Does anyone have lymphoma and no measles immunity?

Posted by suerich1989 @suerich1989, Aug 19 4:30pm

Just wondering! Yes I’m the lucky one in that charming situation. Unable to get the MMR vaccine because it’s live attenuated and unsafe. I have Waldenstroms. Debating my options, seeing multiple specialists. If anyone is the same and would like to get in touch, please feel free! I feel like I’m reinventing the wheel. Thanks.

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I have multiple myeloma and had a stem cell transplant January 2025. I am not able to receive any live vaccines for 2 years. It's a scary proposition considering the comeback of measles. I am a dental hygienist and still working 1-2 days a week. My office knows if someone calls in to say they're sick, they will not be in my schedule. But it is scary, none the less.

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No. But I had primary cutaneous marginal zone B-Cell lymphoma and will not go for a shingles vaccine for absolute fear of what may happen afterwards

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I had a stem cell transplant this past February. My transplant team advised me that I cannot have the MMR vaccine for two years since it is a live vaccine.

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Profile picture for steiner @steiner

No. But I had primary cutaneous marginal zone B-Cell lymphoma and will not go for a shingles vaccine for absolute fear of what may happen afterwards

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Would having any kind of immune protection be an option for you?

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Profile picture for coloradored @coloradored

I had a stem cell transplant this past February. My transplant team advised me that I cannot have the MMR vaccine for two years since it is a live vaccine.

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Would you be a candidate for IVIG if you were exposed to measles?

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With the unfortunate reemergence of measles it reminds me in some ways of the beginning of COVID when doctors didn’t want to take responsibility for prescribing since it was so new to them. That seems to be what I’m sensing. They’re fearful of rocking the boat. I’m just trying to protect myself being in an immune compromised state.

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Profile picture for suerich1989 @suerich1989

Would you be a candidate for IVIG if you were exposed to measles?

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At this point, I don't know. I have an appointment with my hematologist/oncologist on Sept 4th & I will ask her about this & post her response.

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Profile picture for suerich1989 @suerich1989

Would having any kind of immune protection be an option for you?

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I’m fearful about putting anything unknown into my blood stream since the incredibly “unexpected” diagnosis of primary cutaneous extra-nodal B-Cell lymphoma non-hodgins cancer diagnosis. So I’m thinking boost my immune system naturally with diet, exercise, sleep and keep stress levels as low as I possibly can under circumstances of my stressful profession. What type of immune protection were you thinking of? Thank you

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A recommendation to get the measles shot popped up in my medical system's app. In July 2024, my scan showed a minor recurrence of nodal marginal zone lymphoma. Fortunately, I found out that the tumors shrank between my July 2024 and July 2025 scans. I have an appointment with PCP next week and will be asking him about whether it's worth it. I don't know if I have immunity at this point.

Vaccine Experience Post Immuno Therapy/Chemo
I received the Pfizer covid shot in 2021. It kicked off my B-cell symptoms that led to my diagnosis. I already had some symptoms, swollen lymph nodes that waxed and waned, and occasional minor weight loss. But the vaccine turned up the volume. However, I've had other vaccines post-treatment, covid, flu, and shingles without any side effects. So, I'm open to at least hearing about getting the vaccine.

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Profile picture for emmiet @emmiet

A recommendation to get the measles shot popped up in my medical system's app. In July 2024, my scan showed a minor recurrence of nodal marginal zone lymphoma. Fortunately, I found out that the tumors shrank between my July 2024 and July 2025 scans. I have an appointment with PCP next week and will be asking him about whether it's worth it. I don't know if I have immunity at this point.

Vaccine Experience Post Immuno Therapy/Chemo
I received the Pfizer covid shot in 2021. It kicked off my B-cell symptoms that led to my diagnosis. I already had some symptoms, swollen lymph nodes that waxed and waned, and occasional minor weight loss. But the vaccine turned up the volume. However, I've had other vaccines post-treatment, covid, flu, and shingles without any side effects. So, I'm open to at least hearing about getting the vaccine.

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I had a diagnosis of Primary Cutaneous Extra-nodal Marginal Zone lymphoma B-Cell non-hodkins cancer which totally blew my mind. It was out of the blue. Totally unexpected. I had a small red dot which appeared on my forehead. It didn’t go away? I was mystified. I thought it’s a pimple. It began to very slowly grow. In 2022 it was a small red nodule (like a spot but rock hard) with a target 🎯 like circle ⭕️ around it. I was told by 3 Consultants it was a basal cell carcinoma and nothing whatsoever to worry about. I asked for MOHs Surgery which they refused me as they said it was completely unnecessary. And they delayed 9 months approximately before they excised it. They actually asked me if I would agree to a nurse excising it and I refused this. Then 4 months after it was excised they telephoned to call me back into the hospital and informed me the biopsy results had come back and it was not a basal cell carcinoma at all!! It was a Primary cutaneous extra-nodal marginal zone B-Cell lymphoma non-Hodgins cancer. I too believe it was the Covid-19 Pfizer shots which kicked off my B-Cell symptoms. I had NO SYMPTOMS beforehand. My symptoms were tiredness/exhaustion and the visible small tumour on my forehead. Last year I stopped boosters for Covid-19, and flu shots. I will not be going for the shingles vaccine either. I have stopped all vaccines. I have been told it was indolent? I’m praying very hard. I’ve had nothing since. I am on watch and wait and blood tests. I have had no x-rays or scans. Was yours a Primary cutaneous extra-nodal marginal zone B-Cell lymphoma non-hodkins cancer?

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