Anyone have a problem with losing your big toe nail after chemo?

Posted by jeff1957 @jeff1957, Nov 23, 2023

Since completing chemotherapy I have been having trouble with losing the nails on both my big toes. Is anyone else experiencing this problem?

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I am 3 years post lumpectomy, had chemotherapy, radiation and the right breast lumpectomy. Neuropathy started on both feet shortly thereafter starting chemo, but oncologist kept telling me it would go away, it never has and still problems with walking, numbness and in my fingers on both hands. The nails on both large toes turned dark color and eventually fell off. They started growing back but the tip of the nails on both toes did not grow. I continue to have problems finding shoes because the toes touch the shoes and get very painful and turn bright red from the burning. I put cortisone cream and bandaids over them but only short term solution. Podiatrist has no answer, oncologist refers me to my primary who I am going to see and hope I get some relief. Anyone have any solutions. Thank you.

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Profile picture for ffr @ffr

I only recently learned that toe and fingernail fungus can also be a side effect of cancer treatment. Go figure.
And why do we have to learn these things from a patient forum vs from our oncologists?
Just sayin’.

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Because they don't educate us.

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Profile picture for mrsfootdoc @mrsfootdoc

Hi, my name Julie and my husband is a podiatrist for over 25 years so he has seen everything. I did ask him your question regarding big toe nail. He says toenails and hair are the same thing, keratin. When chemo causes you to lose your hair the same effect happens to your toenails and fingernails. Regarding loose toenails he suggested you have your nail removed, preferably by a podiatrist who knows how to do it properly. We do this procedure many times a week due to ingrown nails or loose nails, and fungal toenails. He numbs the skin around your big toe so you do not feel the injection of numbing medication. He places a tourniquet around base of toe to control bleeding, usually hardly any, and then removes nail. He is able to remove the complete nail. This takes all of a few seconds. If you try to hold nail on with bandaid it will usually get caught on something and rip off. When this happens some of the nail bed might be left and cause pain and infection. Also when nail grows without be completely removed it will cause pain, usually infection and more trouble than it’s worth. Especially if you have diabetes of poor circulation. Almost all insurance plans pay for this procedure. At our office for those who do not have insurance we have always worked something out. Doc says it takes about 6 months to completely grow out. ( this is the time for the colored bandaid!) same with fingernails only less time to grow out depending on health status. The toe is sore for few days. Everyone is able to wear shoes, sandals might be more comfortable but we have many people who go back to work next day in steel toe boots. The healing process takes longer and more painful if you let toe get infected, or torn off. NO lose nail will ever grow out normally by being left alone. The blood supply has been compromised so better and cheaper to take care of it sooner than later. I have had toenails removed due to fungus, it is truly not that bad. (Thinking about it is worse than getting it done) Everyone remember, just the same as your hair falling out and growing back, toenails work same way. We all have that period of “strange things that happen after chemo and radiation “ things will get better! If you have any other questions, please don’t hesitate to message me. I have a very good source of information sitting on my couch!
Take Care… Julie Hart

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Excellent info ( you have a great reference on the couch beside you )

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I only recently learned that toe and fingernail fungus can also be a side effect of cancer treatment. Go figure.
And why do we have to learn these things from a patient forum vs from our oncologists?
Just sayin’.

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I finished therapy 12/9/24. My nails started getting brittle by April. My doctor says its caused by the chemotherapy I received last fall. I wore socks that were tight and my large toe toe nails split from top to bottom. That's brittle.

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My right big toenail was removed by the podiatrist. I had no idea it might've been related to my chemo treatments for multiple myeloma.

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Hi,
I had Triple Negative Breast Cancer in 2020. I did have the same problem with both toe nails on the big toes. I started going to a podiatrist. When the nail finally grew back it was coming in ingrown. The The podiatrist recommended keeping those nails cut back to prevent this from continuing. I now go every 9 weeks to a podiatrist to keep this from happening. My ins covers the cost. I hope this helps in some way. Thank you Rhonda McMillen

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Profile picture for mrsfootdoc @mrsfootdoc

