine?

Hello, I was diagnosed with Crohn's disease 3 years ago and since then I have been taking Humira to manage symptoms (currently 1 injection/week).
After recent colonoscopy (end of March) I was told to undergo ileocolic resection surgery in 3-6 months as there is a stricture formation in ascending colon and IC valve is also strictured & ulcerated. Stricture in ascending colon has worse since colonoscopy in Nov 2019. Based on stricture location in ascending colon surgeon may perform Hemicolectomy.
Currently I have no symptoms or abdominal pain except occasional flare which is common in Crohn’s. I am not sure if I need a surgery or alternate medication can fix stricture and ulceration. Please help or share your experience if you had similar surgery. Thanks You!

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@awanay

Hello, I was diagnosed with Crohn's disease 3 years ago and since then I have been taking Humira to manage symptoms (currently 1 injection/week).
After recent colonoscopy (end of March) I was told to undergo ileocolic resection surgery in 3-6 months as there is a stricture formation in ascending colon and IC valve is also strictured & ulcerated. Stricture in ascending colon has worse since colonoscopy in Nov 2019. Based on stricture location in ascending colon surgeon may perform Hemicolectomy.
Currently I have no symptoms or abdominal pain except occasional flare which is common in Crohn’s. I am not sure if I need a surgery or alternate medication can fix stricture and ulceration. Please help or share your experience if you had similar surgery. Thanks You!

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Hi @awanay and welcome to Mayo Clinic Connect. I wanted to introduce you to @sandyjr who's daughter is experiencing something similar. You will see that I moved your post to the discussion that is talking about the same subject. I did this so you can connect with the members who can share their personal experience with Crohn's.
Do you know if there is a medication that can help with ulcerations?

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My cousin has Crohn’s disease and suffers with really bad morning pain and pain throughout the day, she has been on Stelara but i don’t think it’s doing anything. Her pain is unbearable in the mornings, anyone else suffer from bad mornings and have any tips?;( my heart breaks

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@xoxoxo101

My cousin has Crohn’s disease and suffers with really bad morning pain and pain throughout the day, she has been on Stelara but i don’t think it’s doing anything. Her pain is unbearable in the mornings, anyone else suffer from bad mornings and have any tips?;( my heart breaks

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@xoxoxo101, Welcome to Connect. You are so kind and caring to inquire about your cousin. I imagine it is very upsetting for you to be witness to her pain in the mornings. I don't have any experience with Crohn's so I have no tips to offer to you. However I do have a link to information about Crohn's Disease from the Mayo Clinic Patient Care & Health Information> Diseases & Conditions.
https://www.mayoclinic.org/diseases-conditions/crohns-disease/symptoms-causes/syc-20353304
I hope that by sending this information, you can read it and talk to her about what she is experiencing, and whether she might want to discuss in more detail with her doctor. How does that sound? Do you see her often or live near her?

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