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Does anyone have experience using entrectinib?
Hi!
My husband have a very rear brain tumor with a NTRK2 molecule. He removed all of the tumour beginning of may and did 30 days of radiation. Now the question is if he should do 12 cycles of chemotherapy or try the new medication Entrectinib. Does anyone here use Entrectinib? It looks like it has a lot of bad side effects.
It’s a tuff choice, and I would be grateful to hear if anyone has experience with Entrectinib!
Best regards Cecilie
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@ceciliel, I believe that @lycisca has experience with entrectinib (Rozlytrek), albeit for stage 4 lung cancer.
Cecilie, did your husband decide to try chemo or entrectinib? How is he doing?
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3 Reactions@colleenyoung
Yes, I have six years' experience with entrectinib. I'd be happy to answer questions anyone might have about this drug and it's side effects.
Thank you so much for your answer Colleen and Lycisca!
My husband was advised to drop the chemotherapy and go straight to Entrectinib. He actually started the treatment yesterday. We read a lot about the side effects and they seem pretty bad. That made it a hard decision, since the doctors thought that the chemotherapy would be ok.
But now there is no turning back, and Entrectinib seems like the safest option to avoid a relapse of the cancer tumour.
What is your experience after six years Lycisca? Have you used it constantly, or have you been on and off? What side effects have you experienced? Is it worse in the beginning?
Thank you so much for reaching out, I really appreciate it!
Best regards Cecilie
@colleenyoung
Thank you for your help!
My husband is doing pretty well. Still recovering from the operation and the radiation. We are very anxious to see what side effects he will get from the Entrectinib..
Best wishes Cecilie
@ceciliel. thank you for posting. my name is Burt and I have posted here before. You mentioned a drug that is an alternative to chemotherapy. In previous post, I mentioned that our son is a grade 4 glioblastoma. He has finished radiation and is currently on a rest from his chemotherapy. We will get MRI results on October 12 and the doctors will decide what to do from there. I don’t know if that drug is right for him or not, but I want to learn more about it and we’ll look it up. Also grateful for anything you can share. I empathize with what you are going through. It is very hard that this is our married son. I can’t imagine what it would be like if this was my spouse.