Does anyone else have men type 1

Posted by ilovemykidsforever @ilovemykidsforever, Feb 7 7:57pm

I just joined I have men type 1

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 8 9:09am

Hello @ilovemykidsforever and welcome to Mayo Connect. Yes, we do have other members who have been diagnosed with MEN1. Some are in the NETs support group and others have posted in the Diabetes & Endocrine System support group. Here are the links to those conversations where you can meet others:

- New to Mayo: MEN1 with duodenum NET G1 https://connect.mayoclinic.org/discussion/new-to-mayo/
- Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had? https://connect.mayoclinic.org/discussion/men1/
- I have a disease called multiple endocrine neoplasia 1 (MEN-1) https://connect.mayoclinic.org/discussion/i-have-a-disease-called-multiple-endocrine-neoplasia-1-and-i-have/

As you are new to Connect, I would enjoy getting to know you. Could you post a bit more about this diagnosis? For example: How long ago were you diagnosed with MEN!? What type of symptoms were you having that led to the diagnosis? Have any treatments been suggested?