Does anyone have pyroderma gangrenosum?

I joined this site to try and find someone who has or knows about pyroderma gangrenosum. I have crohns disease and that is how it developed. It's very rare and i Haven't been able to find anyone who has had it. It has completely taken over, and ruined my body. And pretty much my life for going on 3 years now. I'm desperate to find support in having this condition or if anyone has any information...