Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Hello @gig666 and welcome to the NETs support group on Mayo Connect. I am glad that you found this forum. NETs/carcinoids is still considered a rare cancer diagnosis and it is important to find a place where you can meet others who are traveling on this same path.
On Connect, we have several NETs discussion groups for people with lung carcinoids. I would encourage you to read about their experiences and to ask questions in these discussions. Here ais a link to one of those discussions:

--Anyone Had Surgery to Remove Typical Carcinoids of the Lung
https://connect.mayoclinic.org/discussion/typical-carcinoids/
Here you will meet @californiazebra and @pattirushing. If you click on "Reply" under one of their posts, you can then ask them questions and discuss your own situation more fully.

One of the most important things when dealing with NETs is to have at least one consultation with a NET specialist. These are oncologists who have special training with NETs. They are your very best resource. They can help you develop the best treatment plan.

Mayo Clinic has three locations where NET specialists are available. If you would like an in-person or virtual consultation, here is a link to appointment information: http://mayocl.in/1mtmR63.

If for any reason you cannot be seen at a Mayo facility, here is list of NET specialists worldwide. The U.S. specialists are listed first, by state:
--Find a Doctor
https://www.carcinoid.org/for-patients/treatment/find-a-doctor/
Have you had any symptoms of coughing, wheezing, etc.?

Yes to all, flushing also, extreme bouts Diarrhea with mucous. Itching of skin, all problems had since 6/23.
The cough l blamed on my civic 4 times, wheezing l have blamed on GERD. Last night my chest was very tight. My Oncologist for a blood issue, said my lungs show thickning, hard to get a normal deep breath.

Is there a pet scan That cat scan the body to see if there are any other NETS. hiding or Metastasized somewhere else, liver. I Understood that the carcinoid hormones come out and get filtered through the liver, can spread cancer. Having all the symptoms of NETS.
Having a slow growing intracranial menginoma, removed 2017, MRI discovered empty Stella succa, also a venous abnormality blockage. Mild focal seizures do happen.
My QUESTION.. THERE IS A HORMONAL GLAND IN THE BRAIN LEFT SIDE, ON MY TUMOR SIDE. I WAS TOLD IT DOES PRODUCE HORMONES, SEEING I HAD A HYSTERECTOMY 40 YEARS AGO. WHAT'S THE CHANCE THIS GLAND IS SECRETING HORMONES THAT ARE FEEDING THESE NODULES I HAVE HAD 10 years monitored, and two years ago cat scan show a growth in lower lobes right and now left lung?

My 88 year old loved one has had a gallbladder full of stones before starting lanreotide monthly injections for metastatic lung carcinoids. I questioned the oncologist because the warning mention not to give if you have gallstones. He pressed on that it was fine. Repeat this pattern every month because she had worsening abdominal pain., a palpable hardened Right upper quadrant with intense sweating. Finally the oncologist ( if you can call him that) said " oh the cancer must be worse... time for either chemo ( which she is too frail for) or hospice. Oh ... but since you are here... how about 1 more injection of lanreotide." Thankfully my loved one turned down the shot.( That he already said was not helping ) We are now a few weeks from that appointment.. her urine is increased... the hardened spot is gone... and the abdominal pain too! Not impressed with lanreotide by this experience.

My 88 year old loved one has had a gallbladder full of stones before starting lanreotide monthly injections for metastatic lung carcinoids. I questioned the oncologist because the warning mention not to give if you have gallstones. He pressed on that it was fine. Repeat this pattern every month because she had worsening abdominal pain., a palpable hardened Right upper quadrant with intense sweating. Finally the oncologist ( if you can call him that) said " oh the cancer must be worse... time for either chemo ( which she is too frail for) or hospice. Oh ... but since you are here... how about 1 more injection of lanreotide." Thankfully my loved one turned down the shot.( That he already said was not helping ) We are now a few weeks from that appointment.. her urine is increased... the hardened spot is gone... and the abdominal pain too! Not impressed with lanreotide by this experience.