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Does Diet Help Control Collagenous Colitis?

Posted by mrstree65 @mrstree65, Mar 11 8:43am

Hi! I just finished an 8 week course of budesonide for a recent collagenous colitis diagnosis. My GI Dr. insists that diet has no affect on it. I find this confusing, based on what I've read on various sites. I am currently avoiding gluten, full fat dairy, nuts, seeds, caffeine, alcohol and most raw fruits and raw vegetables. Is he correct? I'd love a salad and a glass of wine!

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debhammel | @debhammel | Mar 13 7:24am
In reply to @lisalucier "Hi, @mrstree65 - a salad and a glass of wine sound good to me, too! Glad..." + (show)
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Hi, @mrstree65 - a salad and a glass of wine sound good to me, too! Glad you asked this question about diet and its effect on collagenous colitis, and if it's helpful to avoid foods such as avoiding gluten, full fat dairy, nuts, seeds, caffeine, alcohol and most raw fruits and raw vegetables.

Mayo Clinic has an article on microscopic colitis, under which fall both collagenous colitis and lymphocytic colitis:

- Microscopic colitis https://www.mayoclinic.org/diseases-conditions/microscopic-colitis/symptoms-causes/syc-20351478

You will note that it does talk about diet on the Diagnosis and Treatment tab.

I'd like to tag others who've talked about collagenous colitis who may have input on what they have or have not done with their diets in light of their collagenous colitis diagnoses: @maryannlulu @debhammel @fdixon63 @joy4trees @pb50 @astaingegerdm @carolyne.

mrstree65 - you said that prior to this you were active, but now you are afraid of triggering another flareup by eating the wrong things. Does this mean you are mostly housebound, these days, or only go a few places?

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@lisalucier - thanks for including me on this one.

I was diagnosed in October 2023 (along with Exocrine Pancreatic Insufficiency and Essential Thrombocytosis so it's been an interesting journey).

I remain on 3 mg Budesonide daily and expect to remain on it indefinitely. Diet has been a challenge but generally I find that I cannot eat raw vegetables (and I was a salad lover) with the exception of soft lettuces and I keep that to a minimum. No dried beans like kidney, pinto, garbanzo, etc. Even when I soak them for 24 hours before cooking, they give me trouble. Tomato sauce is also a trigger. I do indulge in one glass of wine with dinner on the weekend and that seems to be okay. My go-tos are chicken (no skin or visible fat); fish including shellfish; potatoes (although I need to watch this as I tend towards high potassium levels); green beans; well-cooked broccoli, cabbage, carrots, asparagus and other similar vegetables. I also eat lean beef and pork occasionally with no obvious problems. I eat well-cooked oatmeal for breakfast. Eggs are a life saver and I eat them several times a week. I minimize gluten-containing foods and dairy. I do drink decaf coffee once a day in the morning. Unfortunately, even with all this my collagenous colitis is not well-controlled although it is manageable with Immodium. I have an appointment with my GI at the end of this month to discuss what else we might do.

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