My dad diagnozed with stage IV lung cancer is being treated with platinium chemo. Based on his description of symthoms he has CIPN caused by Carboplatin and cisplatin.
Reading posts here, i see that many of you go through a tests to determine the exact cause or condition.
Can you please let me know what kind of tests it would be? Should we just assume that it was caused by chemo or doing a test will give us any additional information?
I also read some studies on how people put icy patches on their feet during the chemo. Has anyone tried it?
Hello, @ina3. I'd like to add my welcome to Mayo Clinic Connect.
You may have noticed that I moved your post here to this discussion, "Does anyone have a treatment for Neuropathy due to chemo," so you can connect with others who are talking about chemo-related neuropathy. Hoping they will have some insights from their experiences or those of loved ones especially about the numbness and heaviness your dad has in his feet, and that they can talk about testing they have undergone to determine exact cause or condition, preventative tips and any treatments.
Has your dad's oncologist weighed in on a potential connection between the chemotherapy and the symptoms in his feet? If so, what did he or she say?
Hello, @ina3. I'd like to add my welcome to Mayo Clinic Connect.
You may have noticed that I moved your post here to this discussion, "Does anyone have a treatment for Neuropathy due to chemo," so you can connect with others who are talking about chemo-related neuropathy. Hoping they will have some insights from their experiences or those of loved ones especially about the numbness and heaviness your dad has in his feet, and that they can talk about testing they have undergone to determine exact cause or condition, preventative tips and any treatments.
Has your dad's oncologist weighed in on a potential connection between the chemotherapy and the symptoms in his feet? If so, what did he or she say?
@lisalucier thank you. No, the oncologist did not say much. She asked to see neulogy doctor . Neurology doctor asked us to do blood test on B12. He is going to see the doctor next week and we will know more.
@stanstory these were links from the Stem Cell Therapy for Neuropathy discussion that may hold some promise but I don't know of any clinical trials that have been done specifically for stem cell injections other than for diabetic neuropathy. I'm sure there are a lot of small clinics doing their own thing and not approved by the FDA so you really have to do your own research.
Hi John, I'm getting suspicious email messages as mayo clinic topics but they request that I click on their link to send a private message and get important news from blank@mtellste ....do you think it's spam or malware? If anyone is using Mayo Clinic's help groups to do any such thing then they are pretty rotten. Peggy
Hi John, I'm getting suspicious email messages as mayo clinic topics but they request that I click on their link to send a private message and get important news from blank@mtellste ....do you think it's spam or malware? If anyone is using Mayo Clinic's help groups to do any such thing then they are pretty rotten. Peggy
I got one too. Don’t click on it, I looked up the email address. Definitely a scam. I reported it to Colleen. I couldn’t believe someone would do such a thing on Connect!
Hi John, I'm getting suspicious email messages as mayo clinic topics but they request that I click on their link to send a private message and get important news from blank@mtellste ....do you think it's spam or malware? If anyone is using Mayo Clinic's help groups to do any such thing then they are pretty rotten. Peggy
@pfbacon@athenalee and others - Another member sent me a private message to alert me. I had already received 2 private messages from the scammer this morning and reported them to have them removed. As a rule of thumb, never respond to a request for your email address from a member you do not know, just delete the private message. If you ever want to dig into it you can do a Google search of the persons email address + scam or just by itself and it will usually let you know if the email is being used to send out scam or phishing emails. It is really important to protect and keep your personal information private.
@pfbacon@athenalee and others - Another member sent me a private message to alert me. I had already received 2 private messages from the scammer this morning and reported them to have them removed. As a rule of thumb, never respond to a request for your email address from a member you do not know, just delete the private message. If you ever want to dig into it you can do a Google search of the persons email address + scam or just by itself and it will usually let you know if the email is being used to send out scam or phishing emails. It is really important to protect and keep your personal information private.
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Hello, @ina3. I'd like to add my welcome to Mayo Clinic Connect.
You may have noticed that I moved your post here to this discussion, "Does anyone have a treatment for Neuropathy due to chemo," so you can connect with others who are talking about chemo-related neuropathy. Hoping they will have some insights from their experiences or those of loved ones especially about the numbness and heaviness your dad has in his feet, and that they can talk about testing they have undergone to determine exact cause or condition, preventative tips and any treatments.
Has your dad's oncologist weighed in on a potential connection between the chemotherapy and the symptoms in his feet? If so, what did he or she say?
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2 ReactionsHas anyone research stem cell injections for neuropathy?
@lisalucier thank you. No, the oncologist did not say much. She asked to see neulogy doctor . Neurology doctor asked us to do blood test on B12. He is going to see the doctor next week and we will know more.
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2 Reactions@stanstory these were links from the Stem Cell Therapy for Neuropathy discussion that may hold some promise but I don't know of any clinical trials that have been done specifically for stem cell injections other than for diabetic neuropathy. I'm sure there are a lot of small clinics doing their own thing and not approved by the FDA so you really have to do your own research.
‘Amazing’ New Stem Cell Treatment for Neuropathy (July 2015)
— https://www.painnewsnetwork.org/stories/2015/7/12/amazing-stem-cell-treatment-for-neuropathy
National Institutes of Health – Mesenchymal stem cells to treat diabetic neuropathy: a long and strenuous way from bench to the clinic
— https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4979500/
Here's a couple of other links for more information...
Sizing Up Sizzling FDA Warning Letter to Fat Stem Cell Clinic Stemgenex (Nov 2018)
-- https://ipscell.com/2018/11/sizing-up-sizzling-fda-warning-letter-to-fat-stem-cell-clinic-stemgenex/
FDA Sends Warning Letters To Stem Cell Clinics After A Dozen Patients Became Seriously Ill From Injections (Dec 2018)
-- https://khn.org/morning-breakout/fda-sends-warning-letters-to-stem-cell-clinics-after-a-dozen-patients-became-seriously-ill-from-injections/
My doctor has prescribed Gabapentin, 1200mg. twice a day. Not perfect, but it really helps.
Hi John, I'm getting suspicious email messages as mayo clinic topics but they request that I click on their link to send a private message and get important news from blank@mtellste ....do you think it's spam or malware? If anyone is using Mayo Clinic's help groups to do any such thing then they are pretty rotten. Peggy
I got one too. Don’t click on it, I looked up the email address. Definitely a scam. I reported it to Colleen. I couldn’t believe someone would do such a thing on Connect!
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Hug
2 Reactions@pfbacon @athenalee and others - Another member sent me a private message to alert me. I had already received 2 private messages from the scammer this morning and reported them to have them removed. As a rule of thumb, never respond to a request for your email address from a member you do not know, just delete the private message. If you ever want to dig into it you can do a Google search of the persons email address + scam or just by itself and it will usually let you know if the email is being used to send out scam or phishing emails. It is really important to protect and keep your personal information private.
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Hug
2 ReactionsThank you!
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2 ReactionsThanks. I used the "Delete and Report as Scam" button on my email tool bar. Peggy
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2 Reactions