Does anyone out there have Primary Orthostatic Tremor?

I have been dxed with Dysautonomia and I have tremors. Interested in this too?

No thanks, I looked this up and it isn't anything like
Primary Orthostatic Tremor.
Thank you!

Have you tried Mestinon?

Hello,
No my neurologist never mentioned that med.for shaking.
Thank you

I was diagnosed with Orthostatic Tremor in 2017 at age 70. It definitely changed my life! Standing is so difficult and stressful. You no doubt experience this as well.
Barb in Wisconsin

I have FND, Functional Neurological Disorder.
My tremors start when I become stressed, and stop when I distract my brain. I was taught by my neurologist to simply tap my thumb and index finger (on either hand) together. The tremors stop almost immediately.

I don’t know about your disease, but if tapping works that would be awesome

I will try this,anything is worth a try!
Thank you 😊

I feel for you Barb,
I have been progressing since 2013.I have to plan every move each day.I miss doing things I used to love.Take care of yourself.
Bev Maine.
PS No one understands because we look fine.

Beverly,
I have been progressing also. Every household task is now so challenging. (Example: I just got a load of laundry together and in the washer, and I had to sit down). I have been experiencing leg muscle pain, which is also progressing and happens even when I sit or lie down at night. Our leg muscles are so overworked just trying to keep our balance when standing. I agree with your statement” No one understands because we look fine.”

Yes,
My legs ache now,they didn't the first few years.
I have to sit down for everything!
I have groceries delivered, can't possibly stand in line.
I have tried many meds, nothing works.
Bev Maine