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Does anyone have pyroderma gangrenosum?
I joined this site to try and find someone who has or knows about pyroderma gangrenosum. I have crohns disease and that is how it developed. It's very rare and i Haven't been able to find anyone who has had it. It has completely taken over, and ruined my body. And pretty much my life for going on 3 years now. I'm desperate to find support in having this condition or if anyone has any information...
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I got here with the same question you had, im 28 years old and for about 2 years now I’ve had this nightmare of pg. initially what I thought was a wound from welding spatter burning my leg, turned out to be so much worse. I was fearing it was a brown recluse bite (I wish!) it didn’t even get diagnosed for the first 18 months. I’ve tried so many things but it’s not really shown consistent results, I’m currently back on what I started with which is prednisone, but they are also using some fish skin on my wounds that seem to be making things worse. I see you posted this a while ago but I hope this still reaches you because hearing from someone else who’s had this experience would be sobering.
My husband had this skin condition about 20 years ago. Dermatologist diagnosed it after biopsy showing nothing. He had several sore patches on his lower legs. He was told it is auto immune and there is no treatment. He kept them covered to avoid infection and after about 3 years they all healed leaving ugly scars. They never have returned but he has developed other auto immune diseases. Latest one is psoriatic arthritis.