Does anyone have CPPD and osteoarthritis?

Dear Puff, I was diagnosed at the cleveland clinic about 9 months ago with CPPD. I had fluid removed from my right knee after experiencing extreme pain when I got out of the shower. Before that I had been receiving a cortisone shot every 90 days. I have had no problem with my knee until I stepped out of the shower. This past January my knee was hurting along with my hip and ankle. My entire right leg was sore and had me up every hour of the night. I got my shot and x-rayed my hip. My hip was fine. My next shot was to be 90 days later, April 15. For the three weeks before the 15th, my right leg was extremely painful. EXTREMELY PAINFUL! MY thigh and calf were unbelievably painful the day before and both my my ancles were swollen.
My wife made me elevate my legs for about 1/2 hour. I then soaked my feet in Epsom salt with Braggs apple cider vinegar. I felt better after about an hour of soaking. About 8 hours all pain was gone. I soaked again last night and will tonight. almost normal.
The things I have read since my diagnosis said magnesium sometimes helps and I have been taking 500 milligrams a day. The epsom salt is magnesium.
Hey puff it worth a try... I am a new person... mike

I was diagnosed with CPPD in my neck-left side - excruciating pain 24 hrs a day. I’ve trued chiropractic, PT, steroid injection, 6 different painkillers & 2 - 8 day rounds of Prednisone &Colchisine.. None of it worked. The last thing I was on was Prednisone- 40 mg for 5 days & then tapering which lasted a month. It also included 1/2 of . 6 mg of Colchisine. My last prednisone was 4/13. When I started the taper, the pain was back. Now that I’m off Prednisone, the pain is back with a vengeance! So, I am taking 3600 mg Extra Strength Tylenol. It brings the pain to a 5/10 sometimes. But always wakes me up about 3 am with pain. Dr. suggested a longer time on Prednisone, but my side effects were so bad with the longer dose, that I said no. I had bleeding gums, tremors in my hands, & terrible cramping in my feet & hands.
- Hydro chloroquine was also suggested - however I already have GI issues & am pre glaucoma which can be affected by hydrochloroquin. My CPPD was diagnosed after MRI & CT.
Some background - I’m 85 & have never had pain anywhere before & this started in Feb 2025 when I woke up one morning! I don’t have any arthritis or pain anywhere else. I’m also on Eliquis because I had a Pulmonary Embolism in 2024 after a long flight - I follow all of the precautions, compression stockings, walk every hour & still got the blood clot. I don’t see an end to this. Any suggestions are welcome.

Hello. I was finally diagnosed with Chronic CPPD and osteoarthritis after over a decade of being told I just have mild osteoarthritis, "I wish I had your knees!", etc.. It's awful. I started plaquenil 6/5/2026. It hasn't kicked in yet. Added colchicine 0.6mg twice a day a month later. It hasn't helped. Low dose prednisone regimen started also 2 months ago at 10mg a week tapering weekly for 4 weeks and it didn't help. I suspect it was not enough but rheumatologist said he didn't want to disguise the 2 other drugs...whatever. I was hesitant about plaquenil but had the eye exam and on schedule yearly. No GI issues because I have a fiber meal before I take it, whether it be a cup or so of oatmeal with chia and flax or Ezekial toast...a banana...anything with fiber and I'm good. I also added a cup of yogurt and/or kambachu 1/2 cup daily just in case. CPPD strikes at all ages but definitely after 80 years old. That's one of the reasons it's overlooked. I'm still hoping the plaquenil kicks in around the 6 month mark, which is normal, but could take a year. My rheumatologist was more concerned about my DEXA which has showed osteoporosis for years, but I've fallen on the ice several times and, knock on wood, not broken a thing. I tore a tendon in my wrist but the bones were intact. I gave in and started FORTEO daily for 2 years. Started 2 months ago and oh boy....it's created a whole new area of pain. I'm suffering through because the doc insists I'm going to break a hip and then die...I'm 72 years old, female. My brother broke his hip and did indeed die within a year. But I'm a lot healthier and get around a lot better than my brother did. Everything is up to the person. You talk about the cramps...I complained of cramps for years and had to ask for a magnesium test which was always normal, but they were giving me the wrong magnesium test. You have to ask for RBC MAGNESIUM. Mine was low which accounts for the cramps and the CPPD. If my doctors had been on the ball this disease would have been caught 14 years ago and I wouldn't have suffered all of that time. NIH actually diagnosed it by my then rheumatologist said NO, it's Sjogren's Syndrome...which it wasn't. You have to advocate for yourself. At your age, 30-50 percent of the population will have CPPD. There are other treatments, no cures, but they might lower your immune system defenses. Do you have a Rheumatologist? That would be #1...but find one that knows and treats CPPD...they all do not. Let us know what you decide. I am holding out for the plaquenil but am prepared to take the next layer of drugs...I cannot live with this pain the rest of my life...