Does anyone know of any in person or at least zoom support groups?
I feel like I really need a support group that meets in person or at least through a zoom meeting. I feel very alone. I have mixed connective tissue disease, diabetes, and thyroid disorder.
Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.
in reply to @lhonsby I do not know what your diagnosis is, but the Immune Deficiency Foundation has a ton of monthly zoom meetings that you can participate "in person" or on the phone. You can find more on their website, which is full of some valuable information. Non Profit. Check it out.
Good luck
in reply to@lhonsby I thought of another non profit for you to check out, and it is called, Global Healthy Living. In fact, I just gave my neighbor the name of this group for the same issues you are having. The nonprofit may not have zoom meetings, but they have terrific podcasts on all kinds of autoimmune disorders, and the emails I get from them always seem to have a personal touch if you know what I mean. You can find the group on the internet. Best.
@lhonsby Welcome to Mayo Clinic Connect! This must be a very difficult time for you. I’m so glad you found Mayo Connect. Frances has some great suggestions for you! There are also support groups for the other diseases you mentioned.
https://connect.mayoclinic.org/group/diabetes-and-endocrine-problems/. Members in this support group can probably answer any questions you have about diabetes. When you click on the link, you will find MANY topics and you can go onto a second page.
This group as you can see, is focused on MCTD . You should find some helpful discussions here. https://connect.mayoclinic.org/discussion/mctd-mixed-connective-tissue-disease/
Members of these groups may also know of in-person support groups.
Have you checked with your local hospitals about support groups?
If you have any specific questions, I’m sure someone will pop in to help you.
in reply to @lhonsby Here's some thing interesting.https://autoimmune.org/resource-center/patient-support/support-groups/#:~:text=Find%20your%20support%20group%20through,interests%20and%20find%20your%20community.
I have been a participant and leader of the Highlans Ranch Lupus Support Group for about 20 years. We meet virtually every 3rd sat of the month from 10-12 am MST. Our next meeting is in November. You can google the group information and contact Amber Wall. Since lupus is a part of MCTD, it would be a. good fit. You can PM
Me if you need more info. The group is a great source of information and support. We use Zoom. No meeting Oct 19 as leader is unavailable.
Hello, I usually do not say much at all but I must tell you, I have found a wonderful organization that has zoom meetings every 2,3, and 4th Tuesday. It is Right2Breath. They are mostly copd folks but everyone has something going on, they have people from all over the world join in the meetings, some people have leukemia, some type of cancer, lung diseases, you name it they seem to have it, and what a great group, very positive people and when I really feel down I join a meeting via zoom and feel so much better and even laugh out loud. Please give it a try I do believe you won't feel alone anymore, it's nice to be with people that understand . Every meeting has a different topic and sometimes they have open mic where you can just talk or ask questions. You'll have to sign up on there web site but once your in they will send you a link every meeting to join. Best of luck and your not alone.
Take care,
Teammayo#1