Does anyone have any questions about papillary thyroid cancer?

Posted by lindaadele @lindaadele, Aug 30, 2025

I am a 25 year survivor of papillary thyroid cancer and have been volunteering for many years answering many questions from people who have papillary thyroid cancer and have questions about it. I would be happy to answer any questions from people who have concerns about thyroid cancer.

Interested in more discussions like this? Go to the Thyroid Cancer Support Group.

You know I read your comment and I’m kind of a very nervous person and I would probably feel like you do but I’m guessing if you were really really worried a lot find a really good thyroid cancer doctor. I would bring a list of questions not too big just a very most important situation‘s that are bothering you the most. It’s amazing that when you find out everything is very good you will feel so much better because I know myself I would get worried about every single thing. my very best wishes to you going forward!!!

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I was diagnosed with papillary thyroid carcinoma in August, 2023 and had a total thyroidectomy in October, 2023. 4.4cm nodule in right thyroid lobe, encapsulated, no lymph involvement. Thyroid bed clear after surgery. Had an ultrasound November, 2025 that noted a nonspecific 5mm nodule in right thyroid bed. Stressing about what this means because I was told I was low risk for recurrence and it could be scar tissue. I also had a low dose of RAI in April 2024. I thought that was supposed to get rid of any remnants of tissue and cells? Finding it hard to wait until May, 2026 for next ultrasound.

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Profile picture for ransom2026 @ransom2026

Does anyone do complimentary treatments like vitamin c iv? I have non reactive papillary cancer.

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@ransom2026, I think you'll find this Mayo Clinc article helpful:
- High-dose vitamin C: Can it kill cancer cells? https://www.mayoclinic.org/diseases-conditions/cancer/expert-answers/alternative-cancer-treatment/faq-20057968

Excerpt:
"There's still no evidence that vitamin C alone can cure cancer, but researchers are studying whether it might boost the effectiveness of other cancer treatments, such as chemotherapy and radiation therapy, or reduce treatment side effects."

More and more cancer centers and oncology specialists are open to discussing and integrating complementary medicine in programs called Integrative Medicine or Integrative Oncology. Integrative medicine can guide you to supplements, therapies and approaches that help manage cancer treatment lasting side effects. Integrative medicince is offered at many cancer centers of excellence, including Mayo Clinic.

Here's a link to more information about Mayo Clinic's Integrative Medicine programs
– Integrative Medicine and Health https://www.mayoclinic.org/departments-centers/integrative-medicine-health/sections/overview/ovc-20464567

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Profile picture for tessma @tessma

Hi, I am 22 and just had hemi done. Had left lobe and isthmus removed bc of two nodules classic papillary type. Clear margins no angio invasion. But left worried because there was lymphatic invasion. Thoughts? They are going to wait and watch it.

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@tessma, if you would like to seek a second opinion at Mayo Clinic, here's how to get started https://mayocl.in/1mtmR63

Is your care team suggesting further treatment?

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Does anyone do complimentary treatments like vitamin c iv? I have non reactive papillary cancer.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@djmlex, we are all so different and have individual responses to drugs. Thanks for posting. When were you diagnosed with thyroid cancer? How are you doing now?

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@colleenyoung Had right side removed 2 months ago - TC PTC with BRAF and TERT mutations. Doing well and will have the other side removed next month.

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Profile picture for djmlex @djmlex

@lindaadele
I take Armour thyroid and one of the misconceptions is that it is not consistent or that could be the Pharm line of reasoning to sell the synthetic version.

I have not had an issue on Armour but Synthroid pushed me deeper into hypothyroidism, raised my cholesterol level, created immense fatigue and brain fog for me.

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@djmlex, we are all so different and have individual responses to drugs. Thanks for posting. When were you diagnosed with thyroid cancer? How are you doing now?

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Profile picture for tessma @tessma

Hi, I am 22 and just had hemi done. Had left lobe and isthmus removed bc of two nodules classic papillary type. Clear margins no angio invasion. But left worried because there was lymphatic invasion. Thoughts? They are going to wait and watch it.

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@tessma if it were me and I was worried I would want to get a second opinion from a doctor that’s very familiar with thyroid cancer it can’t hurt. Good luck to you going forward!!!

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Hi, I am 22 and just had hemi done. Had left lobe and isthmus removed bc of two nodules classic papillary type. Clear margins no angio invasion. But left worried because there was lymphatic invasion. Thoughts? They are going to wait and watch it.

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Profile picture for barbaradalton @barbaradalton

@sophias Yes - setting up an appointment with UofChicago head of endocrine surgery that can see us in January.

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@barbaradalton wow I am so happy that you were able to set up the appointment in January!!! you are definitely on the right road right now and I wish you the very very very best going forward!!! wishing you a very happy holiday season and a very happy new year!!!

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