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Does anyone out there have Primary Orthostatic Tremor?

Posted by bevnix @bevnix, 5 days ago

I have Primary Orthostatic Tremor. I have had it since 2013.
I would like to share discussions with others that have this rare disorder.
Beverly J Nixon
Maine

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ocogram | @ocogram | 2 days ago
In reply to @bevnix "Yes, My legs ache now,they didn't the first few years. I have to sit down for..." + (show)
@bevnix

Yes,
My legs ache now,they didn't the first few years.
I have to sit down for everything!
I have groceries delivered, can't possibly stand in line.
I have tried many meds, nothing works.
Bev Maine

Jump to this post

Bev, do you have anyone at your home to assist you? I am fortunate that my husband does the driving, grocery shopping (like you, I can’t stand in line!), helps with cooking and housework. I also have chronic daily migraines. So I am home most of the time. This is not how I had envisioned my senior years.
Barb

REPLY
1 reply
bevnix | @bevnix | 2 days ago
In reply to @ocogram "Bev, do you have anyone at your home to assist you? I am fortunate that my..." + (show)
@ocogram

Bev, do you have anyone at your home to assist you? I am fortunate that my husband does the driving, grocery shopping (like you, I can’t stand in line!), helps with cooking and housework. I also have chronic daily migraines. So I am home most of the time. This is not how I had envisioned my senior years.
Barb

Jump to this post

No,I live alone since 2010.
I can do housework a little at a time. We just have to keep trying and hoping a new breakthrough will come.
🙂

REPLY
johnoclark | @johnoclark | 2 days ago
In reply to @bevnix "Yes, My legs ache now,they didn't the first few years. I have to sit down for..." + (show)
@bevnix

Yes,
My legs ache now,they didn't the first few years.
I have to sit down for everything!
I have groceries delivered, can't possibly stand in line.
I have tried many meds, nothing works.
Bev Maine

Jump to this post

Have you tried Mestinon?

REPLY
bevnix | @bevnix | 1 day ago

No,I don't think it helps Primary Orthostatic Tremor but I will check with my neurologist.
Thank you.

REPLY
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