Hi, my name Julie and my husband is a podiatrist for over 25 years so he has seen everything. I did ask him your question regarding big toe nail. He says toenails and hair are the same thing, keratin. When chemo causes you to lose your hair the same effect happens to your toenails and fingernails. Regarding loose toenails he suggested you have your nail removed, preferably by a podiatrist who knows how to do it properly. We do this procedure many times a week due to ingrown nails or loose nails, and fungal toenails. He numbs the skin around your big toe so you do not feel the injection of numbing medication. He places a tourniquet around base of toe to control bleeding, usually hardly any, and then removes nail. He is able to remove the complete nail. This takes all of a few seconds. If you try to hold nail on with bandaid it will usually get caught on something and rip off. When this happens some of the nail bed might be left and cause pain and infection. Also when nail grows without be completely removed it will cause pain, usually infection and more trouble than it’s worth. Especially if you have diabetes of poor circulation. Almost all insurance plans pay for this procedure. At our office for those who do not have insurance we have always worked something out. Doc says it takes about 6 months to completely grow out. ( this is the time for the colored bandaid!) same with fingernails only less time to grow out depending on health status. The toe is sore for few days. Everyone is able to wear shoes, sandals might be more comfortable but we have many people who go back to work next day in steel toe boots. The healing process takes longer and more painful if you let toe get infected, or torn off. NO lose nail will ever grow out normally by being left alone. The blood supply has been compromised so better and cheaper to take care of it sooner than later. I have had toenails removed due to fungus, it is truly not that bad. (Thinking about it is worse than getting it done) Everyone remember, just the same as your hair falling out and growing back, toenails work same way. We all have that period of “strange things that happen after chemo and radiation “ things will get better! If you have any other questions, please don’t hesitate to message me. I have a very good source of information sitting on my couch!
Take Care… Julie Hart

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Hi Julie! Thank you for great information about nail loss or the danglers…LOL. And what we can do about them. I’m sure your husband could write a book on what he’s seen. My daughter has had to have her big toe nails (each) removed several times due to Roller Derby injuries…of all things! Each time the nails grew back nicely.

I hope this helps members like @happyabby @ bobgallen @dianemb, and countless others who may see some nail damage due to chemo or other medications.

I like that your source is right next to you on the couch! 😁 Thank your husband for his professional input.

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @happyabby Welcome to the ugly toe club. 😁 Chemo did a number on all my nails too. I have photos of how I’d use super glue to hold my fingernails down as they grew out. The gap between old growth was annoying as the nails tended to flip up from the bottom and get caught on everything!
At least in my case, nature finally prevailed and around 18 months or so, most were looking fairly normal. Though my toes always look like God put them on as an afterthought! LOL. The colorful bandaid is a great idea! Own it!

By the way, officially, Welcome to Connect. I’m sorry you’re having to deal with the aftermath of chemo but hope you’re recovering wonderfully and the issue is behind you!!

We have many wonderful cancer support groups in Connect. I’d love to help direct you to a relevant group with members who are sharing a similar diagnosis. If you wouldn’t mind sharing more of your story, what brought you to needing chemotherapy?

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Hi, my name Julie and my husband is a podiatrist for over 25 years so he has seen everything. I did ask him your question regarding big toe nail. He says toenails and hair are the same thing, keratin. When chemo causes you to lose your hair the same effect happens to your toenails and fingernails. Regarding loose toenails he suggested you have your nail removed, preferably by a podiatrist who knows how to do it properly. We do this procedure many times a week due to ingrown nails or loose nails, and fungal toenails. He numbs the skin around your big toe so you do not feel the injection of numbing medication. He places a tourniquet around base of toe to control bleeding, usually hardly any, and then removes nail. He is able to remove the complete nail. This takes all of a few seconds. If you try to hold nail on with bandaid it will usually get caught on something and rip off. When this happens some of the nail bed might be left and cause pain and infection. Also when nail grows without be completely removed it will cause pain, usually infection and more trouble than it’s worth. Especially if you have diabetes of poor circulation. Almost all insurance plans pay for this procedure. At our office for those who do not have insurance we have always worked something out. Doc says it takes about 6 months to completely grow out. ( this is the time for the colored bandaid!) same with fingernails only less time to grow out depending on health status. The toe is sore for few days. Everyone is able to wear shoes, sandals might be more comfortable but we have many people who go back to work next day in steel toe boots. The healing process takes longer and more painful if you let toe get infected, or torn off. NO lose nail will ever grow out normally by being left alone. The blood supply has been compromised so better and cheaper to take care of it sooner than later. I have had toenails removed due to fungus, it is truly not that bad. (Thinking about it is worse than getting it done) Everyone remember, just the same as your hair falling out and growing back, toenails work same way. We all have that period of “strange things that happen after chemo and radiation “ things will get better! If you have any other questions, please don’t hesitate to message me. I have a very good source of information sitting on my couch!
Take Care… Julie Hart

REPLY
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